Search Results
Chelsea
Initially, I joked with my boss at work about the lymph node swelling in my neck and about taking another sick day off. I finally decided to see my primary care physician about it, who is typically very jovial. That day he wasn't joking much and referred me to a local ENT. Every test and scan from that first opinion pointed to a malignancy. I was in deep denial about being diagnosed with cancer, even after my second opinion at Dana Farber Cancer Institute in Boston when the nurse asked if I wanted a snack.
Brian
Our family has once again joined the fight to beat leukemia and lymphoma together with the support of The Leukemia & Lymphoma Society (LLS). I am a cancer survivor who comes from a family that, for three generations, has had eight family members with solid tumors or blood cancers. We understand cancer; we will never give up the fight.
Rino
This is the story of Rino La Paglia, a son, brother, boyfriend, uncle, cousin and friend to many who knew him.
Rino was first diagnosed with T-cell lymphoblastic lymphoma in February 2008. He was 33 years old at the time, and was in remission by 2010. Everything was great, Rino went back to being a electrician, softball player and living life to his fullest. Then, in October 2015 Rino found out, his cancer came back, he was diagnosed with acute lymphoblastic lymphoma (ALL).
Storm
When ten-year-old, Storm Owens was diagnosed with Hodgkin’s lymphoma, he was just finishing his spring season with his hockey team. Despite the effects of chemotherapy, he continued on-ice training with his coach and remained confident that he would beat this. He was determined to get back in the net by the fall season.
In early October, Storm's scan results were negative and his port was removed. On October 18, 2016, he was cleared to return to the ice and had just two practices before his first game on October 22, 2016.
Dean
I was losing the battle with chronic lymphocytic leukemia (CLL) and lymphoma in August of 2013 when I ran across this quote from Albert Einstein, "There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle." I decided to adopt this as my standard to live by. It gave me new insight and a passion for living that fueled my will to live.
Sophia
My wife and I would have never heard of The Leukemia and Lymphoma Society (LLS) if it were not for losing our 12-year-old daughter on March 12, 2013 to undiagnosed leukemia. If you've heard me speak of my daughter Sophia, you've heard this word: perfect. Her laugh, her eyes, her beautiful smile were all perfect. Sophia was a loving, kind and compassionate child. She loved her friends, her dogs (Katie & Daisy), and her family. Perfect. Sophia's story is very different from others.
Cynthia
In June 2014, I dislocated my knee. I saw the doctor and after an MRI and an X-ray was told I needed physical therapy and rest. I did both and my knee saw a slight improvement but on New Year's Day 2015, while playing with my children, I dislocated my knee again.
Michelle
In 2011, I had started graduate school, had a two-year-old son, and ran a small business with my then husband. I was very fatigued and having night sweats and itchiness. I thought I was just stressed, and I was, but after several months of trying to get health insurance and then many tests, it was confirmed that I had Hodgkin lymphoma.
Carolyn
In November 2014, my daughter Valerie was born. Shortly after, I was diagnosed with an upper respiratory infection by my doctor and received 3 rounds of antibiotics because it just wasn’t going away. Life was hectic as I learned to care for my newborn and I was getting into a new routine. Some of my lymph nodes became swollen. I was having night sweats. I developed a rash and high fevers.
Jaimie Potvin
Finding cures for cancer is especially close to my heart. In 2011, my brother, Cory was diagnosed with large B-cell lymphoma. Our dad was already a two-time survivor of non-Hodgkin lymphoma, so we truly believed he would survive blood cancer too. When his treatment showed no signs of improvement, it was devastating. Cory died six years ago and I still miss him so much every single day.
Richard
I received a nasty present for my 60th birthday. I was informed that I had stage 4 follicular lymphoma. Wow! Now what do I do? I was referred to a wonderful oncologist, Dr. Stephen Grabelsky, for treatment. Dr.
Treatment
In general, the goal of treatment is to destroy as many lymphoma cells as possible and to induce a complete remission. Complete remission means that all evidence of disease is eliminated. Patients who go into remission are sometimes cured of their disease. Treatment can also keep non-Hodgkin lymphoma (NHL) in check for many years, even though imaging or other studies show remaining sites of disease. This situation may be referred to as a “partial remission.”
