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Childhood and Young Adult Resources
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Resources for Children, Young Adults and ParentsOne-on-One Support
Long-Term and Late Effects of Treatment
Some side effects of cancer treatment, such as fatigue, can linger for months or years after therapy. Some medical conditions like heart disease and other cancers may not appear until years after treatment ends.
Lowering High White Blood Cell Counts
Some patients may have very high white blood cell (WBC) counts at the time of diagnosis. These elevated WBC counts can sometimes impair blood flow to the brain, lungs, eyes and other sites, and also cause damage in small blood vessels.
Sandra
I'm a survivor of multiple myeloma and MDS. Now I just want to raise awareness for the cause its seriousness.
Having both these diseases is tough, but I'm trying to take it all in and The Leukemia & Lymphoma Society offers wonderful support.
Bishoy
Born in Egypt, at the age of three, me and my family immigrated to the U.S. when I was diagnosed with acute lymphoblastic leukemia (ALL). I grew up in Long Island, New York, where I received treatment for 10 years. On my 13th birthday, I underwent brain surgery and remains cancer-free.
Alice
I was diagnosed with chronic lymphocytic leukemia (CLL). As soon as you learn that you have a form of cancer in your body, read a lot about it. Learn as much as you can about your cancer and how to talk to your doctor. It's up to you; it’s a mind situation. Don’t say, “Woe is me.” Say, “What should I do to take care of myself and enjoy life?” You are in charge, no one else can do it for you.
Jim
My brother Jim was an amazing man. He was a person for whom family was everything. He ran a plumbing business with his brothers and took pride in its success, but he was so much more than his work. We called him “The Renaissance Plumber” because he was so knowledgeable on so many topics ― history, literature, music, politics, sports. He was also a wonderful cook and a genial host. He lived life to the fullest. His leukemia diagnosis was a terrible blow, coming within months of the tragic death of our younger brother.
Joe
After being diagnosed with acute lymphoblastic leukemia (ALL) in March of 2011 when I was only 10 years old, my entire life changed and was put on hold. I went through months of treatments to slow down the cancer, looked for the best possible hospitals in my area, and was able to get a bone marrow transplant in August 2011 from my brother who was a matched donor. I wasn't even close to stopping there. Once I was feeling better, I could do home instruction school from my house so I wouldn't fall behind, and some of my friends were allowed to visit me at home.
John
I first got involved with The Leukemia & Lymphoma Society (LLS) shortly after the passing of my boyfriend, John, in 2020. John "Poochy" fought a very long and hard battle against leukemia that came to an end in August 2020. I was absolutely devastated and lost in a world without my love.
About two weeks later, a friend posted something about an event called Light The Night (LTN) for LLS, so I checked it out and immediately signed up a team of John and my friends for my local LTN event. We raised over $1,000 in less than 24 hours!
Jonathan
Jon was diagnosed with acute myeloid leukemia (AML) unexpectedly on November 4, 2023, and has been receiving inpatient treatment at Sharp Memorial Hospital in his new hometown of San Diego ever since. The care is excellent but extremely expensive.
Connor
In 2020, I was asked to join The Leukemia & Lymphoma Society’s (LLS) Student Visionaries of the Year (SVOY) by my friend, Camryn, who is now leukemia-free. Unsure of what LLS was or what I was getting myself into, I hesitated but agreed. Two years later, after my second grand finale event for SVOY Toledo, I was in love. I enjoyed the creativity of coming up with events, I loved the competition, and I loved the people and stories I heard along the way. After graduating high school, I knew that I couldn't stop.
Ashley
I grew up hearing stories about when my uncle Mark was diagnosed with leukemia. The heartache, the stress on the family, the fear and luckily for all of us – his remission. His CURE.
Dean
I was losing the battle with chronic lymphocytic leukemia (CLL) and lymphoma in August of 2013 when I ran across this quote from Albert Einstein, "There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle." I decided to adopt this as my standard to live by. It gave me new insight and a passion for living that fueled my will to live.
