Connecting African American Communities to Information, Expert Care, and Support
Connecting African American Communities to Free Information and Support and Enhancing Access to Care and the Latest Treatments
African Americans have twice the incidence of myeloma as white Americans. What’s more, recent studies show that African Americans are significantly less likely to receive the latest treatments, and are more likely to experience treatment delays.
The Leukemia & Lymphoma Society (LLS) is dedicated to helping African Americans with myeloma access the treatment and care they need and improving quality of life. LLS provides free tools and resources to help patients and caregivers navigate the treatment landscape more effectively and cope with the disease.
Through our program Myeloma Link: Connecting African American Communities to Information, Expert Care, and Support, LLS conducts extensive outreach to African Americans throughout the country to help them access critical education and support resources and optimal treatment for multiple myeloma. Currently, the program is offered in Atlanta, Baltimore, Birmingham, Cleveland, Dallas, Detroit, Houston, New York City/The Bronx, Oakland, Philadelphia, Raleigh-Durham, St. Louis and Washington DC, providing free education, information, support and referral resources.
Myeloma Link reaches patients and caregivers in the following ways:
- Myeloma Community Outreach Volunteers (patients or caregivers) provide support and information.
- Myeloma Sundays consist of a “health sermon” by a respected healthcare provider during church services and a fellowship hour table where LLS staff is available to provide more information after church.
- Outreach and community education programs in collaboration with trusted partner organizations, such as churches, senior centers, and libraries.
- In-depth healthcare provider-led education programs that build general awareness of myeloma or focus on resources and information relevant to myeloma patients, their families and caregivers.
- Myeloma education programs for primary care providers at community health centers and Federally Qualified Health Centers (FQHCs)
- LLS Information Specialists are healthcare professionals who work with compassion to provide blood cancer patients and caregivers free personalized support, information and resources, tailored to their specific diagnosis and needs, including helping them find clinical trials and accessing financial assistance. To speak with an LLS Information Specialist, please call 800-955-4572.
National Sponsorship for this program is provided by Amgen Inc., Bristol-Myers Squibb and Takeda Oncology.