The Scars, Aligned (A Cancer Narrative)
The Scars, Aligned (A Cancer Narrative) by Brad Buchanan
Finishing Line Press, 2019, Paperback 93 pages
The Scars, Aligned follows the author's journey through the many phases of a cancer patient’s experience and interweaves lines of famous poetry. He covers feelings of uncertainty, paranoia, diagnosis, acceptance, expectancy, crisis, treatment, and finally recovery. The narrative working through these poems is a powerful and universal one, but the details of an intensely lived physical and emotional ordeal make this book far more than a mere succession of unfortunate events.
Consider It Pure Joy
Consider It Pure Joy by Jennifer Jones Austin
Published by The Church Online LLC, February 2018, Paperback, 217 pages (also available as e-book)
Author Jennifer Jones Austin - wife, mother, lawyer, child advocate and the picture of good health - finds herself with an acute form of leukemia that requires a bone marrow transplant to increase her chances of survival. The story recounts how Jennifer, her family and friends, are in a race against time as she fights cancer and searches for a bone marrow donor to cure her and others of the deadly disease. With scripture and bible verses, Jennifer describes how her power of faith, and her power of community, help to transform desperation into joy.
Graft-versus-Host Disease: What to Know, What to Do
Graft-versus-Host Disease: What to Know, What to Do
Published by Blood & Marrow Transplant Information Network (2018)
42 Pages - Available in English and Spanish
Graft-versus-host disease (GVHD) is a complication that often occurs after a transplant using cells from a donor (an allogeneic transplant). This booklet will help you understand the symptoms of GVHD, the organs it can affect, treatment options and steps you can take to minimize the impact of GVHD on your daily life.
For more information: https://bmtinfonet.org/
Living with Cancer - A Step-by-Step Guide for Coping Medically and Emotionally with a Serious Diagnosis
Living with Cancer - A Step-by-Step Guide for Coping Medically and Emotionally with a Serious Diagnosis by Vicki A. Jackson, MD, MPH, David P. Ryan, MD and Michelle D. Seaton.
Johns Hopkins University Press, 2017, 351 pages
ISBN 1421422328 Hardcover (also available in paperback and e-book)
Doctors Vicki A. Jackson and David P. Ryan have crafted a step-by-step guide aimed at helping people with cancer grasp what’s happening to them while coping physically and emotionally with treatment. It is a practical, easy to read and comprehensive reference covering everything from understanding one’s diagnosis to managing symptoms and side effects and dealing with end of life concerns.
For more information: https://www.press.jhu.edu/
Bone Marrow and Blood Stem Cell Transplants: A Guide for Patients
Bone Marrow and Blood Stem Cell Transplants: A Guide for Patients by Susan K. Stewart
BMTinfonet.org (2012), 228 Pages
The 2012 edition of Bone Marrow and Blood Stem Cell Transplants: A Guide for Patients is chock full of important information applicable to patients, family members and friends. This comprehensive and easy-to-read book is a "must" for patients considering a transplant using donor bone marrow, blood stem cells or cord blood. The book walks the reader through what to expect before, during and after transplant and includes the perspective of patients as well as caregivers.
For more information: http://www.bmtinfonet.org/
Cancer Clinical Trials: A Commonsense Guide to Experimental Cancer Therapies and Clinical Trials
Cancer Clinical Trials: A Commonsense Guide to Experimental Cancer Therapies and Clinical Trials By Tomasz M. Beer, M.D., Larry W. Axmaker, Ed.D
DiaMedica, 2012, 144 Pages
ISBN-10: 098232197X ISBN-13: 978-0982321973
Cancer Clinical Trials is a comprehensive, no-nonsense, and readable guide for anyone who is considering therapeutic options in addition to standard cancer therapy. The book seeks to share knowledge about cancer clinical trials with people living with cancer, their families and loved ones. It will help readers decide if a clinical trial is a good option for them, to choose an appropriate trial, and to navigate through the clinical trial process. It includes lists of questions to ask, things to look for, things to watch out for, and places to look for information. A chapter on available drugs now used to treat cancer will be especially helpful.
100 Questions & Answers About Cancer and Fertility
100 Questions & Answers About Cancer and Fertility By Lindsay Beck, Kutluck H. Oktay MD, Joyce Dillon Reinecke, JD
Jones and Bartlett Publishers, 2008 152 Pages
Whether you're a newly diagnosed cancer patient, a survivor or a loved one of someone suffering from infertility, this book offers help. The only book available which provides both the doctor's and patient's views, 100 Questions & Answers About Cancer & Fertility, provides practical, authoritative answers to 100 of the most common questions asked by cancer patients and survivors about fertility. Written by an Ob-Gyn/reproductive medicine specialist and cancer/fertility patient advocate, with commentary from actual patients, this is an invaluable resource for anyone struggling with the medical, physical and emotional turmoil of cancer and infertility.
Over 140 Things You Need to Know About Your Autologous Bone Marrow or Stem Cell Transplant
Over 140 Things You Need to Know About Your Autologous Bone Marrow or Stem Cell Transplant By Mark Patton
MGC Publications, 88 pages, 2005
This book is the personal account of a young multiple myeloma patient who has undergone two autologous bone marrow transplants and three peripheral blood stem cell transplants over the course of his treatment. The author's objective is to share his knowledge with other blood cancer patients and to assist those facing an autologous transplant to better understand the procedure and recovery. This user-friendly guide offers advice and information on topics including selecting a transplant center, recovering from induction therapy and avoiding infection, caring for your caregiver and tips on incorporating complementary and alternative medicine practices.
For more information: www.bmtresources.org
One Hundred Days: My Unexpected Journey from Doctor to Patient
One Hundred Days: My Unexpected Journey from Doctor to Patient By David Biro, M.D.
Knopf Publishing Group, 2001, 304 pages
Stricken with a potentially life-threatening rare blood disease, Dr. Biro chooses to undergo a potentially curative, though potentially life-threatening allogeneic stem cell transplant, despite conflicting medical advise. Told with candor and humor, he shares his experiences of the transplant process. From the perspective of a patient who is also a doctor, he includes both the physical and the emotional impact of the transplant.
Autologous Stem Cell Transplants: A Handbook for Patients
Autologous Stem Cell Transplants: A Handbook for Patients By Susan K. Stewart
Blood & Marrow Transplant Information Network, 191 pages
This book is a complete resource for patients having an autologous stem cell transplant - one that uses the patient's own stem cells. Directed to patients and caregivers, this book includes valuable information along a continuum from preparation for the transplant, the treatment itself and aftercare. The author, a leukemia and stem cell transplant survivor, is executive director of the Blood and Marrow Transplant Information Network.
For more information: www.bmtinfonet.org/products/books