Search Results

Jared

At 31, I was diagnosed with acute myeloid leukemia (AML). As my career was finally taking off as a celebrity makeup artist and I finally felt “grown-up,” it came to a screeching halt. My life became cancer and getting better. Although I struggled with the isolation, I connected with many other patients via social media.

Lauren

At the age of 33, I was diagnosed with acute myeloid leukemia (AML). I immediately started undergoing treatment which initially consisted of intense induction chemotherapy followed by consolidation chemotherapy and then a haploidentical stem cell transplant. My 64-year-old father was my only donor option as I did not have any matches on the national registry. My two sisters were less than half matches, and my mother’s history of having had a stem cell transplant herself precluded her from donating.

Logan

July 3, 2021, was the day that my life changed forever. I had been dealing with odd symptoms for months, and after multiple visits with dismissive practitioners, I finally had the ear of a doctor who believed me. A tumor located in my mediastinum was discovered via a CT scan. This news was devastating. I was due to be married in one month and how could someone who is just beginning her life possibly have something like this happen?

Cheryl

When I first found out that I had multiple myeloma (MM) 4½ years ago, I was shocked. I was in the hospital for a broken leg. I had twisted my leg, and it was badly broken. While I was waiting for surgery, a doctor came into my room and began to talk to me. She explained to me that my leg had broken because I had cancerous bone lesions. As I listened to her, I felt my heart sinking, I had a broken leg, not cancer. It didn't seem possible. Cancer was the last thing I would have imagined. I went through radiation, chemo, and cell replacement therapy.

Treatment Outcomes

Treatment outcomes for people with CLL vary widely, and expected outcomes are influenced by the

• Stage of the disease
• Presence or lack of various factors associated with higher-risk disease
• Overall health of the patient
• Other considerations.

Current research suggests that newer treatment combinations and approaches may improve the length of survival. People with CLL should consult with their doctors to discuss individual potential outcomes. For survival statistics, click here.

Side Effects

Cancer therapy for juvenile myelomonocytic leukemia (JMML) can sometimes produce side effects. For most patients, treatment side effects are temporary and go away once therapy ends. For others, side effects can be more severe, sometimes requiring hospitalization. Some patients never have side effects.

Before your child undergoes treatment, talk with his or her doctor about potential side effects. Drugs and other therapies can prevent or manage many side effects.

Returning to School

Consider educating family members, friends, school personnel and healthcare providers about your child's possible long-term and late effects of treatment. In particular, talk with teachers about your child's needs before he or she returns to school, as they and other school personnel may not be aware of the potential for long-term and late effects of treatment.

Halley

My story with cancer began long before I was diagnosed this year at 33. When I was 4 years old, my 18-month-old sister, Hannah, became too tired to play with me. As a child, I didn’t know what was going on, but something seemed wrong. My mom started taking her to doctor after doctor to find out what was happening. It wasn’t until we visited my grandmother in Florida that she had to go to the ER, and our family got the concerning news that she may have cancer.

Melinda

I am currently 30 years old and was diagnosed with non-Hodgkin lymphoma (PMBCL) when I was 27, almost 28 years old.

I was pregnant the day I was diagnosed, luckily 39 weeks, and ended up giving birth the same day I found out I had a massive tumor in my mediastinum. I was biopsied the next day and had to leave my 5-day-old baby and 2-year-old to go to the emergency room for a life-threatening emergency called svc syndrome.

Amanda

My name is Amanda, and I am a stage 4b classical multicellularity Hodgkin lymphoma (CHL) survivor. It all started after spring break of my junior year of high school. I was on a ski trip when I noticed my feet were more itchy than normal. I figured it was from the boots. After coming home and realizing it had gotten worse, we went to the pediatrician. She looked at the bruises and scratch marks on my legs and diagnosed me with scabies. I did the whole treatment for that, and obviously, it didn’t work. A week or two later. we went back and had some basic bloodwork done.

