Search Results

John

I first got involved with The Leukemia & Lymphoma Society (LLS) shortly after the passing of my boyfriend, John, in 2020. John "Poochy" fought a very long and hard battle against leukemia that came to an end in August 2020.  I was absolutely devastated and lost in a world without my love.

About two weeks later, a friend posted something about an event called Light The Night (LTN) for LLS, so I checked it out and immediately signed up a team of John and my friends for my local LTN event. We raised over $1,000 in less than 24 hours!

Jack

Jack is a particularly big fan of the Leukemia & Lymphoma Society.  His is an active Patient Advocate managing a local support group for patients and caregivers interested in his rare blood cancer, he participates in LLS' First Connection program, has helped with LLS' Team in Training and Light the Night recruiting efforts.  He received LLS' appreciation award "For Outstanding Commitment and Support of Advocacy and Patient Quality of Life" in June 2104.

Joyce

We have been involved with The Leukemia & Lymphoma Society (LLS) since Steve's diagnosis with chronic myeloid leukemia (CML) in May of 2002.  Steve's CML continues to be successfully treated with a drug called Gleevec, which was funded in part by LLS.  This year we celebrated his 15 years of remission from CML by taking a trip to Florida with family.  Thank God for survivorship AND cancer research! 

Amanda

As a popular entertainment anchor on the “Good Day LA” morning show in Los Angeles, Amanda Salas has always kept busy. But after she was diagnosed with non-Hodgkin lymphoma in June 2019, she has had to refocus all her energy and time on fighting for her life.

Christine

Christine Attia knows first-hand how overwhelming and terrifying a blood cancer diagnosis can be. She lost her 27-year-old fiancé three years ago after a courageous six-month battle with acute myeloid leukemia (AML), a blood cancer which has seen few improvements in treatments in more than 40 years.

Laura

It’s hard to even know where to begin. I was 63 years old, a happily working professional in health policy and advocacy. I know the power of an organization like The Leukemia & Lymphoma Society (LLS); a daughter, wife, mom, grandma, and dog mom.

I was traveling with my husband, and I had a side pain. I thought might be a gallstone.

Barry

I was diagnosed with non-Hodgkin lymphoma in May of 2003.  The diagnosis came after three or four months of tests attempting to diagnose a lump from my neck (which was ultimately removed).  My wife and I were told that I had a disease that was considered treatable but not curable.  My particular sub-type, follicular, has a tendency to reoccur.  I was referred to MD Anderson Cancer Center in Houston.  The staging test results showed I had a very small amount of the disease on the whole, but it was present in my bone marrow, which is considered Stage IV, or

Sally

In January 2021, my new life journey was about to begin. After doctor visits, bloodwork, testing, and finally complete shock, the diagnosis of cancer was given to me and my family, large B-cell lymphoma (DLBCL), a type of non-Hodgkin lymphoma (NHL). We were in disbelief but ready to fight. As my oncologist stated, “You have an aggressive form of cancer, we will treat you aggressively, and it is potentially curable.” Those last two words were what I needed to hear. Let the fight begin. 

Erika

I am a 36-year-old cancer survivor. In February 2014, I found a suspect lump and had become unusually tired. I was a career-driven single mother of a very active 10-year-old boy, so when I say unusually tired it was time to call the doctor. Within days I was thrown into the crazy and often times confusing world of hospital appointments and insurance company battles for various procedures and surgical biopsies. We became pros at the waiting game.

Jonathan

I had been feeling very tired and dealing with massive headaches for about a month. Friends and family started to notice my pale skin and that all I wanted to do was sleep, and I felt cold all the time. That’s not like me, and everybody knows that I don’t usually carry sweaters when it’s cold because I love the cold weather. But during this time, I felt very, very cold.

Zac

In 2019, at 32, several symptoms culminated and, in hindsight, were red flags to the disease progression of acute myeloid leukemia (AML). I was less than 90 days into a new job in residential construction. I did not pay attention to what my body was telling me (extreme fatigue, excessively bleeding gums after a dental exam, bruising, and petechiae on my chest and upper extremities). After a busy weeknight trip to the grocery store, my body made me stop to pay attention with a 103.2° fever. With that, I drove myself to the local emergency room.

Gary

In 1999 I had a lump on my neck, and after strong urging from my wife and my mother, I finally went to my family doctor. My white blood cell counts were really high, and antibiotics didn't help. Eventually, a biopsy indicated chronic lymphocytic leukemia (CLL).  

King

King has a rare combination of a blood cancer called leukemia (high risk) and G6PD which is an incurable, lifelong blood disorder. His treatment plan is 3 1/2 years of daily chemotherapy. He is up to 75 pills per month, and this does not include intravenous or spinal chemo.

Unfortunately, as he gets older, the amount of chemo and medication he has to take will increase. He is three years into treatment, and has experienced several severe complications throughout this time.

