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American Cancer Fund (ACF)
Anyone affected by cancer and needing information
ACF™ is dedicated to the education, support and empowerment of those diagnosed with cancer by organizing and clarifying information. Provides information about:
- Living with Cancer
- Clinical Trials
- Complementary and Alternative Medicine
- Nutrition and Exercise
- Oral Health
American Cancer Society (ACS)
People affected by a cancer internationally; programs and services offered to patients and caregivers residing in the United States
In the U.S., ACS is a community-based voluntary health organization dedicated to eliminating cancer as a major health problem.
- Provides educational materials both online and in print about cancer, including blood cancers, as well as related information on topics such as diet, exercise, complementary and alternative medicine, and disease statistics
- Offers support services via online discussion boards and in-person support groups through local chapters
- Cancer Survivors NetworkSM, a global online community, transcends geographic boundaries and builds bonds among cancer survivors and caregivers through shared experiences and feelings
- Road to Recovery, a program offered locally by some chapters, has volunteer drivers who transport patients to and from treatment appointments
- Hope Lodges are temporary housing accommodations for patients traveling far from home for treatment. There are more than 30 lodges.
Amy’s Rays of Sunshine
Patients ages 18-50 who are having a bone marrow transplant in the U.S.
Provides encouragement, positivity, and hope to patients who are starting their bone marrow transplants by giving them a box of handwritten inspirational cards, notes, and other items during this physically and emotionally challenging time.
Aplastic Anemia & MDS International Foundation
Patients and families living with Aplastic Anemia, Myelodysplastic Syndromes (MDS), Paroxysmal Nocturnal Hemoglobinuria (PNH), and related bone marrow failure diseases
To support, connect and educate patients, caregivers and health professionals on bone marrow failure diseases worldwide
- Free educational materials: Information on research, treatment, and clinical trials
- Online Academy: Live webinars, webcasts, interviews with experts, and interactive learning modules
- Peer Support Network: Patients and caregivers can speak with trained patient volunteers who share treatment experiences and provide emotional support
- Community Connections: Volunteer-led regional support groups connecting patient and families
- Educational Conferences: Our free conferences in cities around the country offer learning opportunities from leading medical experts, and the ability to connect directly with other patients and caregivers
- Find A Specialist: online search tool.
Cancer Hope Network
People diagnosed with cancer and their families in the U.S. and Canada
To provide one-on-one support to people undergoing treatment for cancer and their families.
- Provides training to individuals who have recovered from cancer so they can be matched with cancer patients currently undergoing a similar experience.
Cancer Support Community (CSC)
People affected by cancer in the U.S. and Canada
To provide support, education and hope to people affected by cancer; to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.
- Offers support through a network of more than 52 local affiliates and 175 locations
- Cancer Support Helpline® - offers resources and emotional support via phone or live chat, and is staffed by licensed mental health professionals
- MyLifeLine - create a private, personal webpage to help keep family and friends stay involved and informed
- Frankly Speaking About Cancer® – education series that provides trusted information on a variety of topics important to people affected by cancer; information is available in a variety of formats
- Virtual Home - resources to connect you to education, support, and action opportunities to enhance your health and well-being from the comfort of your computer
- Open to Options – provides general information about clinical trials, helps patients identify important questions about treatment options and decisions based upon personal needs
- CancerSupportSource® - a tool that assesses distress in key areas (such as sleep, nutrition, worry about the future) and provides referral and follow-up care for all patients
- Cancer Experience Registry - a unique online community that brings people impacted by cancer together to make their voices heard, connect with each other, share experiences, learn from and help others
- Cancer Transitions – an evidence-based programs for cancer survivors who have completed their treatment (in partnership with LIVESTRONG)
Individuals, families, caregivers and the bereaved in the U.S. affected by a cancer diagnosis
To provide free, professional support services to individuals, families, caregivers and the bereaved to help them cope with and manage the emotional and practical challenges of cancer.
- Oncology social workers are available for telephone counseling services to provide support, information and resources to help in coping with cancer
- Offers online support groups and educational publications
- Cancer Out Loud: The CancerCare Podcast features conversations with people living with cancer, caregivers, survivors, loved ones and the bereaved
- Connect Education Workshops in which leading experts in oncology provide up-to-date information in one-hour workshops over the telephone or online
- Financial assistance for transportation, medications, home care, child care, pet care, or durable medical equipment may be available for patients in active treatment. Eligibility guidelines vary depending on diagnosis, gender and geographic location. Call for details
- Healing Hearts Family Bereavement Camp - a free retreat for families with children coping with the loss of a loved one to cancer
- Financial assistance for insured cancer patients in treatment in the US to help with co-payments for chemotherapy and targeted treatment medications who meet certain financial, medical and insurance eligibility criteria. Check the website (http://cancercarecopay.org/) or call 866-552-6729 for details.
People diagnosed with cancer, caregivers, and professionals in the U.S.
Cancer.Net brings the expertise and resources of the American Society of Clinical Oncology (ASCO) to people living with cancer and those who care for and care about them.
