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Erdheim-Chester Disease

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Erdheim-Chester disease involves the excessive production of histiocytes, which are a type of white blood cell. These cells, which normally help fight infection and injury, then gather in different organs and tissues and can result in a variety of symptoms, including organ failure.


ECD Global Alliance

Contact: Website
Population Served:

Patients, family members, and caregivers affected by Erdheim-Chester Disease, health professionals, worldwide


Dedicated to awareness, support, education, and research related to Erdheim-Chester Disease, a rare multi-system histiocytic syndrome.

  • Provides disease and clinical trial information, publications, referrals to physicians and care centers, patient registry, educational events, online supports
  • Funds research exploring the diagnosis, cause, treatments, and cure of Erdheim-Chester Disease
  • Advocates on behalf of Erdheim-Chester Disease patients