National Organization for Rare Disorders, Inc. (NORD)

https://rarediseases.org/

800-999-6673

Patients in the U.S. with rare diseases

NORD is leading the fight to improve the lives of rare disease patients and families. We do this by supporting the rare community – its people and organizations – and by working together to accelerate research, raise awareness, provide direct assistance and drive public policy.

• Administers Patient Assistance Programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford
• The Patient Information Center provides information on thousands of rare disorders and resources
• The Rare Caregiver Respite Program offers limited financial assistance to eligible caregivers so that they can take a break from caregiver responsibilities
• Hosts regional and national meetings for patients and families
• Works collaboratively with a growing roster of member organizations.