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Lymphedema refers to swelling that generally occurs in the arms and/or legs. Lymphedema results from a blockage in the lymphatic system, most commonly caused by the removal of or damage to lymph nodes as a part of cancer treatment. The blockage prevents lymph fluid from draining well, and the fluid buildup leads to swelling.
To fight lymphatic diseases and lymphedema through education, research, and advocacy.
- Provides disease, treatment and clinical trial information; patient registry; educational programs, newsletters and journal
- Advocates for lymphatic disease research and sponsors research grants and awards
- Has chapters in the US and abroad.
Patients, caregivers, health professionals worldwide516-625-9675 http://lymphaticnetwork.org/
To create awareness of lymphedema through education, and to promote and support the availability of quality medical treatment for all individuals at risk for or affected by lymphedema.
- Provides referrals to lymphedema treatment centers, health professionals, training programs, suppliers, support groups, pen pals/net pals, clinical trials
- Offers financial aid for compression garments to eligible patients
- Offers quarterly newsletter, online resource guide, educational materials for patients and health professionals
- Supports research into the causes of lymphedema and possible alternative treatments
- Biennial international conference for health professionals.
Patients, health professionals worldwide800-541-3259 or 510-809-1660 http://lymphnet.org
To provide professional case management services to Americans with chronic, life threatening and debilitating illnesses.
- PAF Case Managers serve as active liaisons between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters as they relate to their diagnosis; may also be assisted by doctors and healthcare attorneys. PAF seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.
- Offers PAF authored publications and content, distributes booklets and publications
- Offers an annual scholarship program for survivors
- PAF Co-Pay Relief Program provides direct financial assistance to insured patients who meet certain qualifications to help them pay for the prescriptions and/or treatments they need. This assistance helps patients afford the out-of-pocket costs for these items that their insurance companies require. For details, call 866-512-3861.
People in the U.S. with chronic, life-threatening and debilitating illnesses800-532-5274 http://www.patientadvocate.org/