Search Results
Keana
Hello, my name is Keana. I am 26 years old, and I was born in Columbus Ohio. I was born with a rare heart condition called “hypertrophic cardiomyopathy.” It is a hereditary disease on my mother’s side. Many family members, including my mother, have passed away from the disease, and the other half received heart transplants, which is what led to me. I recently got my heart transplant in September 2021 and was admitted to the hospital for three months, one before and two after. After my heart transplant, I came in contact with COVID.
Lauren
My husband, Frank, was a 40-year-old, hard-working family man and the sole provider for me and our two children when his world was turned upside down by a routine blood test showing he had acute myeloid leukemia (AML). This was a nightmare for all. He had to be admitted to Memorial Sloan Kettering Hospital for five weeks where he received chemotherapy and ended up in the ICU with sepsis, heart failure, and organ damage. We were not sure if he was ever going to get out of there, but he became strong enough for his bone marrow transplant and had that in October.
Sherri
I have donated to The Leukemia & Lymphoma Society (LLS) for many years. This year I wanted to do more in honor and loving memory of my dad, Frederick.
Luis
I used to donate blood at least three times a year. I did it as a way of helping others and never realized it would one day lead to me being diagnosed with myelodysplastic syndrome. But that’s exactly what happened in 2006, when a case of anemia kept me from donating blood that year.
Kathie & Dave
Dave and I have been a part of The Leukemia & Lymphoma Society (LLS) since 1998. I can’t even remember how many Team In Training events we’ve done. We have both done at least one a year if not more since Michael, our son, was diagnosed.
This picture explains it all. Michael was 5 years old when he was diagnosed and of about 10 kids going through treatment with him at the time, I think only he and another are still here today. I know the statistics should be better but that’s the reality for us.
Nandini
Everything was picture perfect in my life. A beautiful family with two beautiful daughters and husband. And then, in March 2009, I was diagnosed with acute myeloid leukemia (AML).
I had been recovering from aplastic anemia since 2002. However, AA progressed into AML. A transplant was the best cure available and a kind unrelated donor was found who gave a new lease to my life. After a painful bone marrow transplant recovery, I am now in remission. My older daughter just went to college and my younger daughter is in fourth grade.
Keith
When the doctor calls you and says, "I need to speak to you as soon as possible," you know the news can't be good. I was diagnosed with a rare and aggressive form of leukemia, bastic plasmacytoid dendritic cell neoplasm (BPDCN). Most doctors have never even heard of it.
Christal
My brother was diagnosed with acute lymphoblastic leukemia (ALL) in September 1996 and passed away in April 1997, his senior year of high school and less than a month after turning 18. As a young person watching my brother suffer through his cancer diagnosis and subsequent death, it took away pieces of me that I will never get back. Not only me but my parents, his friends, our church, and strangers alike. Throughout the years, I have felt exhausted in grief as I denied my feelings, only to be hit by it in full force in unexpected moments.
Tim
I was diagnosed with follicular non-Hodgkin lymphoma (NHL) in preparation for heart surgery. While my disease was stage 3, it was also slow-growing, and I went ahead and had open-heart surgery in January 2022 to repair a valve. Six months later, my disease had advanced, and I began four rounds of Rituxan® which did not work sufficiently. However, in that interim, I signed up for the Boston Marathon ― which goes by my house ― to run for Dana Farber where I am being treated.
Alexis
My grandma has been close to me for as long as I can remember. Holidays, birthdays, and summers — I always remember being with her and my grandpa. We took trips on cruises, visited Hawaii, and I had amazing chances to get closer to them. When my grandma was diagnosed with leukemia, my family and I knew we wanted to do something bigger. We joined The Leukemia & Lymphoma Society’s (LLS) Team In Training (TNT) to run the Walt Disney Marathon Weekend Dopey Challenge, and it was an amazing experience.
Arturo Pierre
I’m 61 years old. I was diagnosed with chronic lymphocytic leukemia (CLL) the first time at 51, unaware of any symptoms. I was told that my diagnosis at my age was unusual. After chemotherapy and remission, the disease returned during COVID while I was being treated orally. The second experience was much worse. I’m in clinical remission for the second time in 10 years. Besides CLL, I wrestle with numerous orthopedic issues. I live an active lifestyle and maintain a healthy diet, exercise regularly, and work full time.
Erika
I am a 36-year-old cancer survivor. In February 2014, I found a suspect lump and had become unusually tired. I was a career-driven single mother of a very active 10-year-old boy, so when I say unusually tired it was time to call the doctor. Within days I was thrown into the crazy and often times confusing world of hospital appointments and insurance company battles for various procedures and surgical biopsies. We became pros at the waiting game.
Chemotherapy
If you're being treated for hairy cell leukemia, your first line of defense will likely be chemotherapy. During chemotherapy, you'll be given potent drugs that must be toxic enough to damage or kill leukemic cells. At the same time, they can take aim at normal cells and cause side effects. Yet, not everyone experiences side effects and people react differently.
