The RUNX1 Research Program
Link
http://www.runx1-fpd.org/
Contact
Website or info@runx1-fpd.org
Population Served
Patients, caregivers, and healthcare professionals worldwide
Mission
To improve the quality of life and prevent cancer in patients with the RUNX1-Familial Platelet Disorder (RUNX1-FPD); to promote awareness; to fund research about this hereditary blood disorder which predisposes an individual to develop a blood cancer in his or her lifetime.
- Provides information, education and support to RUNX1-FPD patients and their families
- Hosts scientific conferences and patient meetings
- Funds independent research grants and grants in partnership to study RUNX1-FPD
- Collaborates with RUNX1-FPD researchers and clinicians to facilitate research studies and improve patient outcomes.