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Patients, caregivers, and healthcare professionals worldwide
To improve the quality of life and prevent cancer in patients with the RUNX1-Familial Platelet Disorder (RUNX1-FPD); to promote awareness; to fund research about this hereditary blood disorder which predisposes an individual to develop a blood cancer in his or her lifetime.
- Provides information, education and support to RUNX1-FPD patients and their families
- Hosts scientific conferences and patient meetings
- Funds independent research grants and grants in partnership to study RUNX1-FPD
- Collaborates with RUNX1-FPD researchers and clinicians to facilitate research studies and improve patient outcomes.