Search Results

Jaden

My name is Jaden, and I am an 18-year-old Political Science student at Penn State University. I have been deeply involved with The Leukemia & Lymphoma Society (LLS) since I was 10 years old, a journey that began with a profound personal experience.

Ashley

My name is Ashley, and I was diagnosed with acute myeloid leukemia (AML) on February 21, 2024, during my junior year at Texas Tech University. I was struggling with my health for a couple of months but brushed it off as being tired from schoolwork as well as thinking I was just dehydrated. I was student teaching at a nearby elementary school when the school nurse told me I should go to the emergency room and get looked at due to my heart rate being so high.

Dr. Ghobrial

Irene Ghobrial, M.D., is trying to identify what causes myeloma cells to become drug resistant.  She is also leading research to try to understand how to treat premalignant conditions like monoclonal gammopathy of undetermined significance (MGUS) and smoldering myeloma before they become the more deadly acute myeloid leukemia and myeloma, respectively. Dr. Ghobrial, along with DFCI’s Robert Soiffer, M.D., also leads LLS and DFCI’s collaboration through LLS’s Therapy Acceleration Program to bring clinical trials to local community cancer centers. Dr.

Dr. Wu

Catherine Wu, M.D., is focused on chronic lymphocytic leukemia (CLL). One aspect of her research is to gain greater understanding of the genetic underpinnings of CLL. She and her colleagues are studying the role that a mutated gene – SF3BL - plays in the development of CLL in order to develop improved strategies to treat CLL. Another focus on her lab is to develop an immunotherapy approach to treating CLL. She is working on employing a CLL-specific antigen to develop a personalized vaccine for patients with CLL. Dr.

Hirshel

My nickname is "The Running Rabbi" for competing in the New York Marathon. I visited the 52 hostages in Iran and received the Award of Courage from President Ronald Reagan. I have survived cancer five times, and in thanks for my life, I have dedicated myself to being a prayerful friend to my fellow cancer patients and their loved ones everywhere. I welcome cancer patients to contact me for prayer and support. I am also the co-author of a book that chronicles my battle with hairy cell leukemia (HCL) and diffuse large B-cell lymphoma (DLBCL) and my spiritual triumph over despair.

Watch and Wait

Not all CLL patients need to start treatment immediately. “Watch and wait,” also called "active surveillance," is a valid treatment approach that means your doctor will watch your condition but not give you treatment unless you have signs or symptoms that appear or change. This approach includes: 

Treatment Outcomes

Some types of non-Hodgkin lymphoma (NHL) are curable. Some people with other types of NHL are able to keep their disease under control and live good-quality lives with medical treatment.

Click here to access NHL survival statistics.

Radiation Therapy

This treatment, which uses high-energy rays (x-rays) to kill cancer cells, is used selectively in myeloma treatment to kill myeloma cells. For example, radiation therapy is the main treatment for solitary plasmacytoma and for carefully selected patients whose bone pain does not respond to chemotherapy. Radiation therapy may, however, be impractical if there are widely distributed areas of painful bone involvement in the body.

Graysen

Graysen was born in March 2017. She was born the day before my birthday and we often say that she was the greatest birthday present ever. She was such an easy-going baby - happy, curious, and sweet with a magnetic personality. She was seemingly healthy, happy and 21 months old when we shockingly learned she had leukemia in November 2018. It was a diagnosis we never saw coming and one we were forced to simultaneously digest, navigate and hit head on.

When Your Child Has Cancer

Hearing that your child has cancer is terrifying for any parent. Today, most childhood cancer patients can expect to have full and productive lives. Many childhood cancer survivors return to school, attend college, enter the workforce, marry and become parents. Nevertheless, being vigilant about follow-up care, being aware of long-term and late effects of treatment, helping your child return to school and even dealing with your emotions are all things you’ll need to manage.  

Kylie

Kylie Lynn Branch was diagnosed with T-cell acute lymphoblastic leukemia (ALL) on January 22, 2015, just two days before her second birthday.

Lynn

My wife, Lynn Isaacson, was diagnosed with acute myeloid leukemia (AML) in October 2018. After three failed treatment approaches, she passed away on March 26, 2019, 162 days after diagnosis. From her diagnosis to her death, just 162 days passed. Of the 20,220 days she lived here on Earth, and the 12,047 days we loved each other on Earth – the disease was only with us for 162 days.

Stephanie

I was diagnosed with stage 2 Hodgkin lymphoma (HL) in 2000 and had seven months of chemotherapy (ABVD) and 20 rounds of radiation. I have not had a reoccurrence of HL, but in 2014, I was diagnosed with chronic lymphocytic leukemia (CLL). I see my oncologist every four months to check my white blood count, and so far, I am still in a watch-and-wait situation. I work full-time in a high-level, stressful job, have two children, and thankfully, have the energy to do it all and have not had to resort to any treatment yet.

Monica

As a First Connection® volunteer with The Leukemia & Lymphoma Society (LLS) for almost two years, I have had the opportunity to connect with patients and survivors to share their stories and experiences while battling this deadly illness. Every day I come across so many touching and courageous stories that inspire me to do more and more to support this cause.

Chemotherapy and Drug Therapy

Treatment of CLL is started when symptoms develop that are associated with active disease. Before starting treatment, it is important to have another FISH test to see if there are any changes to the genes and/or chromosomes of the CLL cells. 

Lashelle

In 2019, knots started to appear on my neck and jawline. My face was also massively swollen. I was unrecognizable. I had difficulty breathing, and major parts of my body were swollen as well. After several tests and two surgeries, I was unexpectedly diagnosed with non-Hodgkin T-cell lymphoma (NHL). I was told that if the cancer had stages, I was considered stage 4.

Austin

Four were spoken that day. Four crushing, breathtaking words, “Your son has cancer.” My world, my life, and my dreams for my son’s future suddenly halted while the rest of the world kept going on around us on May 14, 2011. Only days before, I was deciding what theme to have for his third birthday party and what outfit he would wear for his pictures. Days later, my husband and I were signing consents for the specific protocol of poison that would be pumped into Austin and having to digest the laundry list of possible side effects.

Finances and Insurance Coverage

Healthcare costs are a key concern for most people with blood cancer. Many patients don't have health insurance, and for others, coverage is limited. If you have health insurance, it's essential that you know what your plan covers and how to maintain your benefits. 

You and your family will need to decide how to pay for treatment while managing household finances. You probably also need to consider additional indirect costs, such as lost time from work, childcare and travel expenses.

End-of-Life Care

Awareness and discussion of end-of-life issues is an important aspect of care for any serious illness and helps improve quality of life. Talk to your child’s healthcare team about treatment goals and any concerns you have related to prognosis, treatment outcomes and end-of-life care.

Disease Complications

In medicine, a complication is a medical problem that occurs during the course of a disease or after a procedure or treatment. Possible complications of ET include:

Treatment Outcomes

Treatment results and outcomes vary among patients. Newer treatment therapies, better supportive care and studies of new drugs in clinical trials are all contributing to improved outcomes and quality of life for people diagnosed with blood cancers.

Clinical Trials

Taking part in a clinical trial may be the best treatment choice for some MDS patients. Clinical trials are under way for all MDS-risk types. Today's standard treatments for cancer are based on earlier clinical trials. LLS continues to invest funds in MDS research.

Click here to read more about clinical trials.  

Delena

I was diagnosed with acute lymphocytic leukemia (ALL) at the age of two in 1981. I was sent to Riley Hospital for Children for assessment and to create a treatment plan.  At the time of my diagnosis, my mom was a single mother of two young daughters. My father passed away from Ewing sarcoma in April 1979. I was eight months old, and my sister was four when he passed.

Christine

Christine Attia knows first-hand how overwhelming and terrifying a blood cancer diagnosis can be. She lost her 27-year-old fiancé three years ago after a courageous six-month battle with acute myeloid leukemia (AML), a blood cancer which has seen few improvements in treatments in more than 40 years.

Maria

My son, AJ, was diagnosed with leukemia on September 23, 2014, and from then on, our life changed. AJ had bumps, turns, and stops during his treatment, but we were lucky to have found The Leukemia & Lymphoma Society (LLS) about a year into his 3¼-year treatment protocol. Our first event was a Light The Night (LTN) walk one year, one month, and one day from his diagnosis date. It was a special evening where AJ was able to see so many survivors and be surrounded by people who supported him.