Search Results
Kendra
I first learned of The Leukemia & Lymphoma Society (LLS) when I participated in a Team in Training (TNT) event to walk a half marathon in San Francisco in October 2004. My friend in Michigan had lost her dad to lymphoma earlier that year, and she was training for the event from her home in Michigan. My training and participation were a way to support her during the loss of her dad. I never thought I could walk that far, and, through the support of the trainers and the motivation to support my friend, I had an awesome time completing that walk.
Cancer-Related Fatigue
Fatigue is very common in patients with blood cancers. Cancer-related fatigue (CRF) is characterized by excessive and persistent exhaustion that interferes with daily activity. CRF often begins before cancer is diagnosed, worsens during the course of treatment and may persist for months—even years—after treatment ends.
Jennifer
Jennifer of Hayward, CA, was diagnosed with myeloma (MM) in 2008. During this process, she endured a year of intense chemotherapy, followed by an autologous stem cell transplant where her own stem cells were harvested and reintroduced into her body on January 8, 2010. This resulted in an extended hospital stay followed by radiation treatments. She is currently in remission and remains under doctor’s care. After her diagnosis and treatments, she wanted to give back to others living with the disease.
Helping Survivors Lead Longer Better Lives
Late last year I had the privilege of attending a special screening of the documentary American Symphony. The film chronicles the experiences of writer Suleika Jaouad and her husband musician Jon Batiste after learning that her acute myeloid leukemia (AML) had returned after years of remission. The movie shows how the couple navigates uncertainty, treatment, and their new normal afterwards.
Deborah
I am a 54-year-old mother of two, the owner of a small business, Park Hill Yoga and have been married for 22 years. Being diagnosed with Hodgkin lymphoma in December 2015 came as the biggest surprise of my life.
Coping Tips for Parents
Throughout your child's illness, you'll be focused on comforting your child and helping him or her cooperate with treatment. You may also need to explain what's happening to your other children, answer relatives' questions and perhaps make alternate arrangements for work and childcare. All along the way, you'll be coming to terms with your own feelings and choices.
Paul
I have been very active with The Leukemia & Lymphoma Society (LLS) for over 20 years including serving on the Wisconsin Chapter Board and Leadership Development Committee, fundraising for virtually all of the campaigns, patient mentoring, and advocacy leadership. When sharing my story and motives for involvement in “the early years,” I always qualified it by stating that I was motivated not to help myself but to pay it forward and hopefully contribute to improving the quality and quantity of life for future patients and families.
5 Reasons why I’m grateful for LLS Volunteers
It’s National Volunteer Week, and I want to thank all our LLS volunteers for the time, energy, and commitment you give to our organization in service of blood cancer patients and their families. Through your many acts of kindness, compassion, and generosity, you are helping patients live longer, better lives. All of us at LLS are so grateful for you—all year long.
Why We Love Nurses (And You Should Too!)
It makes sense that at diagnosis and throughout treatment, someone diagnosed with a blood cancer will look around them for answers or support.
Jamie
After he was diagnosed with blood cancer in 2013, Jamie was told by doctors that he’d never walk again, let alone ride a bike. Despite those predictions, he finished a 540-mile ride in June 2019 to raise money for The Leukemia & Lymphoma Society (LLS).
Eliot
It was my senior year of high school, and I was thriving: MVP of the soccer team that went to the state finals; strong academics with an offer to study Natural Sciences at Durham University, one of England’s finest; fantastic friends who were to become even more important to me. My biggest challenge was getting a date for the prom! Things that were within my control were going really well. However, things outside of my control then flexed their powerful muscles, and that high school life ended and a new one began.
Jack
Jack is a particularly big fan of the Leukemia & Lymphoma Society. His is an active Patient Advocate managing a local support group for patients and caregivers interested in his rare blood cancer, he participates in LLS' First Connection program, has helped with LLS' Team in Training and Light the Night recruiting efforts. He received LLS' appreciation award "For Outstanding Commitment and Support of Advocacy and Patient Quality of Life" in June 2104.
