Childhood Cancer Survivors: A Practical Guide to Your Future, 3rd Ed.
Childhood Cancer Survivors: A Practical Guide to Your Future, 3rd Ed. By Nancy Keene, Wendy Hobbie and Kathy Ruccione,
Childhood Cancer Guides, 2012, 434 Pages
The treatments used to cure cancer in children can affect their growing bodies and developing minds. This book provides information on medical late effects from treatment, emotional aspects of surviving cancer, schedules for follow-up care, challenges in the healthcare system, lifestyle choices to maximize health and discrimination in employment or insurance.
For more information: http://www.childhoodcancerguides.org/
Shelter from the Storm: Caring for a Child with a Life-Threatening Condition
Shelter from the Storm: Caring for a Child with a Life-Threatening Condition By Joanne Hilden, M.D., and Daniel R. Tobin, M.D.
Perseus Publishing, 2002, 240 pages
Drs. Tobin and Hilden, pediatric oncologists, are two physicians who have co-authored a caring and direct guide for families and caregivers. Themes include: Helping parents make the best possible treatment decisions while preparing for the possibility that the treatments will not work Exploring what the family might have to face, what they may be asked to decide and how they might want to involve their children in the decision-making Professional expertise and practical support are given with a sensitive exploration of palliative care and peaceful dying. Throughout, there is a perspective on hope that will strengthen the family. A list of resources and an extensive bibliography are included.
Home Care for Seriously Ill Children: A Manual for Parents
Home Care for Seriously Ill Children: A Manual for Parents Prepared by D. Gay Moldow, R.N., M.S.W. and Ida M. Martinson, R.N., Ph.D., F.A.N.N., and revised by Stacy Orloff, Ed.D., L.C.S.W and Susan M. Huff, R.N., M.S.N.
Children's Hospice International, 2003, 106 pages
This helpful publication of the Children's Hospice International covers topics such as physical care for the seriously ill child at home, psychosocial concerns, end-of-life concerns and self-care for caregivers.
When a Parent Has Cancer: A Guide to Caring for Your Children
When a Parent Has Cancer: A Guide to Caring for Your Children By Wendy Schlessel Harpham, M.D., Callahan (Editor)
HarperCollins, 2004, 224 pages
Advice for parents who are raising children while at the same time coping with a life-challenging illness. Includes a special book for children: Becky and the Worry Cup.
For more information: www.wendyharpham.com
In The Shadows: How to help Your Seriously Ill Adult Child
By Patricia Ringos Beach and Beth E. White
Publisher: Oncology Nursing Society; 1 edition (March 1, 2013)
ISBN-10: 1935864270 ISBN-13: 978-1935864271
The latest book from Hygeia Media - an imprint of the Oncology Nursing Society - navigates the difficult path parents face when their adult children become seriously ill. In the Shadows: How to Help Your Seriously Ill Adult Child asks the question, what happens when my adult child is in failing health? In the Shadows is a passionate handbook that advocates for the parent not as "extended family" but as an essential support network when an adult is dealing with a difficult health problem such as a cancer diagnosis. Through 10 real-life stories illustrating diverse examples of parental involvement, In the Shadows, written by Patricia Ringos Beach and Beth E. White, cuts through the thicket of uncertainty that surrounds most parents when trying to determine how much or how little to be involved in the care of their adult child, especially when that child has a family of their own. The book provides a unique perspective on post-adolescence parent-child relationships, gives tips on providing support groups, and offers guidelines on understanding the healthcare system.
Educating the Child with Cancer
Edited by Nancy Keene
Candlelighters Childhood Cancer Foundation, 2003, 330 pages
This book is a resource for parents of children with cancer and their teachers. It is written by top experts in the field and is accompanied by 100 parent stories. Topics such as school re-entry, neuropsychological testing, special education and the law and how to help siblings in the classroom are addressed. For more information: www.candlelighters.org
Childhood Leukemia Guide for Families, Friends and Caregivers
By Nancy Keene
Childhood Cancer Guides, 2010, 503 Pages
This most complete parent guide provides detailed and precise medical information about leukemia and the various treatment options, but also day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of death and bereavement. Included are medical details and practical advice from the voices of more than 150 parents and children who have lived with leukemia and its treatments. This book offers tools for parents and caregivers to develop into a strong advocates. It also contains a personal treatment summary and long-term follow-up guide for your child to keep as a permanent record.