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RUNX1-Familial Platelet Disorder

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The RUNX1 Research Program

Contact: Website or
Population Served:

Patients, caregivers, and healthcare professionals worldwide


To improve the quality of life and prevent cancer in patients with the RUNX1-Familial Platelet Disorder (RUNX1-FPD); to promote awareness; to fund research about this hereditary blood disorder which predisposes an individual to develop a blood cancer in his or her lifetime.

  • Provides information, education and support to RUNX1-FPD patients and their families
  • Hosts scientific conferences and patient meetings
  • Funds independent research grants and grants in partnership to study RUNX1-FPD
  • Collaborates with RUNX1-FPD researchers and clinicians to facilitate research studies and improve patient outcomes.