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Ushering In a New Era of Pediatric Blood Cancer Treatment and Care
We caught up with Gwen Nichols, MD, Chief Medical Officer at The Leukemia & Lymphoma Society (LLS), to share the progress we’re making to bring cures and better care to children with blood cancer through The LLS Children’s Initiative.
Tell us about The LLS Children’s Initiative and why it’s so important to you and LLS.
5 Reasons why I’m grateful for LLS Volunteers
It’s National Volunteer Week, and I want to thank all our LLS volunteers for the time, energy, and commitment you give to our organization in service of blood cancer patients and their families. Through your many acts of kindness, compassion, and generosity, you are helping patients live longer, better lives. All of us at LLS are so grateful for you—all year long.
Michael
In 1995, Michael’s daughter Carley was diagnosed with acute myeloid leukemia (AML), M-7 – a rare form of blood cancer – at just two and a half years old. For the following year, Michael and his wife, Liz, practically lived at Rady Children’s Hospital in San Diego while Carley underwent heavy chemotherapy treatment.
Fely
Hello, my name is Fely Agustin, I am 38 years old and a mother to two teenagers. One is going to be a freshman in college and another a freshman in high school. I am married to a wonderful husband of almost 17 years. I was diagnosed on May 6, 2015 with Waldenstrom Macroglobulinemia (WM).
Chris
When I started this journey six years ago, I never would have imagined I would take part in TEN Team In Training events, but losing a great friend can motivate you to do incredible things.
Tuesday
Well, it all started when I felt sick all the time, not knowing what was going on with me, and the doctors couldn't figure it out either, so they would give me pain medicine and other medicines for pain. I had backaches all the time, symptoms of pregnancy and not pregnant, and I was feeling tired and fatigued all the time. I was living day-to-day, not knowing the whole time I really was sick on the inside.
Shirley
The Boston Marathon marked my 33rd fundraiser for The Leukemia & Lymphoma Society (LLS), the 27th race with Team In Training (TNT), and the 6th Abbott World Marathon Major. With the support of amazing friends, teammates, and colleagues, I reached a lifelong goal—raising over $126,200 for LLS personally and over $1.6 million with the incredible teams I’ve been part of throughout the years, such as Team Child and Dynamite Runners.Inspired by my best friend, Christy, who donated her bone marrow to save her sister's life, I joined LLS as an intern in 2017.
Leukemia vs. lymphoma: What you need to know
Table of contents
Myeloproliferative Neoplasms 3D Model
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Ethan
Ethan was a typical 3-year-old boy before his diagnosis of B-cell acute lymphoblastic leukemia (ALL). Being a typical boy, he would have occasional bruises on his arms or legs from rough playing with his brother. Approximately one month before Ethan's diagnosis, he was noted to have more bruising than normal on his extremities. Two weeks prior, he was also noted to have a limp. He did incur a fall while walking his bicycle around this time, so the symptom was brushed off. However, he continued to have increased bruising, now appearing on his trunk.
Tiffany
I was first diagnosed in July 2015. The doctors in Joplin kept saying I had strep (which I did, at first) and it never got better. Appointments after appointments and I kept getting this. Despite the several medicines they had me on, I was still not feeling good. Nothing helped. Finally my friend forced me to go back to the hospital, where I had been four days later, and I was FINALLY diagnosed with acute myeloid leukemia (AML). Unfortunately, they did not have any doctors to treat it there.
Casey
It was in May, 2014 that 24-year-old Casey Moore began experiencing her first symptoms of chronic myeloid leukemia (CML). For a week straight, Casey had been vomiting every day and was losing a significant amount of weight. This was unusual, as prior to her symptoms, she considered herself a happy, healthy woman focused on her relationship and career. At the time, she was living with her boyfriend and working full time in a chiropractic office -- with no apparent signs of an illness.
Lynette
It all started with a race... I began running back in 2011 with the sole purpose of losing weight. I joined a running group and became interested in races, specifically the Nike Women's Half Marathon.
