Blood & Marrow Transplant Information Network (BMT InfoNet)
Contact: 847-433-3313Population served: Transplant patients, survivors and their caregivers in the U.S.
Other language(s): SpanishMission:
BMT InfoNet is dedicated to providing transplant patients, survivors and their loved ones with emotional support and high quality, easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants.
- Offers easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants
- Transplant Directory search tool
- Educational webcasts
- Caring Connections, a program that links people who are considering a transplant, or a family member, with others who have been through transplant and can offer support
- Counseling services to help patients understand treatment options and potential healthcare providers
- BMT InfoNet Drug Database is a guide that lists many of the drugs bone marrow, stem cell and cord blood transplants patients receive during treatment; it explains why they are used and some of the possible side effects.
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Patient Assistance Fund offers a limited amount of financial assistance for gas, food, rent or other necessities. Social workers may apply on behalf of a patient via phone or email at help@bmtinfonet.org
Cord Blood Registry
Contact: 888.CORD.BLOOD or 888.932.6568Population served: Patients, families, caregivers
Other language(s): Spanish and ChineseMission:
To advance the clinical application of newborn stem cells by partnering with leading research institutions to establish FDA-regulated clinical trials, exclusive to CBR families, for conditions that have no cure today.
- Newborn Possibilities Program® offers free cord blood and tissue processing and five years of storage to qualifying families in the U.S.
- Genetic counselors are available to discuss your family’s medical history and to answer questions about how newborn stem cells might be applicable to your family.
ExploreBMT
Contact: 888-999-6743Population served: Patients, families and caregivers impacted by a marrow or cord blood transplant
Other language(s): Other languages supported by translatorsMission:
To serve as a comprehensive, guided source for transplant-related resources from diagnosis to survivorship.
- Represents the combined effort of many reputable, patient-focused organizations to develop a one-stop online resource for anyone impacted by a marrow or cord blood transplant (often referred to as a BMT)
- Provides disease and treatment information, including marrow or cord blood transplants
National Cord Blood Program of the New York Blood Center
Contact: 718-752-4636Population served: Patients, caregivers, health professionals
Mission:
To investigate cord blood as a possible solution to a critical public health need: finding appropriate hematopoietic transplants for patients who have no matched bone marrow donors.
- Makes cord blood available under an Investigational New Drug (IND) exemption from the U.S. Food and Drug Administration (FDA) for children and adults who face a life-threatening illness and need "stem cell" transplants from unrelated donors
- Collects, processes, tests and stores cord blood that mothers donate for use by patients in need
- Website provides accurate and timely information about cord blood transplants.
National Marrow Donor Program and Be The Match (NMDP)
Contact: 888-999-6743; outside of the United States call 612-362-3410Population served: Patients in need of bone marrow and/or umbilical cord blood transplants, worldwide
Mission:
Provides assistance to people in need of a bone marrow/umbilical cord blood transplants; and is dedicated to creating an opportunity for all patients to receive a transplant when they need it. NMDP operates the Be The Match Registry®, the world’s largest listing of potential marrow donors and donated cord blood units.
- Be The Match Foundation Patient Assistance Program, for patients who pursue a transplant through Be The Match®, may be eligible for financial aid programs to help pay for the cost of a donor search and for some post-transplant expenses
- Provides an extensive collection of education materials, webcast presentations
- Be The Match Patient Services has a team dedicated to helping you learn about marrow and cord blood transplant as a treatment option, the overall transplant process, and what to expect after transplant
- Peer Connect Program puts a patient/caregiver in touch with one of NMDP’s trained volunteers — who are transplant recipients and caregivers — to answer questions and share their own transplant experiences.
- The Caregiver's Companion Program- combines a useful toolkit with the personalized, confidential support of a caregiver coach who understands transplant and the caregiver role.
- Receive a toolkit that includes the Caregiver’s Companion book with tips, ideas and stories from other caregivers
- Be paired with a trained Be The Match® coach who will work with your schedule to find a time that’s best for you to talk by telephone.
Sibling Donor Cord Blood Program
Contact: 866-668-4895Population served: Families throughout the U.S. who want to save umbilical cord blood for their children when there is a specific medical indication for banking
Mission:
Provides free cord blood banking for a full family member with a need for transplant.
- The Sibling Connection combines the Children's Hospital Oakland Research Institute (CHORI) and the national Sibling Donor Cord Blood Program with the high quality cord blood processing services conducted by ViaCord.
The Bone Marrow Foundation (BMF)
Contact: 212-838-3029 or 800-365-1336Population served: Transplant patients and families, caregivers, survivors
Mission:
To improve the quality of life for bone marrow, stem cell, and cord blood transplant patients and their families by providing vital financial assistance, emotional support, and comprehensive educational programs.
- Patient Aid Program may provide a small amount of funding to help patients with very limited incomes cover the costs of donor searches, compatibility testing, bone marrow harvesting, medications, home and child care services, medical equipment, transportation, cord blood banking, housing costs and other expenses associated with the transplant
- One-to-One Fund is a personal fund created for a specific patient. BMF administers and maintains the Fund, and can offer support with fundraising ideas
- Lifeline Project will post the patient’s photo and story on a webpage so people can donate money directly to the patient to help cover costs associated with the transplant
- Offers resource listings and list of transplant centers in the U.S.
- Provides SupportLine - a free service that connects patients and caregivers undergoing a transplant with patients and caregivers who are post-transplant
- Offers Ask the Expert - a question-and-answer service where patients can email questions to health professionals about bone marrow and stem cell transplantation
- Survivorship Program provides resources that can address the needs of all bone marrow, stem cell, and cord blood transplant survivors, their families, and caregivers. Includes online discussion forum and NYC-based in person support group
- Provides publications about transplantation and related topics.