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RUNX1-Familial Platelet Disorder

These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email Because we want to be sure that our visitors find the most relevant resources, we encourage you to visit the organization's website for more detailed information.

The RUNX1 Research Program

To improve the quality of life and prevent cancer in patients with the RUNX1-Familial Platelet Disorder (RUNX1-FPD); to promote awareness; to fund research about this hereditary blood disorder which predisposes an individual to develop a blood cancer in his or her lifetime.

  • Provides information, education and support to RUNX1-FPD patients and their families
  • Hosts scientific conferences and patient meetings
  • Funds independent research grants and grants in partnership to study RUNX1-FPD
  • Collaborates with RUNX1-FPD researchers and clinicians to facilitate research studies and improve patient outcomes. 

Patients, caregivers, and healthcare professionals worldwide

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