Search Results
Emily
My daughter, Emily is my hero! She is 25 years old and was diagnosed with Hodgkin lymphoma in June 2018. Her initial symptoms started with a cough and her losing weight while we lived in Texas, which we assumed was from her working her new job, which was very physical. We left Texas May 26 and drove from Fort Hood to Massachusetts, almost 2000 miles. None of us knew Emily was so sick. It took us four days to get back home.
Dan
My name is Dan. I was first diagnosed with multiple myeloma (MM). After a battery of excruciating, painful biopsies and bloodwork, my doctors prescribed chemotherapy and Velcade once a week, then twice a month. My myeloma numbers were going way down, and my platelet count was diving straight to the bottom, single digits. My routine appointments with my doctor not in my city were going south. The doctor told me to stop taking all my cancer medications. What was happening to me was my MM was completely going into leukemia, a disease called myelodysplastic syndrome (MDS).
Nik
Hello, my name is Nikolas. I am 16 years old, almost 17, and have been battling acute lymphoblastic leukemia (ALL) for eight years.
Olivia
I'm officially nine months in remission and just celebrated my first birthday (27!) since finishing chemotherapy treatment. In January 2022, I was diagnosed with stage IVB Hodgkin lymphoma (HL) after taking almost nine months to officially be diagnosed. Unfortunately, delayed diagnoses are often the frustrating truth for many adolescent and young adult cancer patients. However, during those nine months, I learned invaluable lessons on how to advocate for myself and persevere until I had answers.
Jakob
I was diagnosed at two and a half years old in December 2003 at Valley Children’s Hospital. Some early symptoms that I had were paleness, unexplained fevers, and extreme fatigue. My babysitter noticed my naps were getting longer and longer as the days passed, and I was taken to my pediatrician because of the previously mentioned symptoms. I was diagnosed with pre-B-cell acute lymphoblastic leukemia (pre-B ALL). My length of treatment lasted three years and two months. I had oral, intramuscular, intrathecal, and IV chemotherapy over the course of the entire treatment.
Tiffany
I was first diagnosed in July 2015. The doctors in Joplin kept saying I had strep (which I did, at first) and it never got better. Appointments after appointments and I kept getting this. Despite the several medicines they had me on, I was still not feeling good. Nothing helped. Finally my friend forced me to go back to the hospital, where I had been four days later, and I was FINALLY diagnosed with acute myeloid leukemia (AML). Unfortunately, they did not have any doctors to treat it there.
Amanda
The word “warrior” seems too tame to describe Amanda Monteiro, a volunteer with The Leukemia and Lymphoma Society (LLS). She’s fueled by her desire to prevent another child from being diagnosed, another parent from having to say goodbye.
Lauren
After being diagnosed Hodgkin’s lymphoma at age twenty-two, my battle with cancer led to a very unexpected journey in my life: becoming an author. I’m very grateful to share that I’ve now been cancer-free for eight years, and my debut fantasy novel The Memory Thief was published by HarperCollins in October of 2019.
Gina
In November 2016, Gina was diagnosed with Stage II Hodgkins lymphoma (nodular sclerosis). She had just started her second year at Massachusetts College of Pharmacy and Health Sciences where she studies diagnostic medical imaging in the sonography program which is an accelerated three year bachelor program. In addition to being a full time student, she works Friday evenings and 10 hour shifts on Saturday and Sunday at an Urgent Care Center.
Charlene
Cancer. That is a word that is scary. So many of us have friends, family and co-workers that are impacted by some type of cancer, but you never think it will be you. The word conjures up fear. Fear of treatment, fear of death and fear of what will be expected of you to deal with and hopefully survive.
Lorri
In February, 2015 I got fever that would not go away. I figured it was the flu, even though I had the flu shot earlier that year. I just assumed it wasn’t effective. I continued to keep my daily routine including work and even hiking, but I felt so tired and ill. After several visits to a variety of healthcare facilities, I still didn’t hear the “C" word yet.