Robyn
In October 2017, my wife Robyn Oshita passed away after a valiant two-and-a-half month battle against acute myeloid leukemia (AML). She was a loving wife, mother, and friend to everyone she met.
Alexis
CANCER, that one word that sits like a lump in the back of your throat making you unable to swallow...
I was in sixth grade when my hero, my dad, was diagnosed with hairy cell leukemia.
Over the years, my dad has gone through his fair share of chemotherapy. Usually after treatment, his cancer became dormant, and then resurfaced a few years later. The dreadful "process" would repeat itself, getting a little harder each time as his body became resistant to the therapy.
Robert
In 1990, I was diagnosed with M3 acute myeloid leukemia (AML) - now known as acute promyelocytic cancer (APL) - when I was a twenty-year-old college student studying abroad in Northern England.
I had ignored obvious symptoms for about a week leading up to my diagnosis, and it took another full week just to coordinate my departure from the UK to the University of Washington Medical Center in Seattle, not far from where I grew up. A host of complications followed during my first round of induction chemotherapy including massive amounts of internal bleeding.
Latasha
After a family vacation with her four kids and husband of 20 years, Latasha couldn't eat or hold her head up. After being in bed for almost a month, she thought she had the flu when her doctor broke the news that she had been diagnosed with acute myeloid leukemia (AML) and anemia.
Justin
My husband, Justin, was diagnosed with T-cell acute lymphoblastic leukemia (ALL) in June 2021. At the time, he was a healthy, energetic, 33-year-old dad of three. He just completed all treatment in January 2024. We received some funds from The Leukemia & Lymphoma Society (LLS) as well as information and inspiration. Throughout treatment, my husband fought so hard and had very difficult moments. He went into septic shock from a blood infection, had an ICU stay, and had to get both his hips replaced because of an infection that led to bone on bone. He couldn’t walk for months.
Kate
When I went for my annual physical in 2013, my doctor called me to tell me that my bloodwork looked strange. He asked me to get it tested again to be sure of the result. I did not have any symptoms at all. Within a week, I was diagnosed with chronic myeloid leukemia (CML), something I'd never heard of. I had no idea what this would mean. It took me a while to find the right oncology team, but once I did, they were amazing. After lots of tests (including a bone marrow biopsy), I was started on medication, at a low dose, because I'm a pretty small person.
Janet
I was diagnosed with acute myeloid leukemia (AML) at the age of 28, and our firstborn son was four months old. I am currently a 36-year survivor, married 41 years with four sons, four daughters-in-law, and eight grandchildren.
Gary
In 1999 I had a lump on my neck, and after strong urging from my wife and my mother, I finally went to my family doctor. My white blood cell counts were really high, and antibiotics didn't help. Eventually, a biopsy indicated chronic lymphocytic leukemia (CLL).
Babara
On October 3, 2019, I was diagnosed with chronic myeloid leukemia (CML) at the age of 58. I was asymptomatic, so I was in total denial that I had leukemia. I had just attended my 40th high school reunion, and I thought my health was great. After leaving the oncologist's office that day, I went home and discovered that I had blood in my urine, or was it post-menopausal bleeding? I was so confused and frustrated. I immediately made an appointment with my primary care physician to get a referral because I wasn't sure what kind of doctor I needed to see. Turns out, I also had cervical cancer.
Immunotherapy
Immunotherapy is a drug therapy that stimulates the immune system. Interferon, a type of immunotherapy, is a substance made naturally by the immune system, but it can also be made in the laboratory. Interferon reduces the growth and division of cancer cells.
Allyson
In November 2016 I was tired. TIRED. I had a 20-month-old and a 4-year-old, had just come off the busiest month of the year for work, and I figured I was tired for no other reason. But then tired became not having the energy to take care of my 20-month-old. Tired became going to be my best friend's wedding and needing to lay down in between steps. Shower, lay down. Makeup, lay down. Hair, lay down. Get dressed, sit for a minute. Walking a long hallway seemed daunting. And then carrying my son from my car at a gas station to the restroom inside on a road trip was too much.