The chemotherapy drug used to treat hairy cell leukemia is cladribine (Leustatin®). Cladribine is given in a vein (intravenously). You'll usually receive the treatment for seven consecutive days.
Clinical Trials
When it comes to finding the right treatment for your child's cancer, a clinical trial may be an option. Your child will have access to new or improved therapies under study and not yet on the market. Discuss with your child's doctor the possibility of participating in a clinical trial, where treatment is administered in a safe, closely monitored environment.
Click here to read more about clinical trials.
Cassie
Cassie Fetsch is a regular volunteer for The Leukemia & Lymphoma Society’s (LLS) Minnesota chapter. When school is out, staff members can count on Cassie to be in the office folding letters, stuffing and labeling envelopes, counting Team In Training brochures, cleaning out drawers or putting together pizza boxes. Since Domino's sponsors LLS's Pennies for Patients program, they donate all the boxes to ship campaign supplies. This year, Cassie assembled boxes for more than 800 schools!
Lorelai
I was diagnosed with acute myeloid leukemia (AML) when I was 11. Throughout my entire cancer journey, I had a lot of people in my corner. But what I found most helpful was following The Leukemia & Lymphoma Society’s (LLS) social media platforms and reading the articles on their website. Through LLS, I felt like someone actually understood what I was going through. Recently, I have been one of the very lucky students chosen to receive the LLS Scholarship for Blood Cancer Survivors which will be the reason I am able to continue attending college.
Cary
Cary was diagnosed with Acute Lymphoblastic Leukemia in the fall of 2012. After spending more than 100 days in the hospital, undergoing intense chemo treatments, and blood transfusions Cary is now in remission. You can only imagine the struggle and heartache a cancer diagnoses was at only 33 years of age with a wife, 3 small boys, and a career.
Janel
Throughout my childhood, my grandmother instilled in me the importance of helping those in need and gave generously to various charities and organizations. Her unwavering dedication to serving others inspired me to continue her legacy and give back to my community.
Cooper
I am Cooper, and I am a leukemia survivor. I am 26 and creating businesses around the creativity space. I am a healer and author of multiple books. I was diagnosed with leukemia at the age of seven. I did treatment for 2½ years with chemotherapy. I have been in remission for 16 years. I am grateful to be here. I have donated around $100,000 to The Leukemia & Lymphoma Society (LLS). I have done Pennies for Patients (PFP), Student Of The Year (SOY), and been an Honored Hero for multiple events. My high school raised $10,000 in one week for PFP.
David
My dad, David, was diagnosed with acute lymphoblastic leukemia (ALL) on March 1, 1993, after looking at his blood under a microscope in college class. He started three years of intense chemotherapy on March 8, 1993, and finished it on January 26, 1996, while a third-year medical student. He was told that there was a 50% survival at five years and 30% survival at 10 years and that he would likely not be able to have children. During that time, he got married. Two years after finishing chemo, my oldest brother was born. I have three older brothers and an older sister.
Joe
My son Joe was 5 years old when he was diagnosed with T-cell leukemia just three days after the birth of his brother Cole – Joe was admitted to the ICU, and on Sunday, the next day, they did a spinal tap and a bone marrow biopsy. At midnight that night, he started his chemotherapy treatments.
In the first 30 days, his bone marrow had cleared to zero, and he was technically designated as a “low risk rapid responder.” All things being equal, he has done a phenomenal job through this.
He is in long-term maintenance and he finished his treatment on December 13, 2014.
Dean
In October 2015, after a trip to the ER with pain in my abdomen, I was diagnosed with stage 3, large B cell, multiple location, non-Hodgkin lymphoma.
My oncologist originally told me that the treatment plan would include 10 chemotherapy rounds, followed with radiation. I was out of work for eight weeks until my doctor decided I was in good enough health to return work.
Cancer affects everyone in your life that loves you — emotionally and financially. When you are sick, the bills do not stop coming, and in some cases, cancer can ruin people financially.
Myra
Over the course of Myra’s career in oncology nursing, she’s seen the hurdles that families face and heard from patients about the daily struggles to access the care they need to stay alive. Unfortunately, she is too familiar with patients who are forced to choose between life-saving treatment and going against a doctor’s recommended treatment plan simply because the cost is too high.
Jaden
When I was nominated to be a Student Visionary of the Year, I had no idea how it would impact my life. I was allowed to join a groundbreaking philanthropic leadership development program for high school students. Throughout my courageous seven-week journey, I had a goal of creating a world without blood cancers. It was bigger than winning; it was about making a real impact on the world around me. I learned business marketing skills, used effective communication tools, and met with fellow change-makers in my local area. By the end of the campaign, I felt like a new person.
James
In 2001, my wife and I had not been able to get pregnant after five years of marriage. We decided to look into adoption. As part of the application process, we were required to go for routine bloodwork. Soon after, I got a call at my desk at work that I needed to see an oncologist. I was informed I had chronic myelomonocytic leukemia (CMML), a rare form of leukemia.