Christal

My brother was diagnosed with acute lymphoblastic leukemia (ALL) in September 1996 and passed away in April 1997, his senior year of high school and less than a month after turning 18. As a young person watching my brother suffer through his cancer diagnosis and subsequent death, it took away pieces of me that I will never get back. Not only me but my parents, his friends, our church, and strangers alike. Throughout the years, I have felt exhausted in grief as I denied my feelings, only to be hit by it in full force in unexpected moments.

Don

Like so many individuals diagnosed with blood cancer, I had zero thought that I might be ill, much less with a disease that could take my life.

I had signs and symptoms that something wasn’t quite right in my body, annoying things like shortness of breath, lightheadedness, and fatigue. However, nothing registered in my head until after my diagnosis.

It’s September 2005, and I am pretty much invincible, bulletproof! I could, in fact, leap tall buildings in a single bound! Yes, in my mind I was Superman!

Jaimie Potvin

Finding cures for cancer is especially close to my heart. In 2011, my brother, Cory was diagnosed with large B-cell lymphoma. Our dad was already a two-time survivor of non-Hodgkin lymphoma, so we truly believed he would survive blood cancer too. When his treatment showed no signs of improvement, it was devastating. Cory died six years ago and I still miss him so much every single day.

Paul

I have been very active with The Leukemia & Lymphoma Society (LLS) for over 20 years including serving on the Wisconsin Chapter Board and Leadership Development Committee, fundraising for virtually all of the campaigns, patient mentoring, and advocacy leadership. When sharing my story and motives for involvement in “the early years,” I always qualified it by stating that I was motivated not to help myself but to pay it forward and hopefully contribute to improving the quality and quantity of life for future patients and families.

Olivia

I'm officially nine months in remission and just celebrated my first birthday (27!) since finishing chemotherapy treatment. In January 2022, I was diagnosed with stage IVB Hodgkin lymphoma (HL) after taking almost nine months to officially be diagnosed. Unfortunately, delayed diagnoses are often the frustrating truth for many adolescent and young adult cancer patients. However, during those nine months, I learned invaluable lessons on how to advocate for myself and persevere until I had answers.

Mayra

I am 28 years old and a mother of two. Last year on December 19, 2024, I was diagnosed with acute myeloid leukemia (AML), an aggressive blood cancer. My world was turned upside down as I had no idea what I would be dealing with or if I was going to make it. Cancer is something no one ever wants to hear.

Thomas

I had bariatric surgery on May 11, 2022. At the time, I weighed just under 600 pounds, and I understood that there was a higher possibility for complications. My three-hour procedure turned into a six-hour procedure, and my overnight stay in the hospital turned into a week. During surgery, they discovered my spleen was significantly larger than normal, and in the days following my surgery, I kept losing blood. After two exploratory surgeries, four units of blood, and a trip to the ICU later, I was finally released from the hospital with no confirmed cause of bleeding.

Luz

My name is Luz, and my story begins in a magical town in Mexico where I spent a wonderful childhood surrounded by my family. As the youngest of nine siblings, I learned the value of support and connection, values which continue to guide me today as a happily married mother of three beautiful daughters. For over twenty years, Chicago has been my home.

Hudson

Hudson entered the world on March 31, 2017. This is the day my heart left my own chest and was beating outside of my body. My whole world was immediately consumed by this little, perfect bundle of cuteness. As far as cancer risk goes, he didn’t really have any. He had a healthy infancy and toddlerhood, barely needing a Band-Aid. This is the case for so many children. In November of 2018, Hudson became a big brother to Violet. I can remember being in the studio for Violet’s newborn photos when the photographer had Hudson lay beside Violet.

Howie

In January 2014 I got pneumonia for the third in under two years. The hematologists examined my blood and suspected CLL, since my white-blood count was so low. Then a bone-marrow biopsy confirmed this. This certainly explained my inability to fight infections. I skipped all the steps in the grieving process and went straight to acceptance: It is what it is.

Laura

My mom raised seven kids before finding out she had myelodysplastic syndrome (MDS) and lymphoma, as well as Parkinson’s. She was going through treatment for the blood cancers, getting infusions of Rituxan® for the lymphoma, and transfusions of usually two units of blood when her red blood cell count was too low. We (us kids who live local) would sit with her (whoever was available) for the six+ hours it took for whichever treatment she was getting at the time. We played cards, fed her chocolate ice cream, laughed, and visited.

Matt

I’ve lived a mostly normal 27 years on this earth. A life filled with wonderful academics, Division 1 athletics (pole vault), financial internships, and fantastic sales roles at companies I really enjoyed.

However, my life changed drastically on February 28th, 2023.

In the middle of the night on that Tuesday, I was woken up by a call from an unknown number. I let it ring through… maybe it was spam? Then they called again.