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Inspirational Stories

Alice

chronic lymphocytic leukemia (CLL)

Macon, GA

      I was diagnosed with chronic lymphocytic leukemia (CLL). My advice to someone would be as soon as you learn that you have a form of cancer in your body, read a lot about it. Learn as much as you can about your cancer and how to talk to your doctor. It's up to you; it’s a mind situation. Don’t say, “Woe is me.” Say, “What should I do to take care of myself and enjoy life?” You are in charge, no one else can do it for you. The Leukemia and Lymphoma Society (LLS) helped me learn—I want to tell other people what LLS offers!

     The PearlPoint dietitian is a good listener and is willing to take time. I have less energy to cook and have chewing issues. So, it’s a challenge to decide what to eat. Margaret (LLS registered dietitian) shared with me some choices in foods which I could prepare that would be adequate for my body. She also suggested foods to add calories and to stop weight loss. I do cook for my dogs Rocky and Sport instead of buying commercial dog food.
 

     Also, LLS’s Information Resource Center helped me with a 2nd opinion and to find new doctors who would give me education and guidance. I need to have a doctor who will help me help myself. LLS gave me provider lists for doctors in my area. It's important to have a doctor who I have confidence in. They also shared near-by dental providers, in-person support groups and education meeting information.

     Dealing with cancer is a mind situation where I need to be positive. Keep asking questions. My mother taught me that you should share with other people and show appreciation for other people, that is how I measure my worth in life.  I share my insight to help other people grow. That is my mantra. 

Alice