Jennifer
In 1985, 10-year-old Jennifer took to the stage to accept The Leukemia & Lymphoma Society’s (LLS) “Employee of the Year” award for her mother, Teresa McVay, who had lost her battle against chronic myelogenous leukemia earlier that year. That was Jennifer’s first time speaking on stage, but it would not be her last. Driven by her mother’s traumatic passing, Jennifer has been a public speaker on Adverse Childhood Events (ACEs), sharing her own experience with loss in order to bring awareness to the cause.
Lisa
On February 3, 2020, my life changed forever. My husband and I welcomed our first child, a baby girl named Quinn. But, three weeks after she was born, I started to not feel the best.
On Friday, March 13, 2020, the day of the COVID-19 shutdown, my life changed forever again. After two weeks of having fevers and night sweats and being tested for everything but cancer, I went in for scans. Two hours after I had my scans, I got the call that nobody wanted to hear. I had cancer.
Courtney
In March 2022, I began experiencing unusual symptoms of fatigue, nausea, persistent infections, and bloody noses and gums, but I didn’t think much of it. Following a lucky-timed appointment with my primary care doctor and multiple blood tests, I was diagnosed with acute lymphoblastic leukemia (ALL). Cancer isn’t something an otherwise “healthy” 27-year-old thinks will come out of a doctor’s mouth.
Tim
On March 10, 2015 I reached another milestone and turned 60 years young. I have been blessed with good health and the ability to swim, bike, and run. For over a decade I have been involved with The Leukemia & Lymphoma Society (LLS) as a board member and participant in more than a dozen fundraising triathlons/marathons for Team In Training events all over the world. My efforts will continue until cures for blood-related cancers are realized.
Brenda
A scratchy throat that became a bronchial infection in May 2012 was the first sign Brenda had that anything was wrong. She tried to tough it out but collapsed while taking her long-awaited test for a black belt in karate. Later that same day she was diagnosed with acute myeloid leukemia (AML), the same disease that had taken her brother 17 years earlier.
Erika
I am a 36-year-old cancer survivor. In February 2014, I found a suspect lump and had become unusually tired. I was a career-driven single mother of a very active 10-year-old boy, so when I say unusually tired it was time to call the doctor. Within days I was thrown into the crazy and often times confusing world of hospital appointments and insurance company battles for various procedures and surgical biopsies. We became pros at the waiting game.
Virginia
I have been living with chronic myelogenous leukemia (CML) since August 6, 1997. The way I see it, I’m alive today because of The Leukemia & Lymphoma Society (LLS). The pill I take each day that keeps my leukemia in remission exists today much because of research grants awarded to Brian Druker, M.D., PhD., of Oregon Health & Science University.
Dorothy
In the fall of 2002, I had a missed call and a “call me when you’re out of class” text from my Dad. I was a sophomore at the University of Georgia when I heard, “Honey, I have cancer. Waldenstrom’s macroglobulinemia (WM).” So, I took a deep breath and asked, “Okay, so what’s next? Surgery? Radiation? Chemo?” “Nothing, we wait until it gets bad enough for treatment.”
Don
Like so many individuals diagnosed with blood cancer, I had zero thought that I might be ill, much less with a disease that could take my life.
I had signs and symptoms that something wasn’t quite right in my body, annoying things like shortness of breath, lightheadedness, and fatigue. However, nothing registered in my head until after my diagnosis.
It’s September 2005, and I am pretty much invincible, bulletproof! I could, in fact, leap tall buildings in a single bound! Yes, in my mind I was Superman!
Alesia
In November 2021, I experienced my first panic attack while at work. I went to the urgent care clinic, and they tested me and said I was good and might be experiencing anxiety. At that time, being a teacher in my school was hard and overwhelming, and I started taking anxiety medication. Later on in the school year, I continued to experience COVID-like symptoms but was always negative. I did eventually get COVID, but I was still healthy on paper. While all of this was going on, I was also encountering fatigue that I couldn't explain and blamed it on my job.
Jerome
Most importantly, the doctors, nurses, and researchers are true angles; wouldn’t be here without them. Dedicating their lives to saving others’, I am forever thankful. Not to mention the secretaries, volunteers, and administrators who are the lubrication to the operation, thank God.
It has been a while, but here’s the summary: Diagnosed with ALL in Oct. of 1986, remission shortly after in Dec. of 1986, then 2.5 years of chemotherapy and a few weeks of radiation therapy. It all changed my life... for the better.