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Donna John

Donna

The year 2021 was quite a year for us. It was the year of cancer. No one ever really prepares themselves for the diagnosis of cancer, and when you're told you have it, the emotional roller coaster you are about to embark on cannot ever be fully described in words. The fear, the exhaustion, the financial burden, the feeling of helplessness you experience is completely terrifying. In the year 2021, we started the fight of all fights, the fight to save my husband's life. This is our story of cancer. Our story of love, life, hope, and healing.

middle aged white man wearing glasses and a hospital gown sitting on a hospital bed with his son and two daughers

Lori

When my husband Ken was first diagnosed and treated for AML it felt like we were trapped in a fierce storm and being tossed about in a fury of wind. My husband Ken was diagnosed with AML (acute myeloid leukemia) and received intense treatment, spending a total of 120 days in the hospital in 2019, culminating in a bone marrow transplant (BMT). We are so grateful that his only sibling was a viable match as many patients struggle for years searching for a donor.

Doctor in white lab coat looking at tablet with patient

What Is Blood Cancer?

Reviewed by Gwen Nichols, MD, EVP and Chief Medical Officer at The Leukemia & Lymphoma Society

Young man in black t-shirt with leukemia in a hospital bed with a medical professional standing next to him wearing a mask

Matt

I’ve lived a mostly normal 27 years on this earth. A life filled with wonderful academics, Division 1 athletics (pole vault), financial internships, and fantastic sales roles at companies I really enjoyed.

However, my life changed drastically on February 28th, 2023.

In the middle of the night on that Tuesday, I was woken up by a call from an unknown number. I let it ring through… maybe it was spam? Then they called again.

Targeting Epigenetics in Myeloid Malignancies

We have a highly collaborative team of investigators, whose goal is to develop novel therapeutic approaches to MDS and AML as well as to improve current therapies for these diseases based on a detailed understanding of how epigenetic dysregulation contributes to myeloid neoplasia. We are focusing on the clonal MDS or AML cell and on the bone marrow microenvironment (BMME), including immune cells that could contribute to or limit the progression of these disorders.

Understanding Blood Cancers and Treatment Options

Leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDSs) and myeloproliferative neoplasms (MPNs) are types of cancer that can affect the bone marrow, blood cells, lymph nodes and other parts of the lymphatic system. See the Disease Information pages to learn more about the different types of blood cancer.

Communicating as a Caregiver

Communicating With the Patient

You and your loved one will need to be open and honest with each other from the start. Remember that you are both on the same team and hope for the best outcome. At some point, you will likely have disagreements and maybe even fight, but making it a priority to keep the lines of communication open and setting boundaries and expectations early on will make things easier.