Search Results
Rob
My blood cancer story started in 1987 when I was diagnosed and treated for testicular cancer with surgery and chemotherapy. As I progressed to the end of the chemo regimen, my blood counts would not return to normal. A bone marrow biopsy showed that I had developed treatment-related acute myeloid leukemia (AML) as a result of the chemotherapy for the testicular cancer.
Art
I was living in San Jose and had gone walking with a friend in a local park that followed the stream. It was December 15, 2006. Tom noticed that I had difficulty climbing up the five-foot stream embankment that the path went through. I myself didn’t recall this. Ten days later while visiting my wife’s children in Fairfax, the children and I went on a trail as we always did on Christmas morning. I found myself badly winded and returned to their home while they continued the hike. Then I noticed that I was not attracted to the Christmas feast.
Haley
On September 13, 2023, I found out I was four weeks pregnant with our second child. On October 24, I found out it was a girl; Nellie would be her name. November came, and my symptoms started with what was discomfort/pain in my right arm, neck, and shoulder. Initially, I thought I slept wrong, and also pregnancy does weird things to the body. Then my arm became very swollen and completely discolored, dark red to purple and even blue. Being a pediatric nurse practitioner, I did some research and came across Thoracic Outlet Syndrome. I messaged my OB who agreed that it might be just that.
Hailey
My mother and I being diagnosed with stage II Hodgkin lymphoma (HL) only six weeks apart from each other was not what I anticipated receiving for my 16th birthday. Braces, being my homeroom representative, volleyball tryouts, and getting my driver's license are the things I thought I would be navigating at this time. Instead, I spent my 16th year in pediatric oncology, receiving treatment at the same time my mom was receiving care in adult oncology.
Kerry
I’m a 26-year-old woman who never expected my life to change so dramatically. I was living what felt like an ordinary life — working at a school, spending time with friends, and keeping up with my daily routines. But things took an unexpected turn when I started experiencing night sweats. At first, I dismissed it as a cold or something minor, especially since I worked around kids who were always bringing home new germs. However, when the night sweats continued, I became frustrated. I began researching the cause and read that swollen lymph nodes could be a sign of something serious.
Lisa
It was 2009. Obama had just been sworn in as president, captain Sully successfully landed United Airlines flight 1549 on the Hudson River during an aircraft malfunction, and all souls on board survived.
Lynn
My wife, Lynn Lancour, spent endless time and resources organizing a bicycle trip from San Diego to St. Augustine, approximately 3,000 miles, to raise funds and awareness for The Leukemia & Lymphoma Society (LLS).
Robert
I was diagnosed with stage 4 T-cell non-Hodgkin lymphoma (T-NHL) nearly 20 years ago in March of 2002. By the grace and power of God and modern medicine, I have been cancer-free for the last 20 years!
Aryanna
My daughter Aryanna was diagnosed with stage 2 non-Hodgkin lymphoma (NHL) when she was two years old. Her treatment lasted three months, and she is a survivor of five years. As a young mom, I had no idea that this could happen to us. It all started with random nights of vomiting and fever. There were quite a few series of events that led up to her diagnosis. As a two-year-old, you think she’s just sick because she’s in daycare. She would get random fevers at night and would vomit, but it wouldn’t last.
Ashton
Finding out Ashton was sick started as a bunch of nothing ― small headaches, fevers, dizzy spells ― but you would never know she was not well. She was working, going to school, and caring for her son. Then the lumps came. They first started in her neck and abdomen. She refused to slow down for care due to trying to be a super mom, but one day the pain in her neck was so severe she finally went to the hospital. We then learned she had non-Hodgkin lymphoma (NHL). Soon after, she had multiple surgeries and started her battle off fighting strong with chemo, but it didn’t slow down her spirit.
Anna
In 2016 I received one of the scariest calls. My 9-year-old niece had just been diagnosed with leukemia. I live on the opposite side of the country. I was by her side in under 12 hours where I spent the next month trading shifts with her mom as we watched her struggle through treatment. During her hospital stay, we learned of several children from our small community battling the same cancer. I began advocating for these kids and the situation grew bigger than we could have ever could have imagined. That story is for another time. I eventually had to come back home to Seattle.
Keaton
I was diagnosed with Hodgkin lymphoma (HL) in May of 2019. I first noticed something was wrong in January of that year when I noticed lumps in my neck. I shrugged it off, being in college at that time. I progressively got worse, getting sick nearly every day, sweating profusely at night, and losing weight quickly. The tipping point was when I got home from college after the spring semester. I had lost 50 pounds at that point, and my parents quickly took notice and forced me to go to the doctor.