Ron

This started 11 years ago when my mom was first diagnosed with lymphoma. I wanted to do more and saw the purple team always out running events I was entered into. I wanted to join and did in 2010. I have run in countless events over the years with Team In Training (TNT). Then my mom passed in May of 2017 while I was training for the Walt Disney World event. I was crushed and continued to run in her honor. My mom was supposed to be at the finish line at my 2018 Walt Disney World Marathon Weekend, and it did not happen.

Heriberto

I was diagnosed with Burkitt lymphoma (BL) on Friday the 13th ― August 13, 2021, to be exact ― seven months after being married, three months after my wedding reception, and going on my honeymoon.

Kaitlin

I moved to Chicago in May 2022. I had recently finished my joint PhD in Social Work and Psychology from the University of Michigan and was offered a job as a People Analytics Researcher at Google. I loved the city and enjoyed frequent runs and cycling rides along Lake Shore Drive. In mid-July, I started noticing some symptoms that concerned me ― difficulty breathing when I was exercising, intense chest and back pain, spider veins on my chest, puffiness in my face, and fatigue.

Carly

November 25, 2022 ― the worst day of my life, the day I received my official cancer diagnosis, stage IV Hodgkin lymphoma (HL).

Leading up to this day, I was always a healthy, active young lady. I was 23 years old and eager to start this next phase in life. Exciting things were happening. We were fairly new homeowners, I had just changed jobs/occupations, and I married the love of my life in October.

Michael and Ashlee

Michael and Ashlee have a unique mother-son relationship. They share a podcast about their cancer journey. They have a website and a YouTube channel, and, yes, they even do rap songs about their hospital experiences together.

Immunotherapy Greatly Improves Survival for Infants with an Aggressive Form of Leukemia

How to Enforce Your Legal Rights

If you suspect that you are being treated differently at work because of your cancer history, consider an informal solution before leaping into a lawsuit. You want to stand up for your legal rights without casting yourself as a troublemaker.

If you face discrimination, consider the following suggestions:

Relapsed and Refractory

Some patients have residual leukemia cells in their bone marrow even after they receive intensive treatment. In these cases, the disease is referred to as being “refractory” (or “refractory ALL”).

Other patients achieve remission but later have decreased numbers of normal blood cells and a return of leukemia cells in their bone marrow. This is referred to as a “relapse” of the disease (or “relapsed ALL”). 

Treatment

It's important that your doctor is experienced in treating patients with chronic leukemia or works in consultation with a chronic lymphocytic leukemia (CLL) specialist. This type of specialist is called a hematologist oncologist.

Current therapies do not offer patients a cure for CLL, but there are treatments that help manage the disease. Doctors use several types of approaches and treatment for adults with CLL, some at different stages:

Side Effects

Therapy for CLL sometimes produces side effects. Side effects from kinase inhibitor drugs and monoclonal antibody therapy are generally milder than side effects from chemotherapy. 

For most patients, treatment side effects are temporary and go away once therapy ends. For other patients, side effects can be more severe, sometimes requiring hospitalization. Some patients never have side effects. 

Stem Cell Transplantation

For certain patients with CML, allogeneic stem cell transplantation (the infusion of donor stem cells into a patient) is their best treatment option. However, this type of transplant can cause serious or even life-threatening complications and side effects. In addition, it is often not a good option for older patients or for patients who have other health problems.

Treatment

It's important that your doctor is experienced in treating people who have chronic myelomonocytic leukemia (CMML) or works in consultation with a hematologist oncologist who has experience treating CMML patients.

In most cases, CMML can't be cured, but it can be treated. Doctors use several types of treatment for adults with CMML, although there's no one standard drug therapy for the disease:

Follow-Up Care

Those who have been treated for MDS are encouraged to:

Signs and Symptoms

Essential thrombocythemia (ET) is often detected during a routine blood test before an individual has any symptoms.

The signs and symptoms of ET are linked to high platelet counts that cause the development of a thrombus (blood clot). The symptoms include:

Resources for Survivors

Use this Survivorship Workbook to collect all the important information you need throughout diagnosis, treatment, follow-up care and long-term management of a blood cancer.