Too many parents lose their children to blood cancer each year. It’s a devastating experience for families blindsided by the harsh realities of cancer treatment that wasn’t developed with their little ones in mind. These lives lost too soon are the reason parents of children touched by blood cancer advocate fervently for change. And it’s a cause their communities and loved ones are more than happy to join—developing better treatment options that are safer and more effective for children, causing fewer side effects and leading to better outcomes.
My blood cancer story began in 2015 with a diagnosis of chronic myeloid leukemia (CML). It was scary, and there were so many unknowns. Today it’s 9½ years later, and I know a few more things about blood cancers.
First, today my cancer is undetectable! But as my doctors have told me, it’s chronic, so I’ll always have to be proactive and take medication.
When I was in middle school, my dad was diagnosed with acute lymphoblastic leukemia (ALL). During this time, The Leukemia and Lymphoma Society deeply supported our family. Sadly, my dad passed in 2021, but my loved ones and I continue to honor his spirit by making the most out of our lives. I became a volunteer because I strive for a future where cancer has a cure. All donations are deeply appreciated and will go to cancer research!
My daughter, Elyssa donated her hair for children with cancer only months before she herself was diagnosed with Hodgkins lymphoma. Upon her diagnosis, she had the rest of her hair put in ponytails and had it cut to her scalp so the rest could be donated.
Being diagnosed in her first year of college at University of Connecticut, she immediately went to the disabilities office and applied so she could continue with the semester.
I support LLS because leukemia and lymphoma has impacted my family. On Mother’s Day in 2006, my cousin's six year-old daughter, Sydney was diagnosed with acute myeloid leukemia (AML). After a year of fighting so hard, Sydney passed away.
The doctors at the New York Hospital were amazed and acknowledge that because Sydney did not give up and she fought such a painful battle, she had done so much for the advancement of research in leukemia.
(As told by Russ Parker’s wife Karen A. Parker) In the fall of 2004, Russ was looking forward to a surfing trip to Fiji with his son Rusty and a group of good friends. He was a real estate developer, surfer, soccer coach, swimmer and runner.
Ron was a private man. He didn’t seek the company of many. But the friends he had were close, and more than anything, he cherished his time the most with his loving wife and best friend, Paulette. The two of them shared a love for fishing and traveling. They traveled all across the western United States searching for the best fishing spots. They even had a place in Baja California where they spent most of their time fishing together. Ron was unapologetically himself, and he never once cared about what others thought of him.
For some patients who are in remission and can tolerate intensive chemotherapy, the doctor may recommend stem cell transplantation during the consolidation phase of chemotherapy.
In 1985, 10-year-old Jennifer took to the stage to accept The Leukemia & Lymphoma Society’s (LLS) “Employee of the Year” award for her mother, Teresa McVay, who had lost her battle against chronic myelogenous leukemia earlier that year. That was Jennifer’s first time speaking on stage, but it would not be her last. Driven by her mother’s traumatic passing, Jennifer has been a public speaker on Adverse Childhood Events (ACEs), sharing her own experience with loss in order to bring awareness to the cause.
On behalf of people with blood cancer, thank you for your gift to The Leukemia & Lymphoma Society (LLS).
To view your donation details, please log in to your Donor Advised Fund account.
Your donation funds life-saving research and services that provide hope, help, and healing to patients and their families.
I first got involved with The Leukemia & Lymphoma Society (LLS) shortly after the passing of my boyfriend, John, in 2020. John "Poochy" fought a very long and hard battle against leukemia that came to an end in August 2020. I was absolutely devastated and lost in a world without my love.
About two weeks later, a friend posted something about an event called Light The Night (LTN) for LLS, so I checked it out and immediately signed up a team of John and my friends for my local LTN event. We raised over $1,000 in less than 24 hours!
Diagnosed with ALL in 5th grade, my hopes for a normal and healthy childhood were quickly shattered. The impact on my family began as devastation but has since metamorphosed into restoration, healing, and a closeness beyond this world (bonus, my brother and I have never fought since the day I received the news of my disease).
