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Blood Cancer Survivors Find Special Meaning and Connection as Employee Champions of LLS Light the Night Events
The Leukemia & Lymphoma Society (LLS) is proud of our continuing partnership with Gilead and Kite Oncology as the National Presenting Sponsor of Celebration and Community at Light The Night events across the U.S. helping bring people together and raise critical funds to support patients and their families.
Helping Survivors Lead Longer Better Lives
Late last year I had the privilege of attending a special screening of the documentary American Symphony. The film chronicles the experiences of writer Suleika Jaouad and her husband musician Jon Batiste after learning that her acute myeloid leukemia (AML) had returned after years of remission. The movie shows how the couple navigates uncertainty, treatment, and their new normal afterwards.
Stronger Together: Navigating Cancer as Newlyweds
As we round out our first year of marriage and our first year of battling cancer, I recently asked my husband Brad how he would describe this past year. “Disrupted.” Before cancer, we had plans: big, extravagant, travel-the-world kind of plans. After two years of a long-distance relationship, we were finally going to live in the same city. We were going to get settled in our brand-new home. We were going to make new Florida friends. We were excited about the opportunities we had in our careers. We were going to capitalize on the “newlywed phase” to the fullest extent!
Champions in myeloma research: A conversation with Urvi A. Shah, M.D. M.S.
March is Myeloma Awareness Month, and it’s also Women’s History Month. So what better time to spotlight LLS-funded women scientists who are driving discovery for myeloma patients.
In this first of my two-part series on myeloma researchers, I sat down with Urvi A. Shah, MD, MS, an Assistant Attending in the Myeloma Service at Memorial Sloan Kettering Cancer Center.
LLS, advocates celebrate major state policy wins for patients
While Congress meets year-round, state legislatures typically meet only in the first half of the year. The start of the summer generally marks the end of the state sessions.
As LLS prepares for our 2024 state work, it’s important to celebrate the incredible wins we achieved at the state level in 2023.
These policies are the culmination of years of work from volunteers and LLS staff from across the organization. We hope you’ll take a moment to learn about them – and share them with your own stakeholders.
Nutrition Advice from a Dietitian & Blood Cancer Survivor
76-year-old Barbara Borrell is a woman who wears many hats – a 50+ year registered dietitian, nutrition consultant and educator, cancer advocate, volunteer with The Leukemia & Lymphoma Society, and a blood cancer survivor who has battled not one, not two, but three types of blood cancer.
MY FIRST 100 DAYS AS LLS PRESIDENT & CEO
Dear Friends,
I’m just over 100 days into my new role as President & CEO of The Leukemia & Lymphoma Society (LLS) and I want to take this moment to say how grateful and proud I am to work alongside all of you in service of blood cancer patients and their families. It’s been great meeting many of you as I travel to our regions and meet with departments throughout the country. And I look forward to meeting many more of you in the months ahead.
Moving Forward: 4 Young Blood Cancer Survivors Look Ahead
Blood cancer survivors have a unique path ahead of them—and that can feel challenging.
Questions come up: Does treatment mean I have to pause everything? Do I tell my friends or coworkers (and how)? With my medical bills, how can I afford the education I want?
The Gift of Time: Giving More Moments to Blood Cancer Patients
As we transition from one year to the next, we often reflect on milestones achieved, challenges faced, and moments shared with those we love. It’s a time to focus on what’s most important—family, community, and how we’ll spend our time going forward. At the Leukemia & Lymphoma Society (LLS), we know that time is more than just a passing moment for blood cancer patients. It’s the most valuable gift they can receive.
Justin
In March 2012, when Justin was in the sixth grade, he started to rapidly lose weight, was experiencing extreme exhaustion and night sweats. After multiple visits to the doctor but no answers, his parents finally took him to the hospital for more intensive testing, including a bone marrow biopsy. One day later they received the shocking diagnosis: acute lymphoblastic leukemia.
Why We Love Nurses (And You Should Too!)
It makes sense that at diagnosis and throughout treatment, someone diagnosed with a blood cancer will look around them for answers or support.
Refractory and Relapsed
Some patients with myeloma have refractory disease. Refractory myeloma is cancer that does not respond to treatment. After a time, almost all myeloma patients will experience relapse, which means the cancer returns after a successful course of treatment. The treatment for relapsed and refractory myeloma is affected by many factors including previous therapy, rate of relapse, patient health, and genetic abnormalities.
Treatment for Relapsed and Refractory MyelomaTreatment for relapsed or refractory myeloma may include: