Search Results
Lisa
On my ex-husband's 40th birthday, I asked him to take me to the hospital. I'd had elective surgery a week prior, and I knew something was terribly wrong. I felt awful, it hurt to breathe. In emergency, we learned I had acute myeloid leukemia (AML) and bilateral pneumonia. A triple lumen was put in so I could receive antibiotics, blood transfusions, and chemo at the same time. I wasn't expected to make it through the weekend, and my entire family traveled to Dallas to be with me. Through a series of events, I was fortunate to be cared for by Dr.
Hailey
My mother and I being diagnosed with stage II Hodgkin lymphoma (HL) only six weeks apart from each other was not what I anticipated receiving for my 16th birthday. Braces, being my homeroom representative, volleyball tryouts, and getting my driver's license are the things I thought I would be navigating at this time. Instead, I spent my 16th year in pediatric oncology, receiving treatment at the same time my mom was receiving care in adult oncology.
Kerry
I’m a 26-year-old woman who never expected my life to change so dramatically. I was living what felt like an ordinary life — working at a school, spending time with friends, and keeping up with my daily routines. But things took an unexpected turn when I started experiencing night sweats. At first, I dismissed it as a cold or something minor, especially since I worked around kids who were always bringing home new germs. However, when the night sweats continued, I became frustrated. I began researching the cause and read that swollen lymph nodes could be a sign of something serious.
Maggie
When I was 8 years old, I was diagnosed with T-cell acute lymphoblastic leukemia (T-ALL). I shocked the doctors with how I was still alive because I had a mass the size of a grapefruit on my lungs and masses all over my other vital organs. When I was admitted to the hospital, they got chemo going everywhere they possibly could ― in my port, my arm, my foot. I was then put into a medically induced coma for about two weeks before waking up. After a while in the ICU, I was sent down to the main floor for hematology/oncology.
Stephanie and Amy
Stephanie: My journey with blood cancer began long before my diagnosis. In 2006, my world was shattered when my mom, just 52 years old, was diagnosed with acute myeloid leukemia (AML). She was quickly isolated in a specialized hospital, enduring grueling rounds of chemotherapy. I was about to start nursing school and desperately tried to educate myself on her illness, knowing deep down that the prognosis was grim. They mentioned a bone marrow transplant, but she never made it that far. A fungal pneumonia took her from us in December 2006.
Be Your Child’s Advocate
Parents may need to educate other family members, friends, school personnel and healthcare providers about long-term and late effects. Here are some steps parents can take:
Options for Sperm Preservation
You may be able to take certain steps and precautions to preserve fertility before, during and after treatment.
Chemotherapy and Drug Therapy
The main treatment for active myeloma is systemic drug therapy (meaning the drugs travel through the bloodstream to kill malignant cells). The initial therapy, or “induction therapy,” for myeloma usually includes a combination of targeted agents and/or standard chemotherapy. This therapy is often followed by stem cell transplantation in eligible patients.
Common drugs combinations for people with newly diagnosed myeloma include:
Treatment Outcomes
With the current advances in treatment and supportive care, survival rates for myeloma patients have improved significantly in the last decades. It is not unusual for myeloma patients to live for 10 years or longer after diagnosis. Outcomes are influenced by a series of patient-specific factors, including disease stage, chromosome abnormalities, age and presence of other medical problems. Patients should discuss their own potential outcomes with their doctors.
Click here to access myeloma survival statistics.
Thomas
My name is Thomas, and I was diagnosed with stage 2 Hodgkin lymphoma (HL) two weeks after my 30th birthday. Nobody wants to hear the words, "You have cancer," and even though my wife had some suspicions due to my recent weight loss and lower energy levels, it still came as a shock to both of us. The news hit hard, especially since all other aspects of my life were going extremely well. My wife and I had just moved to a new state earlier in the year, I received a promotion at work, we had just returned from a business trip out of state, and overall, things seemed to be going our way.
Zach
It was 2020, and besides the obvious chaos in the world, at that time my life was going great. My business was thriving, I had just gotten engaged, and my fiancée and I were beginning to talk about starting a family. I was at what felt like the peak of my life. Everything was going my way, or so I thought.
Tricia
My name is Tricia, and I am a two-time cancer survivor. In 2017, at the age of 27, I got a positive pregnancy test. We were elated! We already had a three-year-old daughter and couldn't wait to expand our family. I made an appointment with my OB-GYN to confirm the pregnancy and get a due date when she found a lump on my thyroid. I was constantly assured it would be nothing. Unfortunately, after a biopsy, it was confirmed to be thyroid cancer. I underwent surgery to remove half of my thyroid that had the tumor. It was very scary going under the knife since I was pregnant at the time.
Sonny
I never thought that one day I would be sharing a story like this, a story of resilience, survival, and transformation. Only a few years ago, I was living a life that many would consider a dream. I had just purchased my first home and was at the prime of my health. Then, in a single instance, everything changed when I was diagnosed with acute myeloid leukemia (AML).
