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alessandra

Alessandra

At the age of 14 I was diagnosed with stage 4 Hodgkin lymphoma. The doctors only gave me a 25 percent chance to live. I still remember the day I walked into the ER with my mom to get my CT scan done. Post exam, the doctor muttered,“You have cancer, but don’t worry just yet. The test tomorrow will let us know more.” Before I knew it, the next day, I found myself staring at the operating room ceiling, numb to the thought that it was all too real. Hours of surgery later, we found out the cancer had spread through my neck, entire chest and lungs.

leukemia

Greg

Today I am a proud dad, avid skier, business owner and husband. For a moment though, let’s flash back to college. I wasn’t feeling well but I needed to take one last final just before winter break. After the final, I went to the school clinic and the next thing I knew it was January and I was in a hospital bed in Denver.

I was 19 years old and had been flown in a helicopter from my college town of Durango, CO to Denver. I had been in an induced coma for the last three and a half weeks. I woke up unable to speak or move my arms, legs - I couldn’t even lift a finger.

jones Family

Laraine

November 21st is Family Volunteer Day.  The Leukemia & Lymphoma Society (LLS) encourages you to volunteer as a family today. Whatever you choose to do, do it together. Some ideas include: take a few minutes to call a friend, neighbor or colleague; cook a meal together and drop it at the doorstep of someone in need; rake a neighbor’s yard or put a book in a neighborhood lending library.

To honor this day, we are sharing the story about a family faced with a cancer diagnosis, who banded together when the future seemed so unclear.

primary mediastinal non-Hodgkin lymphoma (PMBL)

Kaitlin

I moved to Chicago in May 2022. I had recently finished my joint PhD in Social Work and Psychology from the University of Michigan and was offered a job as a People Analytics Researcher at Google. I loved the city and enjoyed frequent runs and cycling rides along Lake Shore Drive. In mid-July, I started noticing some symptoms that concerned me ― difficulty breathing when I was exercising, intense chest and back pain, spider veins on my chest, puffiness in my face, and fatigue.

caregiver support image

Caregiver Support

Am I A Caregiver?

If you’re providing regular assistance, you are a caregiver. Your loved one may only need support occasionally, or your loved one may need constant care. The kind of support needed will be different for each person and may also change over time. But if you're consistently providing care, you are a caregiver.

Here are just a few examples of caregiver tasks:

Diagnosis

Having the correct diagnosis is important for getting the right treatment. Hodgkin lymphoma (HL) may be difficult to diagnosis. You may want to get a second medical opinion by an experienced hematopathologist before you begin treatment. A hematopathologist is a specialist who studies blood and bone marrow cells and other tissues to help diagnose diseases of the blood, bone marrow and lymph system.

Miriam

Miriam

My name is Miriam Hernandez, and I have been a long-time volunteer with The Leukemia & Lymphoma Society (LLS). I first started volunteering in 2010 working with the LLS Greater Los Angeles Region and their Patient Services Team to help with outreach into the Latino community in Los Angeles. I worked on an education program about myths and misconceptions about blood cancers done in the form of a “bingo” style game.

Samantha stage 3 aggressive B-cell non-Hodgkin lymphoma (B-NHL)

Samantha

In February 2023, I was on top of the world. I turned 27 years old, I was training for a new position at my dream company, I spent an amazing weekend in Nashville with girlfriends, and had just touched down from Mexico after spending a fantastic weekend with one of my best friends. Everything felt right ― for the most part. While this month was filled with love, laughter, and good times, it was also filled with night sweats, stomach pains, and overall feelings of illness.

A woman with a bandana sits across from another person behind a desk

Beyond the diagnosis: How employers can champion employees facing cancer

“When someone faces cancer, they shouldn't have to go it alone.” – Orlando Ashworth, CPO, LLS

 

Cancer doesn’t just impact an individual. It sends ripples through families, friendships, and workplaces. 

James Sun

James

I was diagnosed with stage 3 follicular lymphoma (FL), a type of non-Hodgkin lymphoma (NHL), at the end of 2017, and our world was turned upside down. I lived a pretty healthy lifestyle, stayed active, and ate well. I never thought I would be diagnosed with cancer until I received the phone call from my hematologist/oncologist late on a Friday night. My body went numb as I listened to the diagnosis and the aggressive treatment plan around the corner.