When I went for my annual physical in 2013, my doctor called me to tell me that my bloodwork looked strange. He asked me to get it tested again to be sure of the result. I did not have any symptoms at all. Within a week, I was diagnosed with chronic myeloid leukemia (CML), something I'd never heard of. I had no idea what this would mean. It took me a while to find the right oncology team, but once I did, they were amazing. After lots of tests (including a bone marrow biopsy), I was started on medication, at a low dose, because I'm a pretty small person.
The last conversation I had with my daughter Sonny was one that I will never forget. As she sat there exhausted from the leukemia and CDiff and sepsis that was ravaging her body; we talked about how much of a fight she put up. She could only respond with a short, “I know Momma”. To which I replied, “You don’t have to fight anymore baby.” Again, “I know Momma”. I told her that her Poppa was waiting in Heaven on his tractor to take her for a ride like she used to love when she was little.
You may be able to take certain steps and precautions to preserve fertility before, during and after treatment.
To say that I have always been daddy's little girl would be the biggest understatement. Everything from school dances to projects in the garage, I could always be found by my dad's side. In 2009, my dad was diagnosed with acute myeloid leukemia (AML).
Exactly a month before my 24th birthday, I was diagnosed with acute lymphoblastic leukemia (ALL). As a young adult, hearing the words “you have cancer” come from a physician’s mouth was earth-shattering, to say the least.
Prior to my diagnosis, I had been working in clinical research and was enrolled in a Biomedical Science Master’s program with hopes of continuing to medical school and becoming a physician. However, my career aspirations were placed on hold when I received my diagnosis. Immediately, my dedicated student lifestyle turned into one of a full-time patient.
My name is Heather and I was diagnosed with acute myeloid leukemia (AML) +FLT3/ITD on December 14th, 2017. That morning I noticed I was extremely pale and I had large bruises over my body. My doctor ran blood work STAT and within an hour I knew my platelets were below 20 and I needed to rush to the ER. I was pretty near death at that time. I was in Disseminated Intravascular Coagulation (DIC), which has a pretty high mortality rate.
One of the Boston Bruin’s biggest fans, Liam Fitzgerald garnered national recognition as the “fist bump kid” and went on to raise almost $153,000 for The Leukemia & Lymphoma Society (LLS) to help fight blood cancers.
Thirteen years ago, my cousin brought me and our family into the The Leukemia & Lymphoma Society (LLS) world. Her friend's dad had lost his battle, and I had just begun mine. In November 2011, I was told I had acute lymphoblastic leukemia (ALL). After being immediately hospitalized, poked, and prodded, I started on a clinical trial following a pediatric protocol with adult doses. It worked! By March 16, 2012, I could say I was in remission. Life was great! No more nausea, vomiting, and general crap feeling. No more pulmonary embolisms from one of the treatments.
Three little words changed my life forever!
I am a two-time Hodgkin lymphoma (HL) cancer survivor. I was first diagnosed with stage 2 HL in 2006. I underwent chemo and radiation. The doctors at my check-ups were no longer looking for cancer but looking for the effects the treatment had on me. Well, eight years later it came back aggressively as stage 4 HL in my lung. I went to Dr. Armitage at Nebraska Medicine and underwent a stem cell transplant using brentuximab vedotin, a target therapy drug that was successful. He is a worldwide expert on lymphoma, so I knew I was in good hands.
It felt just like any other Saturday after my dad's birthday. He got his annual checkup and bloodwork, and we would all celebrate our April birthdays around Easter Sunday. But this turned into something unlike any other Saturday. His cell phone rang, and everything changed. He was told to go to the ER immediately because something was wrong with his bloodwork, specifically his red and white blood cells.It could have been the shock of feeling everything all at once and being numb simultaneously.
My name is Jesse Jordan. I'm a 37 year cancer survivor. I was diagnosed with acute lymphocytic leukemia (ALL) when I was 17 months old. Cancer has been one of the defining moments of my life and it helps me keep the right perspective towards life. The moment I take life for granted, cancer reminds me of how precious life is and how blessed I am to be here. I believe I am meant to share my cancer story with others. Cancer increases my awareness of life every day and reinforces my commitment to help others. My hope is that my personal cancer story can give hope to others.
