Skip to main content

Erdheim-Chester Disease

Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email infocenter@lls.org. Because we want to be sure that our visitors find the most relevant resources, we encourage you to visit the organization's website for more detailed information.

Erdheim-Chester disease involves the excessive production of histiocytes, which are a type of white blood cell. These cells, which normally help fight infection and injury, then gather in different organs and tissues and can result in a variety of symptoms, including organ failure.


 

ECD Global Alliance

Dedicated to awareness, support, education, and research related to Erdheim-Chester Disease, a rare multi-system histiocytic syndrome.

  • Provides disease and clinical trial information, publications, referrals to physicians and care centers, patient registry, educational events, online supports
  • Funds research exploring the diagnosis, cause, treatments, and cure of Erdheim-Chester Disease
  • Advocates on behalf of Erdheim-Chester Disease patients

Patients, family members, and caregivers affected by Erdheim-Chester Disease, health professionals, worldwide

Website http://erdheim-chester.org/