Use this Survivorship Workbook to collect all the important information you need throughout diagnosis, treatment, follow-up care and long-term management of a blood cancer.
Resources for Survivors
- The Leukemia & Lymphoma Society's (LLS's)
- Information Specialists, who are highly trained oncology social workers, nurses and health educators. Speak one-on-one with an Information Specialist, Monday through Friday, from 9 a.m to 9 p.m. ET.
- Financial support
- Nutrition consultations with a registered dietitian
- Free information booklets and other materials
- Telephone/Web education programs
- Educational videos
- Online chats
- LLS Community, an online patient community
- Resources in your community
- Federal and state laws. Laws such as the Americans with Disabilities Act (ADA) protect qualified cancer survivors from job or insurance discrimination. For more information, visit the ADA website and the Cancer Legal Resource Center website.
- Vocational rehabilitation. Many states offer vocational rehabilitation services to qualified individuals. Eligibility and services vary by state. You can find a list of state offices at the Office of Special Education and Rehabilitative Services website.
- National advocacy organizations. Click here to read about LLS Advocacy.
Advocacy organizations offer support, information and advice for cancer survivors. Other groups include:
- The Children's Oncology Group. The group has established Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent and Young Adult Cancers. Although designed for children, many recommendations can be adapted as a starting point for adults.
- The National Comprehensive Cancer Network (NCCN). NCCN produces Clinical Practice Guidelines in Oncology for most cancers, which many doctors follow. Their guidelines are among the most comprehensive and most frequently updated clinical practice guidelines available in any area of medicine.
See Other Helpful Organizations for more resources.