Amy

Amy
non-sclerotic Hodgkin lymphoma (NSHL)It was July 2014, I got up and went for a quick morning jog before work. It’s Iowa, it was hot and humid, but I was unusually winded after that jog.
It was July 2014, I got up and went for a quick morning jog before work. It’s Iowa, it was hot and humid, but I was unusually winded after that jog.
I was diagnosed with stage 4 mantle cell lymphoma (MCL) in December 2020, but at the time, it was considered to be "indolent." That quickly changed in late February 2021 when I experienced intussusception, a painful telescoping of the bowel into itself requiring hospitalization.
I was diagnosed with Burkitt lymphoma (BL) when I was 21 years old. It was the summer going into my senior year of college, and I had just returned home from a semester abroad.
My world started to turn upside down in January of 2019 after starting to exercise and trying to lose weight. At first, I thought I had pulled a muscle in my leg. The cramping continued to increase and turned into radiating bone pain. I went to get an x-ray to make sure nothing was broken.
I was diagnosed with stage 4 non-Hodgkin lymphoma (NHL) in January 2018. I was lucky enough to get into City of Hope which is about 25 minutes from my house. I received all my treatment there. The first treatment was R-CHOP chemotherapy which required me to be in the hospital three to five days every three weeks for six months.
As a lymphoma survivor, I want to take a moment to share my personal journey, as well as tell you all how The Leukemia and Lymphoma Society (LLS) was with me every step of the way.
I have a rare blood cancer. It is Waldenstrom macroglobulinemia (WM), a type of non-Hodgkin lymphoma (NHL), but some doctors say it has the same characteristics as POEMS syndrome.
It all started with what I thought was an injury to my right hip from "banana boating" while on a family vacation in Myrtle Beach in 2006. The pain wouldn't leave, so I went through physical therapy with moderate success.
I'm here and going strong, drumming in a rock band six+ years after my stage 4 mantle cell lymphoma (MCL) diagnosis. At that time, I chose to enter a clinical trial, and I started treatment as soon as possible.
I was first diagnosed with non-Hodgkin lymphoma (NHL) in my 20’s. I had a three-year-old daughter and a husband. I went through six months of chemo and continued working full-time as a nurse in homecare the whole time. I was told that if I was to have a reoccurrence, it would come back as leukemia within 10 years. I harvested my bone marrow after chemo and saved it for the 10-year time frame.