Search Results
Andrew
My son, Andrew, was diagnosed with Hodgkin lymphoma (HL) in January 2022. He had been very tired for months, and we had a frustrating few months while our primary care physician (PCP) missed his diagnosis and chalked it up to being a busy teen and perhaps needing a sleep study. When he was finally diagnosed, he was stage 4. He underwent six months of intense chemotherapy. Mid-treatment scans showed a complete response, and we were excited and relieved. His post-treatment PET scan, however, showed recurrence.
Kate
In April 2023, I went to the doctor for an MRI for what I thought was a torn meniscus in my left knee. Unfortunately, that MRI showed that there was a growth on my left femur. After two full months of testing, surgery, and some more testing, I was officially diagnosed with primary lymphoma of the bone (PLB). This type of lymphoma is pretty rare, so I immediately turned to The Leukemia & Lymphoma Society (LLS) for resources and guidance on how to navigate the scariest time of my life. The next month of my life was a whirlwind.
Maddox
Maddox's journey began in October 2015 when he first started showing signs of being sick at just three years old. He had a tummy ache one day and a few bruises on his arms and legs, both of which we thought we had explanations for. It wasn't until he experienced a nose bleed at daycare and had an extraordinarily whiny day on a field trip, that I started to wonder if something else was going on.
Valerie
I was a nurse prior to getting diagnosed with cancer. When I was working I wondered to myself, how are my patients so strong laying in that hospital bed? Little did I know I was going to be one. At age 24, back in 2013, I was diagnosed with acute lymphoblastic leukemia (ALL). Months before I just had a small lump on my neck and thought it would go away, but I decided to check out what was going on.
Jason T.
My name is Jason T. Quimby and I am the proud past caregiver of my wife and ALL survivor Susana Moro. In November 2016, my wife, was diagnosed ALL leukemia ph+ and admitted to the Miami Cancer Institute South Miami Campus to start her pediatric chemo protocol. Needless to say that for a forty-something mother of three teenage girls this was a huge personal and family challenge to overcome.
Eileen
To say that I have always been daddy's little girl would be the biggest understatement. Everything from school dances to projects in the garage, I could always be found by my dad's side. In 2009, my dad was diagnosed with acute myeloid leukemia (AML).
Jim & Leslie
Jim and Leslie Donigan have been married for almost 50 years. Currently retired with three adult children, they have both faced a cancer diagnosis, but are in remission today.
In October of 2003, Leslie was diagnosed with a stomach cancer called GIST (Gastrointestinal Stromal Tumors) and was told it was terminal. But then her doctor tried a medication intended for blood cancer—and it worked.
Barrie
My story start’s the week after Christmas, I went to my family physician for my yearly physical and blood work. All came back good. I also schedule my first colonoscopy. All was good again except I been getting out of breath doing minor activities and short walks. My family physician suggested that maybe I try more exercise and walking during my breaks.
Elyssa
My daughter, Elyssa donated her hair for children with cancer only months before she herself was diagnosed with Hodgkins lymphoma. Upon her diagnosis, she had the rest of her hair put in ponytails and had it cut to her scalp so the rest could be donated.
Being diagnosed in her first year of college at University of Connecticut, she immediately went to the disabilities office and applied so she could continue with the semester.
Heather
Heather Banks draws her inspiration from her good friend, who has been fighting non-Hodgkin's Lymphoma for the past 10 years and her college best friend who is a survivor. She is motivated by her friends’ strength, determination, and positivity. In times of feeling helpless, she channels that energy and puts it into her sewing machine.
Gena
I am 28 years old and a two-time cancer survivor. My life has come full circle many times, and I am here to share my story to inspire and help others to heal themselves.
My story begins when I was 3½ years old. I was diagnosed with acute lymphoblastic leukemia (ALL). At the time, I was treated at Schneider's Children's Hospital, now Cohen's Children's Medical Center. This was a long and tough battle with rounds of chemotherapy. I almost did not make it. Thank God I had the most loving support system which helped me get through the battle.
