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Watch-and-Wait

Some people with MDS who do not have very low blood cell counts or other symptoms may not need to start treatment immediately. Some people can manage their MDS with their doctors for years or even decades using a watch-and-wait (observation) approach. By using the watch-and-wait method, your MDS specialist can monitor your condition with regular physical exams and blood tests. The watch-and-wait approach lets you avoid therapy's side effects until you need treatment. Treating MDS during this early stage has not proved helpful. 

FDA Approves New Type of BTK Inhibitor to Treat Mantle Cell Lymphoma

Central Nervous System (CNS) Lymphoma

Central nervous system lymphoma is a rare non-Hodgkin lymphoma in which malignant (cancer) cells from lymph tissue form in the brain and/or spinal cord (primary CNS) or spread from other parts of the body to the brain and/or spinal cord (secondary CNS). Because the eye is so close to the brain, primary CNS lymphoma can also start in the eye (called ocular lymphoma). The cancer can also involve the spinal fluid that bathes the spinal cord and brain. This is called leptomeningeal lymphoma. Both primary and secondary CNS lymphomas are rare diseases.

Managing Sexual Side Effects

An important part of managing side effects that impact your sexual health is to determine what factors may be causing or contributing to the changes you are experiencing, so that you can address them. Sexual side effects during cancer treatment can include:

Signs and Symptoms

MF usually develops slowly. MF often does not cause early symptoms and may be found during a routine blood test. When fibrosis develops in the bone marrow, the bone marrow is unable to produce enough normal blood cells. The lack of blood cells causes many of the signs and symptoms of MF. These include:

Signs and Symptoms

Polycythemia vera (PV) develops slowly, and it may not cause symptoms for many years. The condition is often diagnosed during a routine blood test before severe symptoms occur. 

Symptoms may include:

Myeloma

Is a type of cancer that begins in the bone marrow. It is a cancer of plasma cells, which are a type of white blood cells (also called plasma B cells). The disease belongs to a spectrum of disorders referred to as “plasma cell dyscrasias” or "plasma cell neoplasms", and has several forms.

Bob

It has been 69 days since I sat in the hospital bed next to my father as he passed away from the horrors only a disease like leukemia could bring. It has been 69 days since my father passed away and "Into the Mystic" still plays on repeat in my head as it re-played over and over again in that hospital room as we urged him to go, that it was okay. For those who tell me that only time will make this better, 69 days still feels like yesterday, 69 days and I am still bargaining, pleading to see my dad on the couch when I open my front door.

Steve

I was diagnosed with non-Hodgkin lymphoma (NHL) after moving from New Orleans to San Antonio, Texas. What started as a routine visit to an allergist for swelling in my cheeks, eyes, and neck turned into a life-changing moment when a CT scan revealed the unthinkable. In that devastating instant when my doctor delivered the news, I discovered that sometimes life's darkest moments can lead you to exactly where you need to be. The people of San Antonio didn't just welcome me ― they embraced me, making their city my sanctuary.

Virginia

I have been living with chronic myelogenous leukemia (CML) since August 6, 1997. The way I see it, I’m alive today because of The Leukemia & Lymphoma Society (LLS). The pill I take each day that keeps my leukemia in remission exists today much because of research grants awarded to Brian Druker, M.D., PhD., of Oregon Health & Science University.

Lymphoma diagnosis, survival rate by age, prognosis, and treatment

Table of contents:

Latest FDA Approval Joins a Torrent of New Treatments for Aggressive Lymphoma Subtype

Rob

I have this thing inside me called chronic myelomonocytic leukemia (CMML). It’s a rare form of leukemia that affects the blood and bone marrow. Only 1,100 cases are diagnosed a year in the U.S. Four out of a million. I do not want to be that special.

Myelodysplastic Syndromes

• Is a diagnosis of cancer
• Is a group of diseases that affect the blood and marrow, with varying degrees of severity, treatment needs and life expectancy
• May be primary or treatment-related. Primary MDS has no obvious cause. Treatment-related MDS has an obvious cause.

Click here to access MDS statistics.

Chronic Lymphocytic Leukemia

• Is a type of blood cancer that begins in the bone marrow
• Can progress either slowly or quickly depending on the form it takes

Click here to access CLL statistics.

LLS Applauds FDA Approval of New Treatment Option for Pediatric Patients with Hodgkin Lymphoma

Follow-Up Care

Follow-up care is important with both aggressive and indolent forms of NHL because if the disease recurs, curative options are still available for many people. Follow-up care needs to be individualized and should be based on several factors, including how the disease initially manifested. Patients who are in remission should continue to be monitored by clinical assessment as determined by their doctor. In the past, computed tomography (CT) scans or other diagnostic imaging were done routinely in an attempt to detect relapse.

Julian

I was a 10-year-old kid when I was diagnosed with leukemia. I was a happy, energetic kid who loved being outside and was a straight-A student. However, my whole childhood was put on hold indefinitely once I had cancer. Rather than having sleepovers at my friend’s houses, I was sleeping over at the hospital. It was hard to lose my energy, smile, confidence, and hair as treatment took over my life. It was really hard to understand as I was just a kid getting injections, procedures, chemotherapy, and surgery without truly understanding why.

Roberto

In the fall of 2014, I was living my dream. I had just finished my freshman year at NYU, where I studying musical theater. I was living in the East Village, experiencing everything that New York has to offer. Even though I was a long way from my family in Miami, I absolutely loved it. However, I soon started to feel lethargic, coupled with a lymph node that was popping out of my neck and getting bigger. Something just wasn’t right. I was downing 9 Advil a day and started seeing doctors to try and figure out what was going on.

Gregg

I sailed through the first 56 years of my life...bachelor's degree, master's degree, 20 years as a physical education teacher, 15 years as a district administrator and school principal.  Along the way I founded AZ Disabled Sports, the Desert Challenge Games, SkiAble and other programming for individuals with physical disabilities. 

Paul & Lynn

In 2017, after 44 years of working in the railroad industry, Paul Sauter was just starting to enjoy his retirement, when his health started to decline out of nowhere. Typically, he was in extremely good shape and enjoyed long hikes with his wife, Lynn. One day, while on a mountain climb trip in Arizona, Lynn was concerned when she noticed Paul was not his usual athletic self. When he was unable to get out of bed because of severe back pain, she knew something wasn’t right.

Steven

I'm the wife, Hannah. My husband is the fighter. I call him Mr. Steven, babe, and sometimes even Esteban. We fight together, of course, but he's the one throwing the punches and kicking cancer's butt.

Holly

It felt just like any other Saturday after my dad's birthday. He got his annual checkup and bloodwork, and we would all celebrate our April birthdays around Easter Sunday. But this turned into something unlike any other Saturday. His cell phone rang, and everything changed. He was told to go to the ER immediately because something was wrong with his bloodwork, specifically his red and white blood cells.It could have been the shock of feeling everything all at once and being numb simultaneously.

Myeloma Overview

We provide education and outreach programs nationwide to increase awareness of myeloma and to improve all patients’ ability to access treatment and other resources.  We are in the process of updating and enhancing our Myeloma Link webpage to provide you with more information about these programs.

Myeloma is a cancer of plasma cells, a type of white blood cell. Plasma cells develop from B lymphocytes (B cells). B cells are found in the blood, lymph nodes and bone marrow.