Nicole
In the summer of 2016, I wasn't feeling like my usual energetic self and felt tired all the time. Initially, I attributed my tiredness to my busy life as a wife and mother with a full-time job outside the home. Some of my other symptoms were weight loss, night sweats, and a persistent feeling that something was always stuck in my throat.
Alayna
September 8, 2021: I didn’t know it at the time, but the mass I found in my neck the night before I started my senior year of high school would forever change my life.
Paul
In 2001, I described my health as excellent. I had a great job, was very physically active, and participated in a number of nonprofit activities. However, I very occasionally experienced extreme abdominal cramps that caused nausea and curling into a fetal position for approximately five hours. Doctors were perplexed, though suspected gallstones.
Zac
In 2019, at 32, several symptoms culminated and, in hindsight, were red flags to the disease progression of acute myeloid leukemia (AML). I was less than 90 days into a new job in residential construction. I did not pay attention to what my body was telling me (extreme fatigue, excessively bleeding gums after a dental exam, bruising, and petechiae on my chest and upper extremities). After a busy weeknight trip to the grocery store, my body made me stop to pay attention with a 103.2° fever. With that, I drove myself to the local emergency room.
Madeleine
We were lucky. It seems strange to frame it that way, but it's true.
Julie
March 22, 2020- 7 years since acute myeloid leukemia (AML) diagnosis, CURED!!! I am so blessed to be alive to celebrate my 7th year since diagnosis of AML! Who celebrates being diagnosed with AML or any cancer for that matter? But let’s be honest, in the cancer lottery, AML, is not one of the preferred. At least if you cling to cancer stats which is something I highly discourage. The first problem with AML stats specifically-the mean DX age of 68ish.
Dax
“I just wanted to let you guys know that I’m so supportive of everybody who likes my stuff even though not a lot of people like my stuff – like I’m not huge or anything – I’m pretty small. I just want to show you guys support, and even though I know most of it is just my friends, people I know, who I’ve met, that really helps when you see appreciation for things that you do.”
“People Just Didn’t Get It”: Treating Young Adults with Cancer
Think of spring break: warm sunny skies, a refreshing drink, and hopefully, a feeling of freedom.
Jonathan
This story is memory of my late fiancé, Jonathan Bentley, who passed away from acute promyelocytic leukemia (APL) at the age of 33 after a week-long battle. Jon was a truly amazing person; the type that you wish everyone could meet once in their lifetime. Although he is now gone, I wish to honor his beautiful spirit by sharing a little bit about him.
Nicole
I’m an eight-year survivor of leukemia. I was a happy, healthy young adult. I noticed my body was bruising, and I would fall asleep at work. I didn’t think anything of it, but the bruising kept coming. I have twin girls, and on their birthday, July 1, I went to the ER. They ran all kinds of tests. I felt fine actually. They came back and were talking about white blood counts and oncologists. I knew right then and there it was cancer. I had an appointment with an oncologist on July 5, my mom’s birthday, and went back to the ER. This time I was admitted. I had no idea what was going on.
Managing Insurance and Expenses During Illness
It's important to resolve financial issues before they become a source of increased stress or limit your access to needed treatments, prescription medications or support services. Therefore, discuss payment options with members of your healthcare team or the treatment centers' patient financial services department. Patients and providers can work together to devise ways to reduce costs without compromising treatment. Ask your providers about:
Lori
Just a month before turning 60, I was diagnosed with follicular lymphoma (FL). I really had no symptoms. I had just finished a year of pretty much full-time, long-term substitute jobs at our local middle school. I’m a retired high school English teacher. I had also traveled with my family to both Williamsburg, Virginia and Las Vegas with my sister and her husband. We were only home for four days when I flew my daughter and two-year-old grandson here to Alabama for a week.
Anna
I’m from Hungary. I’m 34 years old and just recently moved to Durango, Colorado, to marry my husband, Joe. For two years, we worked through a long-distance relationship during COVID and thought we would never face a tougher task in life than facing an uncertain future beset by travel restrictions, an eight-hour time difference, and thousands of miles. We wed in July, settled into our house we’d moved into in March, and I had just qualified for my work permit and landed a wonderful job as the Communications Specialist at a local non-profit.