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Alayna

September 8, 2021: I didn’t know it at the time, but the mass I found in my neck the night before I started my senior year of high school would forever change my life.

jaden

Jaden

My name is Jaden, and I am an 18-year-old Political Science student at Penn State University. I have been deeply involved with The Leukemia & Lymphoma Society (LLS) since I was 10 years old, a journey that began with a profound personal experience.

older white woman with short blond hair wearing a necklace and blue tshirt

Liz

In December 2010, my fiancé, Darla, was diagnosed with stage 4 small B-cell lymphoma (NHL). Her doctors developed a plan to start her on chemotherapy as soon as possible. She became very sick over the next couple of weeks. When she went to her first treatment three weeks after diagnosis, they could not administer the chemotherapy due to her being so ill. They put it off for a day and began Rituxan® treatment the next morning. She began having an allergic reaction to the drug. They stopped the treatment and tried to stabilize her, but later that evening, she passed away.

Leigh

Leigh

In August 2019, I developed pneumonia for the third time in two years. I had been finding that my ability to fight off illness was not as good as it used to be. Once it got to the point that I was having problems breathing, I decided to go to urgent care. Two years prior, I had been hospitalized for pneumonia, and I wasn’t looking forward to it happening again. I Googled the nearest urgent care, and it was closed. There was only one nearby that was open, but I had never been before.

acute lymphocytic leukemia (ALL)

Laura

I became aware of The Leukemia and Lymphoma Society (LLS) after I was diagnosed with acute lymphocytic leukemia (ALL). A social worker at the hospital where I was being treated gave my information to the LLS Patient Services Manager, and she called me. Then she gave me the contact information for a patient who had young children like mine and was two weeks ahead of me in the process, and we spoke with each other.

James Sun

James

I was diagnosed with stage 3 follicular lymphoma (FL), a type of non-Hodgkin lymphoma (NHL), at the end of 2017, and our world was turned upside down. I lived a pretty healthy lifestyle, stayed active, and ate well. I never thought I would be diagnosed with cancer until I received the phone call from my hematologist/oncologist late on a Friday night. My body went numb as I listened to the diagnosis and the aggressive treatment plan around the corner.

LLS DIY FAQS

FAQ Q. WHAT IS LLS DIY?

A. LLS DIY is a new way to support LLS through activity-based fundraising that is 100% driven by your personal creativity and passion. You have the ability to start your own fundraising event to support LLS or simply link fundraising to a local event or activity of your choice.

Q. HOW DOES MY FUNDRAISER BENEFIT LLS?

A. The funds raised from your campaign have a direct impact on driving new cancer treatments, access to patient services and the core promises of the LLS mission.

Tricia Plasma cell leukemia

Trisha

In November 2019, Trisha and her husband were thrilled to have given birth to her second daughter. At this time, she went to visit her OBGYN for her 6-Week Postpartum Exam, and to her surprise, her doctor noticed she had an enlarged spleen and liver. She was immediately instructed to go to the emergency room, where she was admitted for one week. After a bone marrow biopsy, Trisha was diagnosed with plasma cell leukemia (PCL). Three days later, I went to another follow-up with my oncologist.

Maddie young white female with long brown hair and a big smile wearing a blue and white flowered dress standing in front of a blurred background of trees

Sarah

I am the mother of Madelynn, aka Maddie, who was diagnosed with biphenotypic acute leukemia (BAL) on March 13, 2023, following months of illness initially thought to be a sinus infection. Despite multiple doctor visits and two trips to the emergency room, it wasn’t until Maddie’s condition worsened that she received the correct diagnosis, which involved both acute lymphoblastic leukemia (ALL) and acute myeloid leukemia (AML) with the Philadelphia chromosome. Maddie immediately began an aggressive chemotherapy regimen and spent the first month of her treatment in the hospital.

volunteer and caregiver for son with leukemia

Maria

My son, AJ, was diagnosed with leukemia on September 23, 2014, and from then on, our life changed. AJ had bumps, turns, and stops during his treatment, but we were lucky to have found The Leukemia & Lymphoma Society (LLS) about a year into his 3¼-year treatment protocol. Our first event was a Light The Night (LTN) walk one year, one month, and one day from his diagnosis date. It was a special evening where AJ was able to see so many survivors and be surrounded by people who supported him.

primary mediastinal large B-cell lymphoma (PMBCL)

Katie

I want to share my blood cancer journey. It all started back in October 2019 when I was at Gonzaga University. I started to experience the symptoms that I’m sure we’re all far too familiar with ― stomach pain, digestive problems, nausea, chest pain, and fatigue, all of which I was dealing with in addition to 20+ hours a week of tennis practice and a 15-credit class load.

sherry

Sherry

Last March, my husband Bruce went in for what was supposed to be a "simple" surgery. When the doctor opened him up, she found a mass the size of a honeydew melon (her description to me) wound around his intestines and colon. She essentially did cancer surgery on the spot and removed lymph nodes and the tumor.

