Population served: People affected by a cancer internationally; programs and services offered to patients and caregivers residing in the United States
Other language(s): Spanish, Chinese, Korean, VietnameseMission:
In the U.S., ACS is a community-based voluntary health organization dedicated to eliminating cancer as a major health problem.
- Provides educational materials both online and in print about cancer, including blood cancers, as well as related information on topics such as diet, exercise, complementary and alternative medicine, and disease statistics
- Offers support services via online discussion boards and in-person support groups through local chapters
- Cancer Survivors NetworkSM, a global online community, transcends geographic boundaries and builds bonds among cancer survivors and caregivers through shared experiences and feelings
- Road to Recovery, a program offered locally by some chapters, has volunteer drivers who transport patients to and from treatment appointments
- Hope Lodges are temporary housing accommodations for patients traveling far from home for treatment. There are more than 30 lodges
- American Cancer Society’s Wig Bank - Provides free wigs from limited supply to needy patients suffering hair loss due to cancer treatment. Intended for those with insufficient insurance coverage for cranial prostheses (wigs).
Population served: People with blood cancer (and lung or head & neck cancer), caregivers, health professionals
To provide expert-mediated information on current and emerging cancer management options in order to empower patients, caregivers, and health professionals to become direct partners in cancer care.
- Offers cancer information and video library, podcasts, email newsletter and online discussion forums.
Population served: Anyone needing information on myeloma, including patients, caregivers and health professionals
Other language(s): Spanish, French, German, Italian, Russian, Japanese, Turkish, Portuguese, Korean, Polish, Greek, Hebrew, Czech, Arabic, Norwegian, Danish, Dutch, Hindi, Afrikaans, Farsi, Armenian, HungarianMission:
To improve the quality of life of myeloma patients and their families.
- Offers disease and treatment information via toll free number and publications
- Makes referrals to support groups and hosts an on-line support group
- Offers seminars, workshops and webcasts
- Provides Veterans Against Myeloma (VAM), a resource for patients who have served in the military and developed myeloma through their service
- IMF Advocacy group helps guide individuals to advocate for critical health issues that affect the myeloma community.
Population served: Patients with myeloma, caregivers, professionals, researchers
To pursue innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure.
- Provides disease and treatment information including clinical trials
- Offers patient and professional educational programs and publications
- Funds multiple myeloma research.
Population served: Patients with myeloma and caregivers
Other language(s): SpanishMission:
To empower patients each step of their disease journey – from diagnosis, through education, care and on to a cure.
- Myeloma Crowd is a division of The CrowdCare Foundation, a patient-driven nonprofit organization. It provides online disease, treatment, clinical trial and research information, telephone/web education, articles, e-newsletter, videos, monthly meet-ups, and Facebook groups. The website lists financial resources and myeloma specialists. It also offers HealthTree, a patient-powered software tool to manage disease-related information such as medical history, test results and more.
Population served: People with cancer and their caregivers in the U.S.
Other language(s): SpanishMission:
To provide accurate, up-to-date, and reliable information on cancer that is easy to understand; this confidential service is a federally funded cancer education program.
- Offers trained information specialists who can answer cancer-related questions on a range of cancer topics, including the most recent advances in cancer treatment.
Population served: Patients and caregivers
Other language(s): French, SpanishMission:
To provide cancer patients with the resources and information needed to live well with cancer.
- Provides an online portal of cancer information in a library of programs, organized into ‘health centers’. Information from medical conferences as well as interviews featuring top medical experts are continually added to the site.