Search Results
Mike
My personal story with blood cancer started in 2020 but nobody really knew how long it was brewing. A day came when back spasms started raging and my Primary Care Physician (PCP) sent me to physical therapy (PT). It didn’t take more than 1 visit to PT to know that was a bust and finally my PCP sent me to the Hematologist. This is where my blood cancer story becomes reality, in no more than 5 minutes, the Hematologist sent me directly to the Huntsman Cancer Institute.
Doug
I have always been a builder. Professionally, I am an architect. You could say that I’ve spent my life building spaces where people could grow. I never imagined, however, that I would someday have to rebuild my own. In February 2015, after experiencing months of excruciating and debilitating back pain that doctors mistakenly attributed to deteriorating lower lumbar discs, I had an MRI that revealed multiple vertebral compressed fractures.
Lab and Imaging Tests
Doctors use several different lab and imaging tests to help detect (diagnose) a blood cancer (leukemia, lymphoma, myeloma, myelodysplastic syndromes or myeloproliferative disease). You may need to undergo additional tests to confirm your diagnosis.
Once your diagnosis is confirmed, your doctor may need to test you for certain genetic, cellular or molecular characteristics that will help him or her treat your specific diagnosis.
Your doctor considers these test results along with information from your physical examination and detailed medical history to:
Cynthia
Cynthia was on a family vacation in 2015 when she began experiencing back pain so severe that she had to be in a wheelchair for the rest of the trip. When she returned home, Cynthia went to see her doctor who referred her to an oncologist. After several tests, Cynthia was diagnosed with multiple myeloma. She was devastated. Chemotherapy and radiation soon followed, along with horrible side effects, sleepless nights and countless blood transfusions. But Cynthia was not going to let cancer defeat her.
Roy
Roy was diagnosed with multiple myeloma (MM) in February 2006. Throughout his treatment at Cedars Sinai, by Dr. Robert Vescio, he has conquered two relapses and is currently in partial remission. Upon his first diagnosis, Roy and his family found out that he had a lesion one inch away from his spine. The tumor was removed, broken ribs repaired, and only the 6 metal screws in his back remain of his first surgery.
Damion
In 2020, at the age of 36, I was diagnosed with multiple myeloma (MM). To say this was out of left field would be an understatement. Historically, MM has been recognized as a blood cancer that impacts older patients. That research may be changing. Also, MM disproportionally affects African Americans. At the time of my diagnosis, I was a pretty healthy guy. I tried to eat right and even played in two basketball leagues each week. When I went to the doctor with stomach issues, I wasn't expecting to leave with a cancer diagnosis.
Tony
I was diagnosed in 2016 with multiple myeloma (MM) and was able to get a bone marrow transplant in 2017. After I recovered, I was cancer-free for five years. Then two years ago, my cancer came back, and I am now going through with two types of therapies to keep things at bay and doing well. Besides the ups and downs of working full-time and cancer coming back, my oncologist who saw me through retired last December, and I got a new one. However I was not happy and started seeing one of his associates and really liked her, but she is now leaving the practice in two weeks.
Ilse
Thirty years ago I was told I needed additional blood tests after a routine check-up. I was too busy to follow those instructions. Looking back, it probably was an excuse not to have to face the truth. My fatigue and many infections I had attributed to stress in my personal life. I convinced myself there was nothing to worry about.
All-in-one for myeloma: a single therapy to combine CAR T cells and bispecific antibodies to engage both innate and adaptive immune responses
This project is designed to develop a novel cell therapy to treat relapse/refractory multiple myeloma (MM), an incurable cancer. We target BCMA, a protein highly expressed on MM compared to normal cells, with CAR T cells that also secrete a bispecific antibody that can engage all cytolytic cells, including various endogenous T cells, natural killer (NK) cells, and NKT cells to kill MM cells. We aim to complete all preclinical studies so that the therapy is ready for future clinical studies.
Yolanda
A general doctor’s appointment that included standard bloodwork changed my life in my thirties. I was planning a trip when my doctor came back with news of high protein levels and told me I should find a hematologist. It was when he contacted me twice to see if I found one that brought seriousness to the conversation. I chose a random doctor who told me I had multiple myeloma (MM), gave me a list of the dos and don’ts, and the drug I needed to be placed on.
4 Perspectives on How Nonprofits Help
If you want to change the world, there’s more than one way to do it. You could start in your community, helping friends and neighbors. You could also turn to a nonprofit organization—as a volunteer, donor, advocate, or even by joining the staff—to widen your impact.
We know a lot of changemakers at The Leukemia & Lymphoma Society (LLS). Passionate, amazing people who work hard to help us make life better for blood cancer patients, survivors, and their families. They know that we can make the most progress toward a world without blood cancer together.