Felicita

Felicita

At age 38, I was a wife and mom of three active boys. I worked as a preschool teacher. My days were spent surrounded by children, even when I was not working. In the fall of 2018, I began feeling really tired and I was suffering from chronic back pain and abdominal pain. I also was losing a great deal of weight. Then one evening while stretching, I felt a large lump on the left side of my abdomen. I panicked and made an appointment with my primary care physician.

young cuban girl in purple ringing bell

Madison

On April 23, 2020, at the age of 15, my whole world changed. I got the call that I was diagnosed with stage 2 Hodgkin lymphoma (HL) while getting ready for a birthday party. Throughout quarantine, I had to undergo four cycles of chemotherapy and 14 days of radiation consisting of countless days in and out of the hospital. I had allergic reactions to a few of my chemotherapies which caused me to stop breathing, and they happened at least once every cycle which was scary. My hair eventually started falling out in clumps, and the day I had to cut it off was probably when I cried the most.

young white man with dark brown hair and chin stubble wearing a pink shirt and beige jacket

Jack

On October 19, 2018, after complaining about excruciating pain in his back, we took our 16-year-old son Jack to see the pediatrician. The doctor checked him out and told us to immediately get him to the Children's Hospital of Colorado and go to the 7th floor to see Dr. Maloney. Not paying attention and thinking nothing was wrong, we didn't notice that the 7th floor was the Center for Cancer and Blood Disorders. We met with doctors, had a blood test done, and they came back with the dreaded words, "Your child has cancer." Specifically, he had acute lymphoblastic leukemia (ALL).

roberto

Roberto

In the fall of 2014, I was living my dream. I had just finished my freshman year at NYU, where I studying musical theater. I was living in the East Village, experiencing everything that New York has to offer. Even though I was a long way from my family in Miami, I absolutely loved it. However, I soon started to feel lethargic, coupled with a lymph node that was popping out of my neck and getting bigger. Something just wasn’t right. I was downing 9 Advil a day and started seeing doctors to try and figure out what was going on.

Gary

Gary

In 1999 I had a lump on my neck, and after strong urging from my wife and my mother, I finally went to my family doctor. My white blood cell counts were really high, and antibiotics didn't help. Eventually, a biopsy indicated chronic lymphocytic leukemia (CLL).  

TW acute lymphoblast leukemia

Tatijane

On February 19, 2021, I was diagnosed with acute lymphoblastic leukemia (ALL), both B and T cells, and given six to eight weeks to live. I was 24 years old. I was diagnosed alone in the ER because of COVID-19 protocols and unable to see my family and friends in person for a week or two because of testing, port placements, and biopsies. It was like an earthquake that shook up my life as well as all my loved ones’ lives, and all I wanted was to hug my mom.

cristina

Cristina

My story begins in October of 2018. I had recently graduated from college, moved away from home for the first time, settled into my own apartment, and started a full-time job. I felt like I was on the verge of greatness with all of these new and exciting beginnings in my life. I didn't know that I was about to have another massive beginning... the beginning of my battle with Hodgkin's Lymphoma. I was sitting at a cancer fundraiser dinner, anxiously twirling the spaghetti on my plate. I had a gut wrenching feeling in my chest that something was wrong.

cathy

Cathy

I had blood cancer and for that, I’m lucky. I’m not being facetious, I really believe I’m lucky. The doctors told me that Stage 2 Hodgkin lymphoma (HL) is highly treatable and this is the cancer to have if you’re going to get cancer. But that’s not the only reason why I’m lucky. The very first philanthropic effort that I did with my BFF was when we were 17 years old and allowed to donate blood. This is one of the first times I realized I was lucky. By giving blood I could give the gift of life. It’s something I also had in common with my husband who is an avid blood donor.

betsy

Betsy

My dad, my best friend, lost his short 15-day battle with acute myeloid leukemia (AML) on January 23, 2008. Dad was 72, but not just any 72-year-old man. He had so much life in him. He was very active in his community and loved his wife (they were married for 44 years), his daughters (my sister and I), and especially his three grandchildren!  He lived every moment to the fullest and you knew he enjoyed life just by listening to his infectious laugh! He always had a smile on his face, a story to share, and those always needed words of wisdom to share.

Janet

My caregiver journey began in 2005, when my husband found a lump on his neck and was diagnosed with a rare form of non-Hodgkin lymphoma. After being admitted to the hospital for nine rounds of chemotherapy, he went into remission.

jeff and melanie

Jeff & Melanie

My wife, Melanie and I had always been pretty healthy. We exercised, tried to eat right and discovered the value of meditation. But things changed in 2018.

Melanie had developed a cough that just wouldn't go away. She had it for months. And then she discovered a lump near her collarbone. Tests revealed on Sept. 6, 2018, that the lump was Hodgkin lymphoma and it was present in several other lymph nodes. She began a months-long treatment regimen of chemotherapy and radiation. It wasn't easy.

older white woman with dark long hair wearing black chunky glasses with bling on them and a black top

Annette

I had been feeling unwell for quite a while. I would come home from work and go to bed right after dinner. I would sleep for hours and still be fatigued. When we had afternoon meetings, I would fall asleep. My husband and I kept thinking it was my very stressful job. I was on airplanes three times a week and would be traveling all over the country. I wasn’t eating or sleeping well. I finally decided to take early retirement. I still did not feel well even after being retired. I finally got to the point where I was so sick, I told my husband to take me to the emergency room.