- Cancer.net website provides patient-focused information produced by ASCO
- Offers a toll-free helpline to people with cancer, their caregivers, family members, and friends to assist them in finding resources that may assist in their search for information.
To provide information and support for people caring for aging parents, spouses and other loved ones.
- Provides elder care information and support, including information about senior living options and in-home care
- Offers an online section covering a wide variety of relevant caregiving-related topics (e.g. insurance, benefits, coping)
- Offers one-on-one guidance with a Family Advisor at no cost.
Anyone seeking information on chemotherapy or cancer
Chemocare.com® is a website designed to provide the latest information about chemotherapy to patients and their families, caregivers and friends. The site focuses on care during chemotherapy including information about FDA approved chemotherapy medications, nutrition, managing side effects and self-care tips. The content is continually updated and reviewed by oncology specialists.
Pediatric (age 4 and up) and adult cancer patients undergoing chemotherapy in the US
To offer support and encouragement to cancer patients in treatment
- Volunteers send cards and uplifting messages to cancer patients via postal mail
- Website provides links to patient resources.
Older adults, caregivers in the U.S.
To connect older adults and their caregivers with trustworthy support resources.
- Links those who need assistance with state and local agencies on aging as well as community-based organizations that serve older adults and their caregivers
- Provides information on topics such as housing, insurance, transportation, etc.
- Is a public service of the Administration on Aging, an agency of the U.S. Administration for Community Living.
Elephants and Tea
Adolescent and young adult cancer patients, survivors, caregivers, and healthcare professionals worldwide
To help adolescent and young adult (AYA) patients, survivors, and caregivers know they are not alone in their fight with cancer
- Provides a free quarterly print magazine and online site with stories and experiences written by young adult cancer patients and survivors
- Offers digital programs and events to bring the AYA community together to interact and empower each other
- Collaborates with AYA organizations across the US.
Get Palliative Care
Patients with life-threatening illness and their caregivers
To increase the availability of quality palliative care services for all people living with serious illness.
- Provides information about palliative care: specialized medical care which provides patients with relief from symptoms, pain and stress
- Explains how palliative care helps people with specific diseases
- Provides a directory of hospitals with palliative care teams
- Offers videos, blog, printed material and other resources including a quiz to help individuals know if palliative care is right for them.
Give an Hour
Rare disease caregivers, military/veterans and their families, and other communities in need
To create resilient communities by improving mental health and emotional wellbeing, one hour at a time.
- Free individual mental health counseling services for military service members, veterans, and their loved ones. Services are donated by community mental health professionals.
- 1:1 Peer Support and Group Peer Support for the military community, as well as rare disease caregivers and individuals affected by interpersonal and community violence.
Global Resource for Advancing Cancer Education (GRACE)
People with blood cancer (and lung or head & neck cancer), caregivers, health professionals
To provide expert-mediated information on current and emerging cancer management options in order to empower patients, caregivers, and health professionals to become direct partners in cancer care.
- Offers cancer information and video library, podcasts, email newsletter and online discussion forums.
Individuals and families facing cancer in the United States
To improve the lives of those affected by cancer
- Offers financial assistance to individuals with blood cancer; see website for eligibility criteria.
- Offers comfort kits to individuals with any type of cancer.
- Provides HeadtoHead peer support services to individuals with any type of cancer.
- Provides additional local support services and resources in Philadelphia, PA and New York area hospitals.
Hearts Need Art
Caregivers, patients, adolescents, young adults, adults, survivors, healthcare professionals
To create moments of joy, self-expression, and connection for those facing life-altering health challenges through arts engagement, advocacy, and innovation.
- Provides virtual and in person art based programs in music, visual arts, literary arts, and movement.
Anyone with cancer
To provide personalized connections that enable one-on-one support among cancer fighters, survivors and caregivers.
- Provides a unique matching program in which a “Mentor Angel” is partnered with an individual seeking cancer support. These one–on–one relationships inspire hope and offer support from someone who is uniquely familiar with the experience.
International Myeloma Foundation (IMF)
Anyone needing information on myeloma, including patients, caregivers and health professionals
To improve the quality of life of myeloma patients and their families while working toward prevention and a cure through four founding principles: research, education, support, and advocacy.
- Offers disease and treatment information via toll free number and publications in multiple languages
- Makes referrals to support groups and hosts an on-line support group
- Offers seminars, workshops and webcasts
- Provides Veterans Against Myeloma (VAM), a resource for patients who have served in the military and developed myeloma through their service
- IMF Advocacy group helps guide individuals to advocate for critical health issues that affect the myeloma community
- Supports research initiatives.
Cancer patients, survivors, and caregivers in the U.S.
To inspire and empower people affected by cancer; to provide support to guide people through the cancer experience, bring them together to fight cancer—and work for a world in which their fight is no longer necessary.
- Provides free, confidential, one-on-one support to anyone affected by cancer, not just patients, through education, guidance, and referrals.
- Offers The LIVESTRONG Guidebook and other materials to help cancer patients and survivors as they navigate the health care system.
- Additional resources include a prescription discount card, cancer-focused education resources for teachers/families, and cancer survivor exercise programs through the YMCA.