Adriane
A day before my 29th birthday, I was diagnosed with Hodgkin’s lymphoma stage IV. No one expects a cancer diagnosis, especially when you’re young. It was a game changer for the rest of my life.
Mendya
First, I must express appreciation to The Leukemia & Lymphoma Society (LLS) for providing educational resources, knowledge, and financial assistance to those of us affected by blood cancer. LLS spotlights blood cancer and gives a voice to so many like myself. Thank you. As a way to show my support to LLS and to raise awareness, I have raised $210 in September 2023, Blood Cancer Awareness Month (BCAM), via Facebook. This is just the beginning of my advocacy.
Liv
When I was 25 years old, I started my new, dream job as a health and physical education teacher. Six days into the school year, I went for a CT scan after months of complications with my breathing. I got the results later that day while I was on my lunch break.
The doctors had found a 10.5 cm tumor sitting in my chest and just millimeters away from cutting off blood circulation to my brain. I was told to rush to the ER but not to panic. Well of course I panicked, and left work in shock. I went to Rhode Island Hospital and was immediately admitted.
Stephanie
I am 39 years old. At the age of 34 after having been very sick and misdiagnosed for over a year I was diagnosed at the Cleveland Clinic in May 2016 with Hodgkin's lymphoma.
At the point that I was diagnosed, it had advanced to stage 4B, which is the last stage of the disease. I have always had faith and relied on god but I can tell you I drew closer to him and relied on him in way I never had before when these disease came about.
Kimberly
When my husband, NFL linebacker Elijah, was diagnosed with multiple myeloma in 2005, shortly after retiring from the Oakland Raiders, we were stunned. Neither of us had ever heard of it.
Life with multiple myeloma became an instant roller coaster. As his caregiver I knew it was my job to learn as much as possible about what we were facing, while trying to keep things normal for our two young sons.
Michele
Michele decided she wanted to volunteer with The Leukemia and Lymphoma Society (LLS) because she herself and millions of others have been impacted by cancer. Both of Michele’s parents passed away from cancer and during that time, a lot of people were there for them. She knows how important that was for her and her family.
Pam
I was diagnosed with myelodysplastic syndrome (MDS) in December of 2020. I went through six treatments from January 2021 to June 2021. The treatments were a series of shots for seven days at the beginning of the month. In July 2021, I was approved for my stem cell transplant at The James Cancer Center, The Ohio State University in Columbus, Ohio. I had my stem cell transplant on July 29. I handled the stem cell transplant very well and was declared in complete remission from the months of September to November 2021.
Yvonne
I am 56 years old and a proud 16-year survivor of chronic myeloid leukemia (CML). The journey has been filled with struggles, instability, emotional ups and downs, coupled with chronic pain throughout the day and into the night. The things that have strengthened me the most are my faith in God, my family, dear friends, my church, and other survivors who gave me hope and extended themselves to me as advisers, also, prayer partners and sounding boards during moments of sheer frustration. I met the love of my life during my second year of chemo, something I thought could never happen!
Blood Cancer and Treatment Options
Treatment OptionsAfter your child is diagnosed with a blood cancer, you will work with members of the healthcare team to determine the best treatment plan. Treatment options vary depending on the patient's diagnosis, age, overall health, and other factors. Your child’s treatment plan might include
Follow-Up Care
Click here for information about follow-up care, including what to expect, long-term and late effects of treatment, survivorship clinics, and other resources such as The National Comprehensive Cancer Network (NCCN) treatment guidelines.
Parents of JMML patients are advised to discuss survival information with their child's doctor. The treatment of JMML patients hasn't led to long-lasting remissions in most cases. However, individual factors influence patient outcomes. See Treatment Outcomes.
Watch and Wait
A small percentage of people can manage their hairy cell leukemia with their doctors using a watch-and-wait approach. By using the watch-and-wait method, your doctor can monitor your condition with regular physical exams and lab tests. You won't take any drugs or undergo any treatment during this period.
You may feel uncomfortable because you know that you have cancer, yet you're not being treated right away. Rest assured that the watch-and-wait approach lets you avoid therapy's side effects until you need treatment.
Side Effects
Before undergoing treatment, patients should talk with their doctor about potential side effects. Drugs and other therapies can prevent or manage many side effects.
The side effects of treatment for myelofibrosis (MF) will depend on many factors, including the type of treatment and dosage, the age of the patient and coexisting medical conditions. Therapy may induce