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Penny Man (Jonathan)

My name is Jonathan, but I really like to be called "The Penny Man.” I have been collecting pennies for over 15 years and then donating them to The Leukemia & Lymphoma Society (LLS). I first started collecting in high school in 2006 when a classmate of mine passed away from leukemia. My teacher, Mrs. Jean Cassetta, started a schoolwide campaign in partnership with LLS in memory of our friend Andrew, and I never stopped saving pennies since.

Zachary

Two months after we were married, my husband was diagnosed with acute myeloid leukemia (AML) in July 2021. I was 33 weeks pregnant with our first baby when he was admitted to St. Louis University Hospital for the next month of induction treatment. Prior to diagnosis, Zach had been experiencing fatigue and palpitations and would become winded just walking up our flight of stairs. We thought he was having residual effects from some prior illnesses that he was hospitalized for in April and May. We know now that those instances were the beginning of his immune system starting to fail.

Luz

My name is Luz, and my story begins in a magical town in Mexico where I spent a wonderful childhood surrounded by my family. As the youngest of nine siblings, I learned the value of support and connection, values which continue to guide me today as a happily married mother of three beautiful daughters. For over twenty years, Chicago has been my home.

Maggie

My son, Benjamin, was diagnosed with acute lymphoblastic leukemia in February 2019 at the age of four. Due to the unique nature of his presentation, he was placed in the VHR (very high risk) category and underwent three and a half years of treatment. My background is in theatre and education, but having just moved to New York, I was not working when Benjamin was diagnosed and was lucky enough to be able to devote 100% of my time to him. I spent his treatment years learning as much as I could about the disease and how I could best care for him.

Jackson

Mathura

Madeline

I was diagnosed with acute myeloid leukemia (AML) in June of 2022. I was feeling fine and went for a routine physical where it was discovered that my white blood cell count was very low. This was the beginning of my nightmare. I was slotted to give my husband my kidney before I was diagnosed and had to quickly find another donor. We did and he got his transplant and is doing well. I was hospitalized for 8 weeks where I received very aggressive induction chemo that left me malnourished and on death’s doorstep.

Liam

One of the Boston Bruin’s biggest fans, Liam Fitzgerald garnered national recognition as the “fist bump kid” and went on to raise almost $153,000 for The Leukemia & Lymphoma Society (LLS) to help fight blood cancers.

Nikki

I was 24 and otherwise healthy, hiking the Grand Canyon (literally) with friends, when my neck started to hurt and my arm started to swell. By the end of my vacation two days later, I was in so much pain that I could barely turn my head or lift my arm. I returned to Detroit and went straight from the airport to the ER, where, after hours of tests, I learned about a softball-sized tumor in my chest cavity, which was pressing on veins near my heart, causing blood clots in my shoulder, which resulted in the swelling and pain.

Joy

On December 29, 2011, I heard those numbing words “you have cancer.” I was 23 years old, about to turn 24 and my whole world came to a screeching halt. After months of feeling “off,” multiple visits to all kinds of doctors, repeat blood work, scans and biopsies, it was finally determined that I had non-Hodgkin’s lymphoma.

Debra

In October 2011, while at work, I fell after attempting to sit on a chair, and I went to the emergency for x-rays. As soon as the technician began the process, he entered the room to ask if I had scoliosis. I replied, "no" and he proceeded with the exam.

Kennedy

Kennedy was diagnosed with mono at age 12. Within a week she developed swelling and had a hard time breathing when laying down. Our pediatrician advised us to go to the children’s hospital where they did CT scans, MRIs and discovered a soft-sized mass pressing against her airway. There we got the news you never want to hear, our girl had lymphoma. Before that day, she was a normal child, playing volleyball, singing in the choir, being a kid.

Carol

Meet carol. hodgkin survivor. indiana. Carol was diagnosed with Hodgkin lymphoma in 2010. After being a stay-at-home mom, she went back to school to get her teaching degree and found out she had a grapefruit size tumor in her chest when she was one week away from finishing her student teaching. She put off finding a teaching job for a year while going through six months of chemotherapy. She was able to work as a learning specialist while going through her treatments as she had a very supportive principal.

Kate

"You have cancer" is one of the scariest things you might ever hear. When Kate was diagnosed with non-Hodgkin lymphoma (NHL), she initially thought about how she wasn't strong enough and how she wasn't ready to die. Then she calmed down and told herself she didn't really have a choice.

"You have to do this; you have to be strong."

Side Effects

Cancer therapy for chronic myelomonocytic leukemia (CMML) can sometimes produce side effects. For most patients, treatment side effects are temporary and go away once therapy ends. For other patients, side effects can be more severe, sometimes requiring hospitalization. Some patients never have any side effects.

Before you undergo treatment, talk with your doctor about potential side effects. Drugs and other therapies can prevent or manage many side effects.

Vaccine Therapy

Vaccines designed to treat cancer don't prevent the disease in the same way that conventional vaccine therapy prevents conditions such as measles or polio. The therapeutic cancer vaccines are designed to treat an already-present cancer and reduce its potential to grow.

Researchers are working on vaccines that could prevent cancer from recurring. Currently, there are no licensed blood cancer vaccines. Vaccines for leukemia, lymphoma and myeloma are still in development and available only in clinical trials.

Skin and Nails

Skin-related side effects from cancer treatment include:

• Dry skin
• Redness
• Itchiness
• Skin lesions

Tell your doctor about any changes to your skin. Your doctor can recommend or prescribe appropriate treatment, including topical solutions (creams, lotions or gels) to soothe your skin or relieve itching.

Tell you doctor immediately if you notice:

Special Considerations

Surgery. Patients with PV have increased risk for bleeding complications after surgery. Because your surgeon may not be aware of your increased risk for bleeding and blood clots, coordination between your surgeon and your hematologist-oncologist is very important. For elective surgeries, it is recommended that your platelet and red blood counts be in normal range before the surgery occurs.

Signs and Symptoms

Signs and symptoms are changes in the body that may indicate the presence of disease. A sign is a change that the doctor sees during an exam or in a laboratory test result. A symptom is a change that a patient can see and/or feel.

It is common for a child with ALL to feel a loss of well-being because of the lack of normal, healthy blood cells.

Symptoms of a low red blood cell count (anemia) include:

'Chemobrain'

Chemotherapy and radiation therapy can cause problems with cognitive (mental) functions, such as concentration, memory and the ability to multitask. Most chemotherapy patients experience these effects, sometimes referred to as “chemobrain” or brain fog, to some degree, although doctors are unable to predict who might be affected.

The cognitive effects of chemotherapy for some are long-lasting. A small percentage of patients have long-term effects known as "chemotherapy-induced cognitive impairment." The symptoms include a mental fogginess and effects on:

Kendra

I first learned of The Leukemia & Lymphoma Society (LLS) when I participated in a Team in Training (TNT) event to walk a half marathon in San Francisco in October 2004. My friend in Michigan had lost her dad to lymphoma earlier that year, and she was training for the event from her home in Michigan. My training and participation were a way to support her during the loss of her dad. I never thought I could walk that far, and, through the support of the trainers and the motivation to support my friend, I had an awesome time completing that walk.

Caitlyn

My world started to turn upside down in January of 2019 after starting to exercise and trying to lose weight. At first, I thought I had pulled a muscle in my leg. The cramping continued to increase and turned into radiating bone pain. I went to get an x-ray to make sure nothing was broken. There were no broken bones or fractures, so they sent me on my way.

Scott

My experience with lymphoma began unexpectedly in August 2016. I began experiencing back pain with a large swollen band growing diagonally across my back. Thinking it was probably muscular, I went to see my physician who ordered an MRI. Cancer had never crossed my mind when he called me that same day and said I needed to be seen very soon by an oncologist. I was dumbfounded and left with no words. After scans, bloodwork, and a number of doctors collaborating on the findings, it was determined that I had stage 4B peripheral T-cell non-Hodgkin lymphoma (PTCL).

B-Cell Prolymphocytic Leukemia (B-PLL)

B-cell prolymphocytic leukemia (B-PLL) is a very rare and typically aggressive malignancy (cancer) characterized by the out of control growth of B-cells (B-lymphocytes).  B-cells are a type of white blood cell that is part of the immune system. B-PLL usually affects older adults with a median age at diagnosis of 69 years, and it is slightly more common in men than women.  Most of the time, B-PLL occurs as a transformation or evolution of a more slow-growing B-cell cancer, such as chronic lymphocytic leukemia.  Rarely, this is a primary disorder. 

Diagnosis

Diagnosing acute lymphoblastic leukemia (ALL) and the ALL subtype usually involves a series of tests. An accurate diagnosis of the subtype is important. The exact diagnosis helps the doctor

• Estimate how the disease will progress
• Determine the appropriate treatment

In children, a diagnosis of ALL generally requires a finding that 25 percent or more of the cells in the bone marrow are leukemic blasts of lymphoid origin (lymphoblasts).