Search Results
Jaden
After having swollen lymph nodes for some time, my nine-year-old son, Jaden was diagnosed with lymphoma in May 2016. This little guy took the news like a champ.
He was admitted as an inpatient for eight days, and is now receiving outpatient chemotherapy. He is fighting cancer better than most adults and teaching everyone around us what it really means to be hopeful, faithful, brave, courageous and grateful.
Jordyn
In September 2013, our six-year-old daughter, Jordyn was diagnosed with T-cell lymphoblastic lymphoma— a diagnosis no parent ever wants to hear. Within a day of diagnosis, she already started chemotherapy. Numerous lumbar punctures and blood transfusions soon followed. Our life had changed in an instant.
Jordyn persevered through the hair loss, many overnight stays at the hospital, and frequent doctor visits for more than two years. Jordyn is our hero of strength. She has always kept a positive attitude during this battle— she calls it her fight with "Blob".
Kelly
In 2001, I was diagnosed with T-cell acute lymphoblastic leukemia (T-ALL) at age three and survived thanks to three and a half years of intense treatment at the City of Hope Los Angeles. I am now 25 years old, a college graduate, and working for The Leukemia & Lymphoma Society (LLS), hoping to give back to those who helped save my life. I have volunteered with LLS since 2009 after being chosen as their "Girl of the Year" to inspire candidates to raise money for blood cancer research. In 2017, I became a candidate for the Student of the Year campaign raising over $60,000 in seven weeks.
Lana
Lana's journey with The Leukemia & Lymphoma Society (LLS) began in 1991 when she was diagnosed with acute lymphoblastic leukemia (ALL). Overcoming numerous physical and cognitive challenges associated with her illness, Lana emerged as a dedicated advocate for cancer awareness and support. She became an integral part of the Orange County LLS community, participating in various programs such as Honored Hero, Light The Night, and So Cal Cancer Connection, among others.
Megan
At 31, I was diagnosed with acute myeloid leukemia (AML). It all started with what I thought was a cold or maybe COVID. I kept working, brushing off the symptoms as something minor. But things got worse. I had a persistent cough and unexplained bruises, and I felt constantly out of breath. When I lost part of the vision in my right eye, I knew something was seriously wrong, but without insurance, I hesitated to seek help.
Fertility
“Fertility” describes the ability to conceive a biological child. Human reproduction requires three elements: mature sperm, mature eggs and a person with a uterus to carry the pregnancy and give birth. Some cancers and some cancer treatments affect fertility.
Follow-Up Care
Find more information about follow-up care, including what to expect, long-term and late effects of treatment, survivorship clinics, and other resources, such as The National Comprehensive Cancer Network (NCCN) treatment guidelines.
Relapsed and Refractory
Some patients' cancer returns after a successful course of treatment. This is called a relapse.
Some patients' cancer does not respond to treatment. This is called refractory chronic myelomonocytic leukemia (CMML).
If you have relapsed or refractory CMML, talk with your doctor about whether taking part in a clinical trial may be a good option for you.
Eva
In 2014, as a 19-year-old sophomore in college, I was diagnosed with Hodgkin lymphoma (HL). After two years of suffering from a mystery illness, I finally had answers; my itchy feet, night sweats, frequent infections, and shooting pain all snapped into place with a cancer diagnosis. I called all of my closest friends and packed my bags. I’d moved 3,000 miles for college, and traveled all the way back home — Los Angeles to Boston — for treatment. Next up would be six months of ABVD chemotherapy, known to be very effective and very unpleasant.
Randall
I am a 36-year survivor of non-Hodgkin lymphoma (NHL). In 1987, I went through six months of chemo, had one month off, then went through 25 straight days of radiation. It is an amazing story, one which I may write about when I retire in about 12-16 months.
My son wasn't even two yet when I started treatments. Today he is 38 and has the two cutest, little girls a “Poppop” could ask for. After the chemo, they told me there was a 70% chance I'd be sterile from the treatment. We found out my wife was pregnant in December 1989. My daughter was born in August 1990.
Cristina
My story begins in October of 2018. I had recently graduated from college, moved away from home for the first time, settled into my own apartment, and started a full-time job. I felt like I was on the verge of greatness with all of these new and exciting beginnings in my life. I didn't know that I was about to have another massive beginning... the beginning of my battle with Hodgkin's Lymphoma. I was sitting at a cancer fundraiser dinner, anxiously twirling the spaghetti on my plate. I had a gut wrenching feeling in my chest that something was wrong.
