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Dani
My daughter was a professional dancer out on tour when she was diagnosed with acute lymphoblastic leukemia (ALL). She was 25 years old dancing in Detroit, Michigan, at the time, feeling short of breath and having night sweats. Being a dancer, you are in the best shape of your life, and you know when something is going on with your body. So as a mom not knowing what was wrong, I started to panic and told her to start at the urgent care. Two days later I was on a plane heading to Detroit where they told her they thought she had leukemia.
Todd
This cause is dear to me because my grandmother, Anne Zavorskas, passed away several years ago from Hodgkin’s disease--a form of leukemia. Also, many years ago, my mentor’s son, Ryan Hurley, had a recurrence of leukemia, which he was first diagnosed with at the age of three. He died at the age of 19. Unfortunately, leukemia at the time caused more deaths than any other cancer in children under the age of 20. These instances led me to my desire to donate time and money to this particular charity. I have volunteered my time and fundraising expertise ever since.
Chemotherapy and Drug Therapy
Chemotherapy drugs kill fast-growing cells throughout the body, including both cancer cells and normal, healthy cells. The damage to normal, healthy cells can cause side effects. Chemotherapy is typically given in cycles. Each cycle is made up of a certain number of days of treatment, followed by a certain number of days of rest.
Saly & Merna
We began volunteering with The Leukemia & Lymphoma Society’s (LLS) annual Light The Night (LTN) event in high school. Our hearts were touched by the courage and stories of empowerment present at the event, so we came back the following year, and then the year after that, and so on. Even through COVID, we were supporters of the event and the individuals and families there. We volunteer every year and support LLS as we learn more about friends who are wrestling with and have been impacted by leukemia and lymphoma, always praying for healing and restoration.
Follow-Up Care
Find more information about follow-up care, including what to expect, long-term and late effects of treatment, survivorship clinics, and other resources, such as The National Comprehensive Cancer Network (NCCN) treatment guidelines.
Treatment Outcomes
Parents of JMML patients are advised to discuss survival information with their child’s hematologist-oncologist. Keep in mind that outcome data can show how other children with JMML responded to treatment, but it cannot predict how any one child will respond.
Refractory and Relapsed Childhood ALL
Most children with ALL are cured with standard chemotherapy treatments. But about 15 percent of young patients have ALL that returns after remission. This is referred to as a “relapse” of the disease (or “relapsed ALL”). Some children are unable to achieve a remission because their cancer does not respond to treatment. In these cases, the disease is referred to as “refractory” (or “refractory ALL”).
Follow-Up Care
Click here for information about follow-up care, including what to expect, long-term and late effects of treatment, survivorship clinics, and other resources such as The National Comprehensive Cancer Network (NCCN) treatment guidelines.
Use the Survivorship Workbook to collect all the important information you need throughout diagnosis, treatment, follow-up care and long-term management of a blood cancer.
Treatment Outcomes
In some people with PV, the disease remains stable for many years. In many people, life expectancy is the same as it would be if they did not have PV. With careful medical supervision and therapy, PV can usually be managed effectively for a long time. In some cases, however, it may progress to another type of blood disease, such as myelofibrosis or acute myeloid leukemia.
Treatment Outcomes
A few decades ago, there were very low cure rates in both children and adults diagnosed with ALL. Today, childhood ALL has one of the highest cure rates of all childhood cancers, approaching 92 percent for children younger than 15 years and more than 94 percent for children younger than 5 years.
Madison
Hello! My name is Madison, but that's not what you need to remember. The name you need to remember is Brodie. You see, I am joining the 2023 Student Visionaries of the Year campaign in honor of my childhood friend, Brodie. In November 2018, Brodie was diagnosed with acute myeloid leukemia (AML) while only in the 6th grade. With a short fight of a long, five months, Brodie gained his wings on April 9, 2019. But today the war wages, on and we are battling this together. Our war is against leukemia, and I have no doubt we are going to win.
Mabel
My name is Mabel. I was diagnosed with acute myeloid leukemia (AML) in December 2018. I started aggressive treatment at Northside Hospital in Atlanta, GA. The Leukemia & Lymphoma Society (LLS) became my safety net emotionally and financially. Emotionally they were very present and readily available to answer any questions or concerns I had. Financially they helped me cover the costs of my private medical insurance premiums, co-pays, and co-insurance for medication, labs, and tests. I am forever thankful to the LLS because they are able to help people like me.
Phil
My sweet and wild 3-year-old son, Phil, was diagnosed with B-cell acute lymphoblastic leukemia (B-ALL) in the midst of the holidays in 2019 on December 27. Phil began treatment right away, following a 2½-year treatment protocol for his leukemia type and risk level. With every hospital visit, chemotherapy infusion, medication to take, procedures in the OR, or “job” he was told to do, Phil smiled, he laughed, and he cooperated (with a little encouragement and bribery of course!). There really was something so special about him.
Sara
My name is Sara, and I am an acute lymphoblastic leukemia (ALL) survivor! I was diagnosed with ALL suddenly in November 2023 at 31 years old. I was feeling off a few months before my diagnosis, but I thought I was overdoing it at the gym, not eating well enough, not stretching enough, and not drinking enough water. Even my ribs were hurting to the point where drinking water was painful, but I thought I still did too much at the gym.
Follow-Up Care
Click here for information about follow-up care, including what to expect, long-term and late effects of treatment, survivorship clinics, and other resources such as The National Comprehensive Cancer Network (NCCN) treatment guidelines.
Use the Survivorship Workbook to collect all the important information you need throughout diagnosis, treatment, follow-up care and long-term management of a blood cancer.
Splenectomy
The spleen is an organ on the left side of the body, near the stomach. CLL cells can collect in the spleen, causing it to become enlarged. Sometimes, the spleen becomes so large that it presses on nearby organs, causing pain. Also, an enlarged spleen may lower a person’s blood cell counts to dangerous levels. An operation to remove the spleen is called a splenectomy. Splenectomy is helpful for select patients. The operation may reduce pain and help improve blood counts.
Oakley
Oakley was a typical 2-year-old going to gymnastics and play dates with her friends until a week after her third birthday when she began to decline health-wise very quickly. Oakley’s eyes began to swell, alternating between both eyes. We went to one urgent care visit, two ER visits, a visit with her primary pediatrician, and two blood draws before she was diagnosed with acute lymphoblastic leukemia (ALL).
Kessler
Kessler McLaughlin’s life change forever on July 13, 2006. In the months leading up to that day, he was a typical 14-year-old kid, except that he was in pain all the time. Doctors couldn’t figure out why his joints were in so much pain.
Rohan
I am an acute myeloid leukemia (AML) survivor. I am now 10 months post-transplant and feeling stronger every day.I was born and raised in the Bay Area to South African Indian parents. I hold degrees from UC Berkeley and USC. I have built my career around advocating for equity in tech and marketing services that uplift underrepresented communities.
Carlos
I was diagnosed with acute myeloid leukemia (AML) in June 2021 in Puerto Rico. I was introduced by a hospital social worker to The Leukemia & Lymphoma Society (LLS) for educational resources for patients and caregivers. My stem cell transplant was performed at Auxilio Mutuo Hospital in 2022. After applying for financial help from the LLS, I received help from several programs. LLS provided valuable educational materials that helped me to understand the condition and to make informed decisions. I am now 19 months post-transplant and in remission.
Chase
Meet Chase. Acute Lymphoblastic Leukemia Survivor. When Chase was just 16 months old, he was diagnosed with Acute Lymphoblastic Leukemia (ALL). Chase's treatment of chemotherapy lasted for three and a half years. Chase endured spinal taps, bone marrow draws, feeding tube placements, port accesses, blood transfusions, and countless medications - always with a smile. Chase triumphed; he's in remission and doing great. Chase's family is committed to finding a cure. They have participated in Light The Night Walk for the last seven years and raised more than $66,000!
Noah
Noah was diagnosed with B-cell acute lymphoblastic leukemia (B-ALL) on January 20, 2021. He was just six years old. We noticed Noah had a lot of bruising, dark circles under his eyes, his skin became very pale in color, and he was very fatigued. We took him to his pediatrician where they ran a lot of lab work. The next morning, we received a call stating that his labs did not look good and that he needed to see a pediatric oncologist right away.
Sophia
My wife and I would have never heard of The Leukemia and Lymphoma Society (LLS) if it were not for losing our 12-year-old daughter on March 12, 2013 to undiagnosed leukemia. If you've heard me speak of my daughter Sophia, you've heard this word: perfect. Her laugh, her eyes, her beautiful smile were all perfect. Sophia was a loving, kind and compassionate child. She loved her friends, her dogs (Katie & Daisy), and her family. Perfect. Sophia's story is very different from others.
Sal
Meet Sal. Chronic Myeloid Leukemia Survivor. Florida. Sal was diagnosed with chronic myeloid leukemia (CML) before his daughter Olivia celebrated her first birthday. After multiple courses of treatment proved unsuccessful, he underwent a bone marrow transplant in September 2011. Now, almost three years later, Olivia is almost 5 and her Daddy is celebrating his "three-year post-transplant birthday"! Sal is healthy and strong - and has the energy to play and laugh with her. Most beautiful of all, he can now dream of being at her side for all kinds of birthdays to come.
Cayden
Cayden was only three years old when he was diagnosed with Philadelphia chromosome-positive acute lymphoblastic leukemia (Ph+ ALL) in April 2020. Before his diagnosis, Cayden was full of energy, and he loved to eat. But then he started to complain about leg pain. We first thought it was just a growth spurt, but the pain got so bad that he could not walk. He also lost his appetite. That wasn’t like him at all, and I knew something was not right. It was the height of COVID-19, but we took him to the emergency room. All of his tests came back negative.