Heidi
My story starts a year before I was officially diagnosed. For months, I had been having GI issues, severe stomach pain, unexplained weight loss, and unexplained anemia. I was seeing the nurse practitioner (NP) at my primary care provider’s (PCP) office who kept prescribing antacids and attributed my symptoms to anxiety. It wasn't until a full year after my symptoms began that I went to a different NP at that office for swelling in my neck that had originally been dismissed as a muscle strain. She didn't like what she saw and immediately sent me for a CT scan.
Steve
I was diagnosed with non-Hodgkin lymphoma (NHL) after moving from New Orleans to San Antonio, Texas. What started as a routine visit to an allergist for swelling in my cheeks, eyes, and neck turned into a life-changing moment when a CT scan revealed the unthinkable. In that devastating instant when my doctor delivered the news, I discovered that sometimes life's darkest moments can lead you to exactly where you need to be. The people of San Antonio didn't just welcome me ― they embraced me, making their city my sanctuary.
Todd
In July of 2017, I had what I thought was a lingering summer cold. After several days of feeling terribly fatigued, I started noticing my gums were tender and bleeding. I also noticed red spots appearing across my face and chest. That's when I went to my primary care doctor and he advised me to go to the emergency room. The look on his face told me he suspected something serious. At the ER, I had a complete blood count workup, and soon after the attending doctors confirmed that I had acute myeloid leukemia.
Steve
In June of 2016, I went to my primary care physician for a routine physical. Lab work revealed an abnormally low white blood cell count, triggering a bone marrow biopsy that found acute myeloid leukemia. In 48 hours, I went from feeling perfectly fine to a week-long, 24/7, chemotherapy cocktail. That was followed by four more weeks in the hospital to treat the inevitable infections and side effects of chemotherapy induced immunosuppression. I quickly learned that the rest of life doesn’t stop just because we’re sick.
Tina
As a lymphoma survivor, I want to take a moment to share my personal journey, as well as tell you all how The Leukemia and Lymphoma Society (LLS) was with me every step of the way.
It all started in March 2018. We had been living in the UK with our two young daughters, and life was good! I had been feeling tired and had this hollow sound behind my ear. I saw doctors in both the UK and the U.S. who assured me it was most likely just my body trying to get over a sinus infection.
Nikki
I was diagnosed with Hodgkin lymphoma (HL) about a month and a half ago at the age of 26. This was my first year out of nursing school; I had just landed my dream job, and I was in the midst of planning my wedding. This was supposed to be “my year” to enjoy my 20s finally. Getting diagnosed was a huge shock to me, my friends, and my family. I will be transparent and say the hardest part so far is navigating the financial hardships.
Talking About Cancer
Telling people about your diagnosis is a very personal decision. Some people with cancer choose to tell only close family. Others find it helps to let more people know about their diagnosis. Take some time to consider what and how much you would like to share about your diagnosis and how you want to share this information. By letting friends and family know about your diagnosis, you give them the chance to offer their support.
Here are some tips and things to keep in mind when telling someone about your diagnosis:
Jimmy
My journey with The Leukemia & Lymphoma Society (LLS) began in the summer of 2020. My 17-year-old, two-sport athlete son Jimmy came to me complaining that he had pulled a muscle in his neck lifting weights for football and baseball. However, after many doctors’ appointments and tests, on June 12, 2020, in the middle of a pandemic, I received a call that his biopsy was indeed cancer, stage 3 advanced Hodgkin lymphoma (HL). I now had to tell my 17-year-old son that his worst fear was now a reality.
Elisa
I was diagnosed with stage IV Hodgkin lymphoma (HL) in April 2022 at 27 years old. After months of debilitating symptoms and a week-long hospital stay, I finally had an answer as to what was going on with my body. I was relieved to have an answer, but "cancer" was the last thing I expected. Ironically, after my diagnosis and first chemotherapy infusion, I felt better than I had in months. I didn't feel like I had cancer; the only reminders were a few enlarged lymph nodes and the mediport protruding from the right side of my chest.
Rylie
My name is Rylie York, I am 20 years old and I'm currently a sophomore at Baylor University. I'm originally from Round Rock, Texas and I am a patient at Texas Children's Hospital in Houston, Texas. I was diagnosed with stage 4 Hodgkin’s lymphoma at 18 in the middle of my senior year of high school. I have relapsed twice since then and completed my bone marrow transplant this past August and September.
Paul & Lynn
In 2017, after 44 years of working in the railroad industry, Paul Sauter was just starting to enjoy his retirement, when his health started to decline out of nowhere. Typically, he was in extremely good shape and enjoyed long hikes with his wife, Lynn. One day, while on a mountain climb trip in Arizona, Lynn was concerned when she noticed Paul was not his usual athletic self. When he was unable to get out of bed because of severe back pain, she knew something wasn’t right.
Will
I am a cancer mom. I WAS a cancer mom. My youngest son, Will, was diagnosed with Hodgkin lymphoma (HL) at age 19 in April of 2019. He, his dad, and I were beyond shocked when we heard the news that the swollen lymph nodes that came up out of the blue one March morning were indeed HL. We didn't really know anybody personally that had it. We didn't know what exactly all the words meant at that moment in time, but we knew it wasn't what we had planned for our youngest son.