Search Results
Essential Thrombocythemia
Essential Thrombocythemia (ET)- Is a rare blood disease in which the bone marrow produces too many platelets. High numbers of platelets may lead to a thrombus, a blood clot that forms in a blood vessel.
Todd
This cause is dear to me because my grandmother, Anne Zavorskas, passed away several years ago from Hodgkin’s disease--a form of leukemia. Also, many years ago, my mentor’s son, Ryan Hurley, had a recurrence of leukemia, which he was first diagnosed with at the age of three. He died at the age of 19. Unfortunately, leukemia at the time caused more deaths than any other cancer in children under the age of 20. These instances led me to my desire to donate time and money to this particular charity. I have volunteered my time and fundraising expertise ever since.
Krista
Where do I begin? I am a 2x acute myeloid leukemia (AML) survivor with being diagnosed for the first time in 2008 at the age of 38. My family and I received amazing support through The Leukemia and Lymphoma Society (LLS) both emotionally and financially with the co-pay program, webinars, and information guides.
Allison
I was diagnosed with cancer at the age of 27 with non-Hodgkin lymphoma (NHL). I was a healthy 27-year-old who went to college playing golf and lacrosse. We found the tumor right by my heart, which was inoperable, so the chemo had to work. My husband and I moved back to Cincinnati to get treated at Cincinnati Children’s Hospital.
Rachel
Rachel was diagnosed with stage 4B Hodgkin lymphoma in February 2015. She was 26 years old. The moment when her oncologist first spoke the words “you have cancer” were surreal to her. She looked to her parents who exchanged the same look of disbelief and shock, then quickly looked away before fear and sadness settled across their faces. Her mind started to race, “How am I stage 4? I don’t feel that sick. This has to be a mistake, where did this even come from? What happens now?”
Patience
We were clobbered, like every patient, every family, who gets clobbered with a life-threatening diagnosis.
Michael
My story is not so unlike many others. In May 2005, just two months after I retired, I was looking forward to the start of a terrific period of my life spending time with my family, traveling, relaxation and golf That's when I got that dreaded call: “Mr. Blackman, you need to come into my office. We need to talk.”
Lauren
At the age of 33, I was diagnosed with acute myeloid leukemia (AML). I immediately started undergoing treatment which initially consisted of intense induction chemotherapy followed by consolidation chemotherapy and then a haploidentical stem cell transplant. My 64-year-old father was my only donor option as I did not have any matches on the national registry. My two sisters were less than half matches, and my mother’s history of having had a stem cell transplant herself precluded her from donating.
Graham
In the fall of 2008 my wife and I got married. Shortly after returning from our honeymoon, I began developing pains and weakness in my joints. This continued through the holidays and I sought medical attention when the pain in my shoulders and hips became unbearable. After inconclusive X-rays and unsuccessful Cortisone shots, I began developing a pain in my abdomen around Christmas. The joint pains I wrote off as working out too hard and the abdomen pain I concluded was an ulcer.
Patrick
It was November 2023. The doctor looked at me and said, “Mr. Reese, I’m terribly sorry to have to tell you this, but the leukemia has relapsed again. Combined with the graft-versus-host disease (GVHD) that is currently raging, we no longer have options for treatment. Our suggestion is that you start comfort care through hospice.”
Holly
I noticed a bulge on my lower abdomen in December 2022. I had a negative ultrasound and CT. What was initially believed to possibly be a lipoma (benign tumor of fat) was later biopsied, and by May 2023, I was diagnosed with subcutaneous panniculitis-like T-cell lymphoma (SPTCL). It was a rare form of cutaneous lymphoma. I was young, active, and healthy, so I thought.
Pam
Pam Katten died on September 24, 2002 after a year-long battle with acute myeloid leukemia (AML).
Hospice Care
Hospice is about improving the quality of the death experience for patients, families and caregivers. The philosophy of the hospice model is to provide compassionate, quality care for people facing terminal illness. This is accomplished with an interdisciplinary team approach so the best medical care, pain control and emotional and spiritual support can be tailored to the individual needs of each patient and family.
Disease Complications
In medicine, a complication is a medical problem that occurs during the course of a disease or after a procedure or treatment. Possible complications of ET include:
Keisha
In 2017, I was diagnosed with a rare and chronic form of non-Hodgkin lymphoma (NHL). I was beyond devastated as I knew there was no cure for my condition, and I also knew my life would be altered in many ways. I was also finishing my last semester in graduate school and almost gave up my dream of graduating. But with the support of my family, school, physicians, and The Leukemia & Lymphoma Society (LLS), I persisted and received my Master of Education in 2018.
Tom
Hello Friends — this is my leukemia journey, For those of you who don’t know me, my entire 38-year teaching career was spent with 9-12 year olds. I’ve always relished the authenticity and passion of this age group and that led me to a very satisfying and rewarding chapter in my life.
Makenzie
My daughter Makenzie was diagnosed with chronic myeloid leukemia (CML) in January 2013, when she was just four years old. She had no signs or symptoms of leukemia. One day, Makenzie had a sore throat and we made an appointment with her pediatrician. Turns out she did have strep throat, but an exam also revealed her spleen was very enlarged. At that point, her pediatrician did bloodwork and learned that Makenzie's white cell count was through the roof. We were sent to Texas Children’s Hospital where later that evening she was diagnosed with CML.
Alyssa
In March 2017, after not feeling well for over a year, Alyssa was diagnosed with histiocytosis disease. Even though she wasn’t feeling her best, she graduated that year with National Honor Society honors and received a scholarship from Valparasio University. She was excited to go to college and fulfill her dream of going into the medical field. But her plans changed when she developed a high fever while on family vacation that summer.
Lauren
My name is Lauren, I'm 20 years old and I am a lymphoma survivor. The summer after graduating high school, I began to develop symptoms consisting of a dry cough, a lump under my arm and shortness of breath.
Liz
In December 2010, my fiancé, Darla, was diagnosed with stage 4 small B-cell lymphoma (NHL). Her doctors developed a plan to start her on chemotherapy as soon as possible. She became very sick over the next couple of weeks. When she went to her first treatment three weeks after diagnosis, they could not administer the chemotherapy due to her being so ill. They put it off for a day and began Rituxan® treatment the next morning. She began having an allergic reaction to the drug. They stopped the treatment and tried to stabilize her, but later that evening, she passed away.
Stem Cell Transplantation
For some high-risk patients who are in remission, the doctor may recommend stem cell transplantation during the consolidation phase of chemotherapy.
Disease Complications
In medicine, a complication is a medical problem that occurs during the course of a disease or after a procedure or treatment. Possible complications of PV include:
Signs and Symptoms
It is common for children with AML to feel a loss of well-being because of the underproduction of normal bone marrow cells.
Symptoms of a low red blood cell count (called “anemia”) include the following:
- Fatigue
- Weakness
- Shortness of breath during normal physical activities
- Lightheadedness, dizziness or faintness
- Headaches
- Pale complexion
Symptoms of a low white blood cell count (called “neutropenia”) include the following: