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Transplantation: Blood and Marrow

Transplantation: Blood and Marrow

Be The Match

To create an opportunity for all patients to receive the blood, marrow, or umbilical cord blood transplant they need; to provide free support, information and transplant-related resources 

  • Be The Match, operated by the National Marrow Donor Program (NMDP), manages the largest and most diverse marrow registry in the world; conducts research to improve transplant outcomes; provides legislative advocacy to protect patient access to care; provides clinical education for healthcare professionals
  • Certified oncology patient navigators and licensed social workers provide confidential, one-on-one support and reliable, easy-to-understand information from diagnosis through recovery.  Emotional support is provided through counseling and support groups as well as through connections with others who’ve been through transplant
  • Helps to access financial grants and insurance resources, including Be The Match grants
  • Provides personalized support to search for and join clinical trials, including the Jason Carter Clinical Trials Program.  Visit www.jcctp.org or call 888-814-8610 for details.

Patients, caregivers and families before, during and after a blood or marrow transplant (BMT), healthcare professionals, researchers

888-999-6743 or patientinfo@nmdp.org https://bethematch.org/

Blood & Marrow Transplant Information Network (BMT InfoNet)

BMT InfoNet is dedicated to providing transplant patients, survivors and their loved ones with emotional support and high quality, easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants.

  • Offers easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants
  • Transplant Directory search tool
  • Educational webcasts
  • Caring Connections, a program that links people who are considering a transplant, or a family member, with others who have been through transplant and can offer support
  • Counseling services to help patients understand treatment options and potential healthcare providers
  • BMT InfoNet Drug Database is a guide that lists many of the drugs bone marrow, stem cell and cord blood transplants patients receive during treatment; it explains why they are used and some of the possible side effects.
  • Patient Assistance Fund offers a limited amount of financial assistance for gas, food, rent or other necessities. Social workers may apply on behalf of a patient via phone or email at help@bmtinfonet.org

Transplant patients, survivors and their caregivers in the U.S.

847-433-3313 or 888-597-7674 http://www.bmtinfonet.org/

BMTSupport.org

To motivate, empower and enlighten people with an interest in bone marrow transplantation through peer support, education and awareness of this difficult but potentially life-saving procedure.

  • Offers an online “Chat Room” three times weekly to share information and network with others.

People with an interest in bone marrow and stem cell transplantation, worldwide

Website only http://www.bmtsupport.org/

Cord Blood Registry

To advance the clinical application of newborn stem cells by partnering with leading research institutions to establish FDA-regulated clinical trials, exclusive to CBR families, for conditions that have no cure today.

  • Newborn Possibilities Program® offers free cord blood and tissue processing and five years of storage to qualifying families in the U.S.
  • Genetic counselors are available to discuss your family’s medical history and to answer questions about how newborn stem cells might be applicable to your family.

Patients, families, caregivers

888.CORD.BLOOD or 888.932.6568 http://www.cordblood.com/benefits-cord-blood/family-cord-bloods

DKMS

To fight against blood cancer and blood disorders by creating awareness, recruiting bone marrow donors, raising funds, improving therapies and supporting patients.

  • Formerly known as Delete Blood Cancer DKMS, this international nonprofit provides information about registering to be a donor, organizing donor drives, and the process of donating bone marrow.
  • DKMS is affiliated with the National Marrow Donor Program, so every person registered with DKMS is listed on the Be The Match Registry®.

Individuals willing to donate bone marrow or organize a donor drive

212-209-6700 https://www.dkms.org/en

Gift of Life Bone Marrow Foundation

To facilitate transplantation of volunteer unrelated donor stem cells as curative therapy for patients around the world of all socioeconomic backgrounds, suffering from leukemia and a wide-range of life-threatening diseases.

  • Provides information on becoming a stem cell donor
  • Provides information and resources about transplants
  • Provides search process and case management to assist health professionals find donor matches for patients.

Gift of Life is one of the nation’s public bone marrow registries helping children and adults find donors for bone marrow transplants.

800-962-7769 http://www.giftoflife.org

HelpHOPELive

To enable patients and families to use community-based fundraising to meet uncovered medical expenses related to transplantation or catastrophic injury

  • Will work to raise funds on behalf of a patient with blood cancer when there is a possibility for a marrow/stem cell transplant as treatment
  • Also provides direct financial assistance: incentive grants (to recognize fundraising progress); emergency grants (one-time assistance for eligible patients).

Patients in need of financial help for a stem cell transplant

800-642-8399 http://www.helphopelive.org/

Icla da Silva Foundation

To save lives by recruiting bone marrow donors and by providing support services to children and adults with leukemia and other diseases treatable by marrow transplants.

Those in need of a stem cell transplant or anyone looking to be a bone marrow donor

888-638-2870 http://www.icla.org

Myeloma Crowd

To empower patients each step of their disease journey – from diagnosis, through education, care and on to a cure.

  • Myeloma Crowd is a division of The CrowdCare Foundation, a patient-driven nonprofit organization.  It provides online disease, treatment, clinical trial and research information, telephone/web education, articles, e-newsletter, videos, monthly meet-ups, and Facebook groups.  The website lists financial resources and myeloma specialists.  It also offers HealthTree, a patient-powered software tool to manage disease-related information such as medical history, test results and more.

Patients with myeloma and caregivers

Website https://www.myelomacrowd.org/

National Bone Marrow Transplant Link (nbmtLINK)

To help patients, caregivers, and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship by providing vital information and personalized support services.

  • Offers educational publications, webcasts, online library
  • Provides an extensive volunteer peer support program
  • Offers Telephone Education and Support Group for Bone Marrow/Stem Cell Transplant Survivors: Coping with Chronic Graft versus Host Disease (4 week program).

Patients, caregivers who have had or will have a bone marrow/stem cell transplant in the U.S.

800-546-5268 or 248-358-1886 http://www.nbmtlink.org/

The Bone Marrow & Cancer Foundation

To improve the quality of life for cancer and transplant patients and their families by providing vital financial assistance, comprehensive resources, educational information, physician referrals, and emotional support programs.

  • Lifeline Fund provides financial support to help cover the costs of donor searches, medications, home and child care services, medical equipment, transportation, cord blood banking, housing costs and other expenses associated with transplant​
  • Carelines provides social media tools for crowdfunding, journaling and a volunteer task calendar for anyone with a cancer diagnosis or receiving a bone marrow, stem cell or cord blood transplant 
  • Airbnb Open Homes Medical Stays offers free temporary housing for cancer and transplant patients and their caregivers
  • One-to-One Fund enables patients to reach out to family, friends and social networks for financial support
  • Scholarship Grants help make educational aspirations a reality for bone marrow, stem cell or cord blood transplant survivors
  • Clinical Care Counseling provides confidential individual and family supportive counseling, financial guidance and resource referrals for cancer, transplant patients, and family members
  • Ask the Expert enables individuals to anonymously pose questions concerning transplantation and to have them answered by transplant specialists
  • SupportLine links transplant patients and their families with volunteers who have gone through the transplant experience
  • Support Groups provide patients, families and caregivers the opportunity to share experiences and draw support from one another
  • Medical and Educational Handbooks provide comprehensive transplant information and resources

Transplant patients and families, caregivers, survivors

212-838-3029 or 800-365-1336 http://bonemarrow.org/

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