Brandi
My concerns began to rise when I noticed some spotting/bleeding between cycles that would last for 10 minutes or less. Additionally, I also started to experience slight abdominal cramps first thing in the morning. I’ve always been a deep sleeper and rarely woke up in the middle of the night to use the restroom, so nothing seemed out of the ordinary. That escalated to me waking up multiple times in the middle of the night to try to use the restroom, sometimes without cramps and other times with extreme abdominal cramps.
Christian
This is my son Christian Bienek, When he was 9 years old, he was diagnosed with T-cell lymphoblastic lymphoma.
After 2 1/2 years of chemo, Christian went into remission on January 6, 2013. He is now 13 and doing well. He is my hero and my heart. He is a fighter and a survivor.
Allie
I received a diagnosis of Hodgkin lymphoma (HL) at age 24 right before the pandemic started. I finished chemo in April 2020 and have been cancer-free ever since. I’ve participated in Light The Night (LTN) since 2029 and have raised over $100,000.
Psychological and Cognitive Effects
Psychological EffectsMost childhood survivors of cancer are psychologically healthy. However, some studies indicate that a small number of childhood leukemia or lymphoma survivors were more likely than healthy peers to report changes in mood, feelings or behavior, including depression or posttraumatic stress disorder (PTSD). Talk to your child’s healthcare team if you notice any changes in your child’s mood or behavior, especially if these changes begin to interfere with your child’s daily life.
Nicole
It all started back in early January 2013. I went to the local clinic in town because I was having pain in my upper left chest. Being young, I wasn't too concerned about it being a heart problem and left the clinic with the diagnosis of torn cartridge. The doctor said it would heal and I should take ibuprofen to ease the pain.
Haley
I was diagnosed on February 21, 2020, with stage 3B nodular sclerosing Hodgkin lymphoma (NSHL). I was attending UNLV and working on finishing my prerequisites to apply to the nursing program. One month later, COVID hit the U.S. and shut everything down. I had to go to all of my appointments alone. I was able to freeze my eggs before starting treatment two days later on April 3, 2020. I felt like my entire world had been turned upside down, just for the entire world to descend into chaos. It was a very scary and stressful time.
Riley
In November of 2021, I found a lump on my neck that lead me to my primary care doctor's walk-in clinic due to the amount of growth I had seen over a few weeks. I believed it to be related to thyroid or my previous diagnosis of lupus of the skin, which I later found out I did not actually have. The doctor at the clinic sent me for a CT scan of my neck and an ultrasound at which point it was determined that I had lymphoma. I received a few more CT scans that showed more masses in my lungs and the majority of my upper body.
Matthew
Three months into my husband’s yearlong deployment to South Korea, Captain Matthew Marggraf started noticing a painless lump forming on the side his neck. Thinking it was just his body adjusting to its new environment he thought nothing of it. When he visited home for two short weeks for our wedding and honeymoon in October we noticed the now golf ball sized lump. They urged him to get it checked out as Hodgkins lymphoma ran in his family.
Douglas
In December 2007 my life completely changed. I had a biopsy done just four days before Christmas, and my oncologist called me on Christmas Day to tell me that I needed to come in and see him after the holidays to discuss my pathology report. I was diagnosed with Hodgkins lymphoma. I endured five surgeries in just four weeks and spent my 36th birthday in the hospital. I never once thought that cancer was going to beat me. My mindset was that I had cancer, but it did not have me.
Kristen
I was diagnosed with Burkitt lymphoma (BL) when I was 21 years old. It was the summer going into my senior year of college, and I had just returned home from a semester abroad. I assumed the stomachaches I was experiencing were because of the food and drinks I had while enjoying my time in Europe. I was actually told I had H. pylori and started antibiotics that were supposed to alleviate the stomach pains. But then a lump on my neck appeared, and I thought the worst.
Brescia
I am a Hodgkin lymphoma (HL) cancer survivor. I was diagnosed with cancer during my college years and took a semester off to begin chemotherapy and treatment. This was an incredibly scary and challenging time in my life. As any cancer survivor contemplates upon diagnosis, one of my initial thoughts was, “How long do I have?” Not knowing the answer to that question was one of my biggest fears as I felt like I hadn’t accomplished everything I wanted to in my lifetime. After several rounds of chemotherapy, losing most of my hair, and feeling more exhausted than I’ve ever felt in my lifetime .
Understanding Blood Cancers and Treatment Options
Leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDSs) and myeloproliferative neoplasms (MPNs) are types of cancer that can affect the bone marrow, blood cells, lymph nodes and other parts of the lymphatic system. See the Disease Information pages to learn more about the different types of blood cancer.