Skip to main content

RUNX1-Familial Platelet Disorder

Please note that these resources are regularly reviewed to ensure that links still work correctly and that the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect, please email infocenter@lls.org.  If you would like for us to consider adding your organization to this resource, please complete and submit this form.

The RUNX1 Research Program

Contact: Website or info@runx1-fpd.org
Population Served:

Patients, caregivers, and healthcare professionals worldwide

Mission

To improve the quality of life and prevent cancer in patients with the RUNX1-Familial Platelet Disorder (RUNX1-FPD); to promote awareness; to fund research about this hereditary blood disorder which predisposes an individual to develop a blood cancer in his or her lifetime.

  • Provides information, education and support to RUNX1-FPD patients and their families
  • Hosts scientific conferences and patient meetings
  • Funds independent research grants and grants in partnership to study RUNX1-FPD
  • Collaborates with RUNX1-FPD researchers and clinicians to facilitate research studies and improve patient outcomes.