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Caregiving During Treatment
Preparing the HomeDuring and after cancer treatment, your loved one may find life at home becomes increasingly challenging. If your loved one is experiencing mobility issues, peripheral neuropathy, pain or weakness after treatment, the following changes to the home may make life easier and safer for your loved one:
Jennifer
On New Year's Day 2012, I was diagnosed with acute myeloid leukemia (AML). I watched the ball drop in the ICU with a nurse assigned to me. They heard my mom being asked if I needed to be resuscitated, so they proceeded with that and then to hear her respond to do everything you can for her. The seriousness of that is very overwhelming.
Steven
I'm the wife, Hannah. My husband is the fighter. I call him Mr. Steven, babe, and sometimes even Esteban. We fight together, of course, but he's the one throwing the punches and kicking cancer's butt.
Russ
Shockingly I was diagnosed with acute myeloid leukemia (AML) on February 28, 2024! My wife Nancy and I were devastated and had zero background or experience with leukemia. We were sent to UCLA for treatment. What a godsend!
Cassie
Cassie Fetsch is a regular volunteer for The Leukemia & Lymphoma Society’s (LLS) Minnesota chapter. When school is out, staff members can count on Cassie to be in the office folding letters, stuffing and labeling envelopes, counting Team In Training brochures, cleaning out drawers or putting together pizza boxes. Since Domino's sponsors LLS's Pennies for Patients program, they donate all the boxes to ship campaign supplies. This year, Cassie assembled boxes for more than 800 schools!
Lorelai
I was diagnosed with acute myeloid leukemia (AML) when I was 11. Throughout my entire cancer journey, I had a lot of people in my corner. But what I found most helpful was following The Leukemia & Lymphoma Society’s (LLS) social media platforms and reading the articles on their website. Through LLS, I felt like someone actually understood what I was going through. Recently, I have been one of the very lucky students chosen to receive the LLS Scholarship for Blood Cancer Survivors which will be the reason I am able to continue attending college.
Nikolette
I was truly honored to be a recipient of The Leukemia & Lymphoma Society (LLS) Scholarship for Blood Cancer Survivors. After fighting two different types of cancer, both forms of lymphoma and leukemia, I was unsure what my collegiate education would look like. I had to medically withdraw from my freshman year of college at Penn State University in the fall of 2018 when I received my second diagnosis. My family and I were completely devastated, but I was able to successfully undergo a bone marrow transplant and have been showing no evidence of disease (NED) for 3½ years now!
Cary
Cary was diagnosed with Acute Lymphoblastic Leukemia in the fall of 2012. After spending more than 100 days in the hospital, undergoing intense chemo treatments, and blood transfusions Cary is now in remission. You can only imagine the struggle and heartache a cancer diagnoses was at only 33 years of age with a wife, 3 small boys, and a career.
David
My dad, David, was diagnosed with acute lymphoblastic leukemia (ALL) on March 1, 1993, after looking at his blood under a microscope in college class. He started three years of intense chemotherapy on March 8, 1993, and finished it on January 26, 1996, while a third-year medical student. He was told that there was a 50% survival at five years and 30% survival at 10 years and that he would likely not be able to have children. During that time, he got married. Two years after finishing chemo, my oldest brother was born. I have three older brothers and an older sister.
Christopher
Christopher was diagnosed with acute lymphoblastic leukemia (ALL) on July 9, 2012 when he was 10 years old. After feeling tired and experiencing bone pain and headaches for three weeks, he went to the doctor. A requested blood test revealed leukemia cells.
Jennifer
My mother, Jennifer, was diagnosed with breast cancer completely unexpectedly in 2015 and beat it a year later. Soon after, she was diagnosed with acute myeloid leukemia (AML). We were in complete shock. She is single and lives on our Indian Reservation in Eastern Oregon with no cancer hospitals, so my sister and I completely dropped our careers and lives in other states to take care of her as we were scared and knew she needed support.
