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Suggested Reading - My Journey with Leukemia: The Power of Family, Faith, and Humor

My Journey with Leukemia: The Power of Family, Faith, and Humor By Jennifer Venegas
​Published by Outskirts Press, 2018, 175 pages
ISBN: 978-1-4787-7904-9

This book outlines the personal journey of 45 year old Jennifer Venegas who was diagnosed with Ph-positive Acute Lymphoblastic Leukemia.  Jennifer chronicles her daily experience as she undergoes chemotherapy and an allogeneic transplant, then deals with Graft vs Host Disease (GVHD).  From a faith-based perspective, she describes the realities of managing her treatment, her changing roles, and the financial impact of her cancer diagnosis.

My Journey with Leukemia: The Power of Family, Faith, and Humor
Subject
Living with Cancer/Survivorship Side Effects

Suggested Reading - My Blood Brother: A Story About Childhood Leukemia

By Elizabeth Murphy-Melas and Mary Kate Wright (Illustrator)
Health Press NA Inc., 2010, 32 pages
ISBN 9780929173566
Ages 4-10

This touching book explores the dynamics of a family dealing with childhood leukemia. Sam and his older brother, Stefan, learn together that Sam has leukemia. The story shows the emotional turmoil a family endures while coping with a diagnosis of childhood cancer. Although Sam is only seven years old, he learns about how the disease affects his body and the terminology related to his illness. My Blood Brother provides support for the patient, siblings, parents, friends and extended family. The illustrations are done by an award-winning medical illustrator who uses color and technique to provide comfortable, soothing illustrations in contrast with the emotionally charged story line. Parents and young children may benefit from this book.

Targeting non-genetic mechanisms of therapeutic resistance in Acute Myeloid Leukaemia

Drug resistance in AML can develop via a non-genetic process which remains poorly understood. Using our novel cellular barcoding technology that can trace the growth of thousands of cancer cells, our research will identify genes that are switched on or off in AML cells that lead to drug resistance and relapse. This work will reveal the factors underpinning non-genetic drug resistance that may be targeted with new drugs to prevent relapse and ultimately improve quality of life and survival.

Functionalizing novel PHIP variants in ancestry specific Acute Myeloid Leukemia

AML risk stratification established by previous studies do not reflect survival outcomes observed in Black patients. Exome sequencing of 100 Black AML patients revealed the novel variants previously not affiliated with AML, including PHIP. Using multiomic patient sample captures and GEMMs, we will functionalize variants in PHIP and assess if they drive leukemogenesis and/or therapy resistance. The overall goal of this work is to implement inclusive genetic assessment tools for AML diagnosis.

Cancer Crossings: A Brother, His Doctors, and the Quest for a Cure to Childhood Leukemia

Cancer Crossings: A Brother, His Doctors, and the Quest for a Cure to Childhood Leukemia by Tim Wendel
ILR Press, 2018, 256 Pages, Paperback and Kindle
ISBN: 978-1501711039

When Eric Wendel was diagnosed with acute lymphoblastic leukemia in 1966, the survival rate was 10 percent. Today, it is 90 percent. Author Tim Wendel discovered that most of the doctors who cared for his brother at Roswell Park in Buffalo, N.Y., were at the forefront of this medical 'moonshot.' Tim interviewed the doctors and nurses in this effort, including Donald Pinkel, Lucius Sinks, and James Holland. Their medical advancements, as well as his brother's story, are detailed here. 

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Suggested Reading Cancer Crossings
Audience
Adults
Subject
Inspiration

Decitabine

Decitabine is FDA approved to treat adults with myelodysplastic syndromes (MDS) or chronic myelomonocytic leukemia.

Pegaspargase

Pegaspargase is FDA approved in combination with other chemotherapy medications to treat people who have acute lymphoblastic leukemia (ALL).

Obecabtagene autoleucel

Obecabtagene autoleucel is indicated for the treatment of adults with relapsed or refractory B-cell precursor acute lymphoblastic leukemia (ALL).

Cleaning Tips to Help Keep You and Your Loved Ones Safe

The Leukemia & Lymphoma Society (LLS) is here to help. We’ve put together guidance from the U.S. Centers for Disease Control and Prevention (CDC) and other tips to help caregivers and families keep their homes clean and healthy.

Rasburicase

Rasburicase is FDA approved for the initial management of plasma uric acid levels in patients with leukemia, lymphoma and solid tumors who are receiving certain types of anticancer therapy expected to result in elevated plasma uric acid.