- LIVESTRONG Fertility - Dedicated to providing reproductive information, resources and financial support to survivors whose cancer and its treatment presents risks to their fertility.
MPN Advocacy and Education International
Patients with myeloproliferative neoplasms (Essential Thrombocythemia, Idiopathic Myelofibrosis, Polycythemia Vera), caregivers, professionals worldwide
To make a difference in the lives of those affected by myeloproliferative neoplasms.
- Offers disease, treatment and clinical trial information
- Website lists online and in-person support groups worldwide
- Offers an email digest, educational events and webcasts
- Provides outreach to the entire MPN community to grow awareness, understanding, and a better quality of life for MPN patients
Engages legislators and governmental bodies on behalf of their constituents to ensure the MPN Community is represented.
MPN Cancer Connection
Patients diagnosed with Myeloproliferative Neoplasms (MPNs), caregivers, professionals
To empower patients to better understand their disease and treatment options; to improve patient care
- Provides information about the MPNs such as Essential Thrombocythemia, Polycythemia Vera and Myelofibrosis
- Provides links to recent news, articles, Facebook groups and resources
National Bone Marrow Transplant Link (nbmtLINK)
Patients, caregivers who have had or will have a bone marrow/stem cell transplant in the U.S.
To help patients, caregivers, and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship by providing vital information and personalized support services.
- Offers educational publications, webcasts, online library
- Provides an extensive volunteer peer support program
- Offers Telephone Education and Support Group for Bone Marrow/Stem Cell Transplant Survivors: Coping with Chronic Graft versus Host Disease (4 week program).
National Coalition for Cancer Survivorship (NCCS)
People touched by cancer in the U.S.
To advocate for quality cancer care for all people touched by cancer.
- Advocates for changes in how the nation researches, regulates, finances and delivers quality cancer care
- Empowers cancer survivors through its publications and programs, which provide tools for self-advocacy
- Convenes other cancer organizations to address nationwide public policy issues affecting cancer survivors
- Cancer Survival Toolbox is a free, self-learning audio program to help people develop important skills to better meet and understand the challenges of their illness.
Patient Resource Cancer Guides
Patients and caregivers
To empower people who are suffering with life-altering diseases by giving them the most comprehensive and up-to-date guides to treatment and facilities for their disease free of charge.
- Provides free educational materials, written for ease of understanding, in print and online.
Patients Into People
Anyone affected by cancer in the U.S.
To brighten the day of a cancer patient with a gift of a cheerful, new hospital gown.
- Provides gowns in a variety of sizes to men and women battling cancer
PREPARE for your care
Patients, caregivers, survivors, healthcare professionals worldwide
To ensure all people are prepared and able to make informed medical decisions for themselves and their loved ones and to have a voice in their health care.
- Offers free easy-to-read advance directives for all 50 states in both English and Spanish
- Information is available in a step-by-step program with video stories
- Provides pamphlets, question guide, and movie with toolkit for group events
- Offers a newsletter and links to related research topics
The Bone Marrow & Cancer Foundation
Cancer and transplant patients and families, caregivers, survivors
To improve the quality of life for cancer and transplant patients and their families by providing vital financial assistance, comprehensive resources, educational information, physician referrals, and emotional support programs.
- CancerBuddy provides a user-friendly digital experience to help people affected by cancer across the US find buddies, share experiences and resources, provide support, and build a supportive community of peers
- Clinical Care Counseling provides confidential individual and family supportive counseling, financial guidance and resource referrals for cancer, transplant patients, and family members
- Patient Navigators provide guidance and support to anyone faced with a cancer diagnosis or needing a bone marrow transplant
- Ask the Expert enables individuals to anonymously pose questions concerning transplantation and to have them answered by transplant specialists
- Lifeline Fund provides financial support to help cover the costs of donor searches, medications, home and child care services, medical equipment, transportation, cord blood banking, housing costs and other expenses associated with transplant
- Carelines provides social media tools for crowdfunding, journaling and a volunteer task calendar for anyone with a cancer diagnosis or receiving a bone marrow, stem cell or cord blood transplant
- Your Transplant Journey Handbook provides comprehensive transplant information and resources
The Patient Story
Cancer survivors, caregivers, and healthcare providers wanting to share their story (English and Spanish)
To humanize every cancer diagnosis by helping to improve quality of life and health outcomes.
- Provides cancer survivors a chance to share their stories with those who need that help the most, empowering them to help turn their experiences into something positive.
- Provides a community to connect with others who are navigating life with a cancer diagnosis.
Twist Out Cancer
Cancer survivors, previvors (individuals who are genetically predisposed to cancer), and caregivers
Twist Out Cancer provides psychosocial support to cancer survivors and their loved ones through creative arts programming. We are a global community that enables anyone touched by cancer to connect, create, support and inspire.
- Virtual and in-person programming throughout the United States and various other countries.
- Brushes with Cancer: Program that matches those touched by cancer with artists to create a unique piece of artwork that reflects on their journey with cancer.
- Twistshops: Art therapy-focused workshops that promote healing, relaxation, and emotional recovery.
- Podcast featuring stories of extraordinary artists and courageous individuals who have been touched by cancer.