LTN isabelle

Isabelle

I was diagnosed with acute lymphoblastic leukemia (ALL) on December 4, 2003, at the age of five. As a young child, I was very energetic and loved to do anything outdoors and active, and I especially loved a good competition with my older brother Harrison. My parents began noticing that something was off when I started complaining about not being able to walk up the big hills in San Francisco where we lived. This was very uncharacteristic of me as I loved to race my brother to the top.

briana

Brianna

"He was the king of positivity" is what Dr. McCarthy at Roswell Park said to me the day after my Dad passed away from complications of GVHD or graft-versus-host disease. My Dad was a leader, someone who was always willing to help others, and always had a smile on his face. Not only was I his co-caregiver throughout his cancer journey, but he was also my caregiver during mine.

People from three featured stories: Charlie, Ken, and Chloe

A Source of Hope: Understanding Bone Marrow and Stem Cell Transplants

Imagine a community filled with families, friends, and healthcare professionals united to transform the meaning of living with blood cancer. This diverse group of people—including researchers, doctors, care partners, and healthcare teams—are bound together by hope, resilience, and a shared goal: to overcome the challenges and live longer better lives.

acute myeloid leukemia (AML) football

Joshua

Joshua was a regular 11-year-old. He played multiple sports, was learning to play the flute in the school band, and enjoyed having fun with his friends. After a few weeks of a nagging sore throat and enlarged tonsils, we took Josh to see his primary care physician (PCP). They ran some tests and sent him home. No big deal, just a routine trip to the doctor’s office. Josh's PCP called the next day at 6:00 p.m. . . . on a Saturday. She said that she was worried about some of Josh's blood test results and recommended we go to an urgent care or emergency room for further checks.

Allyson

Allyson

In November 2016 I was tired. TIRED. I had a 20-month-old and a 4-year-old, had just come off the busiest month of the year for work, and I figured I was tired for no other reason. But then tired became not having the energy to take care of my 20-month-old. Tired became going to be my best friend's wedding and needing to lay down in between steps. Shower, lay down. Makeup, lay down. Hair, lay down. Get dressed, sit for a minute. Walking a long hallway seemed daunting. And then carrying my son from my car at a gas station to the restroom inside on a road trip was too much.

Options for Egg Preservation

You may be able to take certain steps and precautions to preserve fertility before, during and after treatment. 

Split image of Racheli, Hodgkin lymphoma survivor. On the right, her during treatment. On the left, post-treatment.

Every Year Counts: Celebrating My Healing from Hodgkin Lymphoma

Many blood cancer survivors remember the day they were diagnosed, and they never forget it. For Racheli Alkobey Peltier—Director of Diversity, Equity, and Inclusion at The Leukemia & Lymphoma Society (LLS)— when that date comes around, it’s a chance to mark her progress.  

Each year, Racheli marks important milestones in her experience with blood cancer—taking time to reflect, feel gratitude, and look ahead. These dates are her “cancerversaries.”  

Elisabeth

Elisabeth

I was first diagnosed at 12 years old when I didn’t even know what the word cancer meant. I remember sitting at the kitchen table with my family, laying my head down and sobbing because they told me I would lose my hair. I have lost my hair five times since. You see, fighting tooth and nail for your life at a young age produces a certain type of grit ― one where you choose daily to do hard things while also stopping to smell the flowers on the way, one where you enjoy the little moments most take for granted because tomorrows were never promised.

Tricia

Tricia

My story is truly about the little family that could. In 2002, I felt I had it all: a loving partner, a new job offer, and plans to start a family. Upon my return from a business trip in May, that feeling shifted as a large lump appeared on the side of my neck. Several doctor visits, tests, and sleepless nights later, I received a phone call on the way to a meeting from a doctor. He asked me to pull the car over. He told me I had cancer. Everything stopped.

LV

Lauren

To be healed by the miracles of modern medicine and prayer was the most profound experience of my life. It is difficult to articulate the gratitude my family and I feel in our hearts for the people who made it so. There is no scenario where I would be here today, writing this account, without the research made possible by The Leukemia & Lymphoma Society (LLS).

LLS DIY FAQS

FAQ Q. WHAT IS LLS DIY?

A. LLS DIY is a new way to support LLS through activity-based fundraising that is 100% driven by your personal creativity and passion. You have the ability to start your own fundraising event to support LLS or simply link fundraising to a local event or activity of your choice.

Q. HOW DOES MY FUNDRAISER BENEFIT LLS?

A. The funds raised from your campaign have a direct impact on driving new cancer treatments, access to patient services and the core promises of the LLS mission.