Tamila
I’m a mother of two diagnosed with multiple myeloma (MM) in May 2022. I'm still terrified and haven't come to an understanding of how I got this type of cancer. My grandmother and aunt passed away from colon and bladder cancer years ago. I don't have support from my family, which has been very difficult for me. I worry about my boys a lot, who are 17 and 15. I'm burned out all the time mentally, emotionally, and physically. How does one find the strength to go on? My faith in God tells me every day not to give up, yet, I've been through so much already before my cancer.
Dugie
I was diagnosed with multiple myeloma (MM) five months after the death of our oldest son. A very odd pelvic pain sent me to a clinic where bloodwork and a CAT scan were performed. The CAT scan exposed a lesion on my rib. I made an appointment right away with an oncologist. He suspected MM but ran all the appropriate tests to confirm and stage my myeloma. At that time, my kappa light chains were around 1,800. I qualified for the VRD treatment regimen followed by an autologous stem cell transplant. My transplant was on August 17, 2019.
Tina
In 2013 I was diagnosed with multiple myeloma and cardiac amyloidosis and that is when my journey began. I fought them two with chemotherapy which put it in remission, and as of today I am still in remission thank god.
Ed
Like many who get diagnosed with multiple myeloma (MM), it comes out of nowhere. For me, it was mysterious aches and pains that crept up quickly. An alert doctor ordered tests, and eventually, MGUS, the precursor of MM, was first diagnosed. Within a month, MM was confirmed. MM is a blood/bone cancer that can affect the entire body.
For the next six months, I was involved in many tests, along with drug treatments including chemo. I had a stem cell transplant and have generally had a complete response.
Lynn
I was diagnosed on Halloween 2008 with smoldering multiple myeloma (SMM). By 2011, I needed a stem cell transplant. After about a year and a half, I started on maintenance drugs. I started out with Velcade and progressed over the years to immunotherapy drugs.
I had very few side effects from these drugs and had remained strong and active, but everything started to catch up with me in 2021. I was deemed to be a good candidate for CAR-T-cell therapy, and in February of 2022, I was admitted for treatment.
Dan
My name is Dan. I was first diagnosed with multiple myeloma (MM). After a battery of excruciating, painful biopsies and bloodwork, my doctors prescribed chemotherapy and Velcade once a week, then twice a month. My myeloma numbers were going way down, and my platelet count was diving straight to the bottom, single digits. My routine appointments with my doctor not in my city were going south. The doctor told me to stop taking all my cancer medications. What was happening to me was my MM was completely going into leukemia, a disease called myelodysplastic syndrome (MDS).
Jamie
After he was diagnosed with blood cancer in 2013, Jamie was told by doctors that he’d never walk again, let alone ride a bike. Despite those predictions, he finished a 540-mile ride in June 2019 to raise money for The Leukemia & Lymphoma Society (LLS).
Nichelle
My story starts on December 1st, 2016. I had just buried my baby brother 2 weeks before. Now I’m sitting in my oncologist's office with my mom. When the doctor said I had cancer and it’s called multiple myeloma (MM), I was completely stunned. I never heard of multiple myeloma. And of course, I get cancer that there’s no cure. The doctor continued to talk, probably for about 30 or 40 minutes or maybe just 10 minutes. I couldn’t hear anything. I was just thinking cancer=death. My ears did perk up when the doctor asked if I wanted to be in a clinical trial. I immediately said yes.
Lynn
My wife, Lynn Lancour, spent endless time and resources organizing a bicycle trip from San Diego to St. Augustine, approximately 3,000 miles, to raise funds and awareness for The Leukemia & Lymphoma Society (LLS).
Elizabeth
I was diagnosed with multiple myeloma (MM) in 2016. I had a hip replacement, and a mass was found on my hip, so I was referred to a cancer doctor. But the strangest thing was, I had no symptoms, so I went to the doctor, and I went through all kinds of tests. The doctor told me, “You have MM,” and I am like what's that? She said it was a blood cancer. I asked what do I need to do about it, and she told me I needed a stem cell transplant. But that was after so many doctor visits and labs, at one point she would tell me I had it and the next visit that I didn't.
Eliehue
One morning in June 2012, I woke up at at 3 a.m. with severe back pain and went straight to the emergency room. I was diagnosed with kidney stones, but as I read the scan report I noticed it had a footnote which said “bone lesions”. I showed this to my primary care doctor who then ordered blood work and referred me to an oncologist. Three weeks later, I was diagnosed with multiple myeloma.
Carol
I have been told that my story is rare, so I would like to see if there is anyone who has had the same experience. I was diagnosed with multiple myeloma (MM) in February 2023. I started chemo treatment in March 2023 and continued through May 2024. In February 2024, I noticed some changes happening to my body. I was losing weight, losing hair, had extremely dry skin, and had less and less energy. When I went for my PET scan in May 2024 to see if I had lesions in my spine from the MM, I was told they were completely gone, and I was most likely in remission.