Alison
My story began in the summer of 2012. My cancer-fighting hero, who happens to be my father in law, Dave Warner, was diagnosed that July. Not only is he my father in law, but I call him Dad, because that is exactly what he is. In June 2012, Dad started to notice a large lymph node that was swollen in his groin. My immediate reaction was “Go to the doctor and get antibiotics. I'm sure it's just an infected lymph node that amoxicillin can clear up! Right??” Wrong. Never did I expect the next step to be a biopsy to see if it was cance
Lisa
As a new graduate with a master’s degree in psychology, I, among many others, am applying to jobs out in the 'real world.' Recently, one of the job applications asked me to describe myself in three words. My answer consisted of adjectives such as determined, capable and diligent. The one word that best describes me though is one I did not say, and that is survivor.
Emad
After six weeks of experiencing excruciating pain, I was diagnosed with enlarged B-cell stage 4 gastric lymphoma in July 2016. My oncologist in Tarzana, CA was connected to a lead doctor in City of Hope and that COH doctor advised her to send my biopsy for further testing to see if it was double mutated. The test results came positive and my cancer cells had double mutated. This meant that my body would’ve not responded to regular chemotherapy of one day every three weeks.
Cathy
I had blood cancer and for that, I’m lucky. I’m not being facetious, I really believe I’m lucky. The doctors told me that Stage 2 Hodgkin lymphoma (HL) is highly treatable and this is the cancer to have if you’re going to get cancer. But that’s not the only reason why I’m lucky. The very first philanthropic effort that I did with my BFF was when we were 17 years old and allowed to donate blood. This is one of the first times I realized I was lucky. By giving blood I could give the gift of life. It’s something I also had in common with my husband who is an avid blood donor.
Janet
My caregiver journey began in 2005, when my husband found a lump on his neck and was diagnosed with a rare form of non-Hodgkin lymphoma. After being admitted to the hospital for nine rounds of chemotherapy, he went into remission.
Jeff & Melanie
My wife, Melanie and I had always been pretty healthy. We exercised, tried to eat right and discovered the value of meditation. But things changed in 2018.
Melanie had developed a cough that just wouldn't go away. She had it for months. And then she discovered a lump near her collarbone. Tests revealed on Sept. 6, 2018, that the lump was Hodgkin lymphoma and it was present in several other lymph nodes. She began a months-long treatment regimen of chemotherapy and radiation. It wasn't easy.
Follow-Up Care
Click here for information about follow-up care, including what to expect, long-term and late effects of treatment, survivorship clinics, and other resources such as The National Comprehensive Cancer Network (NCCN) treatment guidelines.
Use the Survivorship Workbook to collect all the important information you need throughout diagnosis, treatment, follow-up care and long-term management of a blood cancer.
Follow-Up Care
Click here for information about follow-up care, including what to expect, long-term and late effects of treatment, survivorship clinics, and other resources such as The National Comprehensive Cancer Network (NCCN) treatment guidelines.
Use the Survivorship Workbook to collect all the important information you need throughout diagnosis, treatment, follow-up care and long-term management of a blood cancer.
Treatment Outcomes
In some people with PV, the disease remains stable for many years. In many people, life expectancy is the same as it would be if they did not have PV. With careful medical supervision and therapy, PV can usually be managed effectively for a long time. In some cases, however, it may progress to another type of blood disease, such as myelofibrosis or acute myeloid leukemia.
Treatment Outcomes
A few decades ago, there were very low cure rates in both children and adults diagnosed with ALL. Today, childhood ALL has one of the highest cure rates of all childhood cancers, approaching 92 percent for children younger than 15 years and more than 94 percent for children younger than 5 years.
Joshua
My name is Joshua. I was born and raised in South Florida and moved to Oregon after high school 8 years ago. I can’t say that I had a difficult childhood growing up just difficult circumstances that were challenges to overcome. I am what most people would consider an introverted type of personality, and while I was raised in a home with very caring parents and sisters, I’ve just always found it difficult to fit in, especially once I got to high school. I’m tall, at almost 6 feet, and very smart, always in advanced placement classes.
Disease- and Treatment-Related Pain
People with cancer can have pain caused by the cancer itself, its treatment, or both. They may also have pain caused by other health problems that are unrelated to cancer (like arthritis or diabetes).
Increased pain does not mean that the cancer is getting worse, but you should always tell your healthcare team if you have increased pain.
It’s important to remember that no matter what the cause, pain can be treated.
Other Disease Studies
Another type of study that blood cancer patients and their relatives can participate in is a nontherapeutic study. Nontherapeutic studies aren't considered clinical trials because they don't involve the study of new diagnostics or treatments for diseases. Instead, they're developed to gain a better understanding of disease-incidence patterns or the consequences of specific treatments for a specific disease.
In all cases, you should be asked to sign a consent form that defines the study's purpose and what's expected from the participants.
Follow-Up Care
Click here for information about follow-up care, including what to expect, long-term and late effects of treatment, survivorship clinics, and other resources such as The National Comprehensive Cancer Network (NCCN) treatment guidelines.
Use the Survivorship Workbook to collect all the important information you need throughout diagnosis, treatment, follow-up care and long-term management of a blood cancer.