Connecting African American Communities to Information, Expert Care, and Support
Connecting African American Communities to Free Information and Support and Enhancing Access to Care and the Latest Treatments
African Americans have twice the incidence of myeloma as white Americans. What’s more, recent studies show that African Americans are significantly less likely to receive the latest treatments, and are more likely to experience treatment delays.
The Leukemia & Lymphoma Society (LLS) is dedicated to helping African Americans with myeloma access the treatment and care they need and improving quality of life. LLS provides free tools and resources to help patients and caregivers navigate the treatment landscape more effectively and cope with the disease.
Through our program Myeloma Link: Connecting African American Communities to Information, Expert Care, and Support, LLS conducts extensive outreach to African Americans throughout the country to help them access critical education and support resources and optimal treatment for multiple myeloma. Currently, the program is offered in Atlanta, Baltimore, Birmingham, Cleveland, Dallas, Detroit, Houston, New York City/The Bronx, Oakland, Philadelphia, Raleigh-Durham, St. Louis and Washington DC, providing free education, information, support and referral resources.
Myeloma Link reaches patients and caregivers in the following ways:
- Trained myeloma Community Outreach Volunteers build relationships with trusted community-based organizations and plan myeloma and blood cancer education programs and other outreach activities.
- Church Outreach through various activities including health sermons during services in Black churches.
- Community education programs in collaboration with trusted partner organizations, such as churches, senior centers and libraries.
- In-depth, healthcare provider-led, patient education programs that focus on resources and information relevant to myeloma patients, their families and caregivers.
- Myeloma education programs for primary care providers at community health centers and Federally Qualified Health Centers (FQHCs).
- Connecting patients and caregivers from these communities with master’s level oncology professionals at LLS’ Information Resource Center. These healthcare professionals work with compassion to provide blood cancer patients and caregivers free personalized support, information and resources, tailored to their specific diagnosis and needs, including helping them find clinical trials and accessing financial assistance. To speak with an LLS Information Specialist, please call 844-955-LINK.
National Sponsorship for this program is provided by AbbVie, Amgen Inc., Bristol-Myers Squibb, Genentech, Takeda Oncology, GlaxoSmithKline and Janssen Oncology.