Krystina
On June 13, 2014, my sweet daughter Krystina Sharpe Perry was diagnosed with PH positive acute lymphoblastic leukemia. Unfortunately, all her chemotherapy treatments didn't seem to work.
After a year of chemotherapy, Krystina and her doctor decided to do a stem cell (umbilical cord blood) transplant. She had the procedure on July 1, 2015 but her body couldn't fight the infections. With a low immune system and three trips to the intensive care unit, her kidneys, lungs and heart just couldn't continue to function.
Joe
My son Joe was 5 years old when he was diagnosed with T-cell leukemia just three days after the birth of his brother Cole – Joe was admitted to the ICU, and on Sunday, the next day, they did a spinal tap and a bone marrow biopsy. At midnight that night, he started his chemotherapy treatments.
In the first 30 days, his bone marrow had cleared to zero, and he was technically designated as a “low risk rapid responder.” All things being equal, he has done a phenomenal job through this.
He is in long-term maintenance and he finished his treatment on December 13, 2014.
Michelle
I'm Michelle, and I'm a childhood cancer survivor. I'm going to be 43 in a few days. I was 2½ when I had acute lymphoblastic leukemia (ALL) through age 5, going through it all. I received experimental chemos and radiations. I was two out of 45 children who lived. The rest died. I have relapsed over six or more times ― two leukemias, and the rest were all different cancers. I recently got tested genetically at O.H.S.U., and I have what they call a mutated gene.
Chemotherapy and Drug Therapy
Chemotherapy is generally used only in patients with blast-phase CML as a way to get the CML back into chronic phase. Very high-dose chemotherapy is used to prepares patients for an allogeneic stem cell transplantation.
Jaziel
Hello, my name is Jaziel, and I am a three-time leukemia survivor. My story began in 2008 when I was initially diagnosed with acute lymphoblastic leukemia (ALL). I was treated for a few years and became cancer-free (remission) in 2011. During my first battle with cancer, The Leukemia & Lymphoma Society (LLS) helped me and my family immensely by assisting us with rent, gas, and sometimes simply sharing the stories of other survivors, encouraging me to keep fighting.
Deanna
Within 24 hours of going to the local emergency room in New York, I found myself being admitted to the Dana Farber/Brigham Women's Cancer Center in Boston. It was August of 2013 and I was exhausted beyond anything my four kids could inflict upon me and shocked to find out it wasn't anemia, I had acute lymphoblastic leukemia (ALL).
Ethar
Refugee Family Gives Back to LLS after Daughter Survives Leukemia
Sixteen-year-old Ethar and her family moved to the United States from Iraq in 2015. Just one year later, she was diagnosed with T-cell acute lymphoblastic leukemia.
“It all started when my lymph nodes began to swell and the pain became very intense,” said Ethar. “It was at this point, that I went to the emergency room with my father so we could try to make sense of what was happening to me.”
Lolo
Lolo was a happy and active 10-year-old when she was diagnosed with pediatric acute myelocytic leukemia (AML) in December 2012. She spent the next six months at Children’s Hospital in Omaha, Nebraska, isolated from her classmates and critically ill.
Linda
My blood cancer story began in 2015 with a diagnosis of chronic myeloid leukemia (CML). It was scary, and there were so many unknowns. Today it’s 9½ years later, and I know a few more things about blood cancers.
First, today my cancer is undetectable! But as my doctors have told me, it’s chronic, so I’ll always have to be proactive and take medication.
Mayra
I am 28 years old and a mother of two. Last year on December 19, 2024, I was diagnosed with acute myeloid leukemia (AML), an aggressive blood cancer. My world was turned upside down as I had no idea what I would be dealing with or if I was going to make it. Cancer is something no one ever wants to hear.
Anne
My story with leukemia began in July 2016 when I was diagnosed with chronic myeloid leukemia (CML). It was four months and 13 days after my wedding to my husband Eddie, and one month to the day after our vow renewal ceremony. What we didn’t realize at the time was that my body had likely been fighting for months. I thought my exhaustion was from wedding planning and running my writing business.