Makenzie
My daughter Makenzie was diagnosed with chronic myeloid leukemia (CML) in January 2013, when she was just four years old. She had no signs or symptoms of leukemia. One day, Makenzie had a sore throat and we made an appointment with her pediatrician. Turns out she did have strep throat, but an exam also revealed her spleen was very enlarged. At that point, her pediatrician did bloodwork and learned that Makenzie's white cell count was through the roof. We were sent to Texas Children’s Hospital where later that evening she was diagnosed with CML.
Alyssa
In March 2017, after not feeling well for over a year, Alyssa was diagnosed with histiocytosis disease. Even though she wasn’t feeling her best, she graduated that year with National Honor Society honors and received a scholarship from Valparasio University. She was excited to go to college and fulfill her dream of going into the medical field. But her plans changed when she developed a high fever while on family vacation that summer.
Alayna
September 8, 2021: I didn’t know it at the time, but the mass I found in my neck the night before I started my senior year of high school would forever change my life.
Sofia
My name is Janaye, and I am the mother of Sofia, age 4. Her father's name is Gary. On September 1, 2023, Sofia was diagnosed with pre-B-cell acute lymphoblastic leukemia (pre-B-ALL). She was three. Today, I will share the story of her diagnosis and our journey thus far.
Sue
It’s 2015 and I am doing my happy dance! It’s been 20 years since my bone marrow transplant for my chronic myeloid leukemia (CML) and I am still here enjoying what life brings my way.
Lindsey
On Monday, February 8, I found out that I was pregnant. It was very early, but there it was two lines. On Wednesday, February 10, I told my parents and mother-in-law, and we were all so excited, so excited that on Saturday, just for fun, we went to BuyBuy Baby. On Sunday, February 14, I went to a nice Valentine’s dinner with Ethan, and when we got home, I noticed a tiny drop of blood on my underwear. By Tuesday, I called the doctor because I was still spotting, but everything else was fine, and it wasn’t a lot.
Eva
In 2014, as a 19-year-old sophomore in college, I was diagnosed with Hodgkin lymphoma (HL). After two years of suffering from a mystery illness, I finally had answers; my itchy feet, night sweats, frequent infections, and shooting pain all snapped into place with a cancer diagnosis. I called all of my closest friends and packed my bags. I’d moved 3,000 miles for college, and traveled all the way back home — Los Angeles to Boston — for treatment. Next up would be six months of ABVD chemotherapy, known to be very effective and very unpleasant.
Lorena
My journey began in early 2021 when I discovered some swelling in my left inguinal area. At the time, I did not think much of it but still was told by my primary to see a surgeon, which I did. I saw a surgeon who told me it was a swollen lymph node and that it would go away within a few months. After about six months, I still had the swelling, and it had started to bother me. I saw a second surgeon in mid-2022 who suggested I have it removed, so I did. I went for surgery in late August 2023, and on September 12, 2023, I was told that I had stage 2 non-Hodgkin follicular lymphoma (FL).
Nevaeh
Nevaeh was diagnosed with acute myeloid leukemia (AML+MLLr)+CNS chloromas on February 2, 2022, at 12 months old. Nevaeh first showed symptoms of high fevers, no appetite, and little to no energy. After a trip to the ER, a few tests, and x-rays, I was told Nevaeh had COVID and pneumonia. She was discharged with instructions to go back if her symptoms worsened. The following morning, Nevaeh’s health was declining. I called 911, and she was rushed to the ER and admitted to the pediatric unit.
Jaimie Potvin
Finding cures for cancer is especially close to my heart. In 2011, my brother, Cory was diagnosed with large B-cell lymphoma. Our dad was already a two-time survivor of non-Hodgkin lymphoma, so we truly believed he would survive blood cancer too. When his treatment showed no signs of improvement, it was devastating. Cory died six years ago and I still miss him so much every single day.