Being diagnosed with a blood cancer can make you feel like you are alone. The Bloodline with LLS is here to remind you that after a diagnosis comes hope. Listen in as experts and patients guide listeners in understanding diagnosis, treatment, and resources available to blood cancer patients. Join Alicia Patten and Lizette Rivera from the Patient Access Education Team at The Leukemia & Lymphoma Society as they explore various survivorship topics.
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Moving Forward with Myeloma: Oya’s Story
Oya knew he was sick, but his inclinations were met with people telling him he was a hypochondriac. Oya recounts the moment in his life when he decided to increase his health insurance after being told by doctors that he was fine for many years prior. It was during the insurance company’s own testing that they told him something was wrong and instructed him to bring their results of his blood work back to his primary doctor. Through a series of tests, he later received his myeloma diagnosis. Listen in as Alicia, Edith and Lizette speak with Oya about the importance of advocating for yourself when something feels ‘off’. Having been diagnosed in his 40s, Oya shares how he was diagnosed, signs and symptoms he experienced, the effects of his treatment, the importance of open communication with a patient’s healthcare team and the vital role of a caregiver. He describes the many friendships he has made throughout this journey and the lessons he has learned about life overall.
How Will My Child’s Cancer Diagnosis Impact Their Emotions?
When you think about a pediatric patient, they are not a child living in a vacuum. They are part of a very complex system that is suddenly impacted by a cancer diagnosis. Psychosocial care helps to address every piece of that complicated system to successfully get patients the treatment that they need. Join Alicia and Lizette from The Leukemia & Lymphoma Society (LLS), as they speak with pediatric oncology social worker, Chelsea Keeler, from the Children’s Hospital of Philadelphia. Chelsea provides services to patients and families to help optimize functioning, such as psychosocial assessments, supportive counseling around disease diagnosis, coping, decision-making, and connection to community resources as needed. On this episode, they’ll discuss the growing field of psychosocial care for pediatric patients, how psychosocial care differs between children and young adult populations, advancements in technology that have improved how support is provided around the world and the role of a psychosocial team and their relationship with patients and families.
The Value of a Second Opinion
One of the most important reasons to seek a second opinion is to protect yourself from misdiagnosis. Researchers have found that the rates of misdiagnosis and mistreatment are higher than you might suspect. Join Alicia and Lizette from The Leukemia & Lymphoma Society (LLS), as they speak with Dr. Pallawi Torka, Assistant Professor of Oncology and Co-Program Director of the Hematology/Oncology Fellowship Program, from Roswell Park Comprehensive Cancer in Buffalo, NY. Dr. Torka speaks about the importance of a second opinion, red flags that may indicate when a second opinion should be considered and how to approach this sometimes uncomfortable topic with your healthcare team.
Support for The Bloodline with LLS provided by Amgen; AstraZeneca; Bristol-Myers Squibb; Jazz Pharmaceuticals; Kite, A Gilead Company; Novartis; Pharmacyclics, an AbbVie company and Janssen Biotech; Seattle Genetics and Takeda Oncology.
*The information contained in this podcast is for general information purposes only and is subject to change without notice. It is not intended to substitute the advice of your healthcare provider or information provided to you by your insurance carrier.
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