Israel
I am 39 years old, a father of two boys and one girl ― Abdias, 12 years old; Ester, 10 years old; and Ben, 9 years old ― and a husband to my wife Erin for almost 14 years.
On August 14, 2021, I suffered a serious knee injury playing basketball which inadvertently led to revealing I had a blood cancer called chronic myeloid leukemia (CML). Suddenly, instead of prepping for knee surgery, I was sent to the hospital and received an official diagnosis on September 9 after a bone marrow biopsy and what felt like a million tests.
How to Enforce Your Legal Rights
If you suspect that you are being treated differently at work because of your cancer history, consider an informal solution before leaping into a lawsuit. You want to stand up for your legal rights without casting yourself as a troublemaker.
If you face discrimination, consider the following suggestions:
Side Effects
Both cancer therapy and acute myeloid leukemia (AML) can sometimes produce side effects. For most patients, side effects are temporary and subside once the body adjusts to therapy or when therapy is completed. For other patients, side effects can be more severe, sometimes requiring hospitalization. The side effects of chemotherapy may vary, depending on the drugs used and the overall health of the patient.
Talk with your child’s doctor about potential side effects. Medications and other therapies can prevent or manage many side effects.
Diagnosis
While certain signs and symptoms may indicate that a person has ET, a series of tests are needed to confirm the diagnosis. It is important to have an accurate diagnosis, as it helps the doctor to:
- Estimate how the disease will progress
- Determine the appropriate treatment
Some of these tests may be repeated both during and after treatment to evaluate its effectiveness.
Kari
I am writing this in 2022, but I never would have believed when acute lymphoblastic leukemia (ALL) struck my daughter in 2013, that it would feel like we were back at step 1.
Steven
My name is Steve. My purpose is to give others hope and the possibility of tomorrows. I am a leukemia survivor, specifically myelodysplastic syndrome (MDS). Today, one year after my bone marrow transplant, I am 100% cancer-free!
Krisha
I started noticing some things were "off" with my body. In early August 2022, my daughters noticed several large, unexplained bruises on my legs. I just brushed them off as being clumsy or running into something. Then, while lying in bed reading to one of my daughters, my lower jaw and lip went numb, like when you have Novocaine. I got up and moved around, and it got better. This started to be a daily occurrence, and about a week or so later, I woke up and could not open my mouth. I thought I had TMJ, so I called my dentist. He had me come in and looked at my mouth/jaw.
Peter
My story starts a year and a half before diagnosis when a serious body surfing accident led to blood tests showing significantly low red and platelet counts. My primary care physician (PCP) retested several times in a short period, and when the counts came back closer to normal, she chose to stop her inquiry without scheduling further tests or redoing the same test, say, six months later to see if the lower values were actually correct. There was no discussion of what it would have meant if the lower counts were, in fact, an accurate representation of my blood health.
Follow-Up Care
Those who have been treated for MDS are encouraged to:
Resources for Survivors
Survivorship WorkbookUse this Survivorship Workbook to collect all the important information you need throughout diagnosis, treatment, follow-up care and long-term management of a blood cancer.
Aaron
Aaron was taken to urgent care after he developed a rash that didn't seem right. The next day, he was admitted into The Children's Hospital, and 36 hours later he was diagnosed with acute lymphoblastic leukemia (ALL).
Jane
In 2008, I retired from teaching art, mostly because I was feeling tired all the time and didn’t want the program I was running to suffer because I couldn’t keep up. I figured it was old age. I was enjoying my first full year of retirement when I woke up with a backache. After two months of tests, in July 2010, I was diagnosed with multiple myeloma, a treatable but not yet curable blood cancer in the plasma cells of the bone marrow.
Micah
My wife was diagnosed with Pre-B-cell acute lymphoblastic leukemia (ALL) in June of 2018. For nine months I watched her battle her cancer and her treatments. I learned so much about what families with a cancer patient go through ― the uncertainty, the anxiety, and many protocols and precautions to keep your loved one safe. It was a very scary time for us, full of unknowns. But we lived each day at a time. The uncertainty brought us closer together and allowed us to live every moment with gratitude. My wife was in full remission before the end of the year, and we had so much to celebrate!