Myeloma Link

Connecting African American Communities to Free Information, Expert Care, and Support

Myeloma Link

Connecting African American Communities to Information, Expert Care, and Support

Enhancing Myeloma Knowledge and Access to Latest Treatments in African American Communities

African Americans have twice the incidence of myeloma as white Americans. Recent studies show that African Americans are significantly less likely to receive the newest treatments and combination therapies, and more likely to experience treatment delays, including transplant delays

The Leukemia & Lymphoma Society (LLS) is dedicated to improving access to the best therapies and quality of life among African Americans with myeloma. LLS provides free tools and resources to navigate the treatment landscape more effectively and cope with the disease.

To heighten awareness and increase knowledge about myeloma and available treatment.

To empower patients to seek the latest treatments and enroll in clinical trials.

To encourage patients and caregivers to take advantage of the extensive free support provided by LLS.

The Leukemia & Lymphoma Society (LLS) launched the Myeloma Link initiative, in collaboration with the National Black Church Initiative (NBCI), in March 2017. The pilot program kicked off in Washington, D.C., and Atlanta to provide critical education and support resources.

What does the Myeloma Link program involve?

  • Myeloma Ambassadors (patients or caregivers) to provide support and information
  • Myeloma Sundays consisting of a “health sermon” by a respected healthcare provider during church services and a fellowship hour table where LLS staff is available to provide more information after church
  • Health Alert fact sheets placed into church bulletins
  • In-depth healthcare provider-led education programs that either build general awareness of myeloma or focus on resources and information relevant to myeloma patients and their caregivers
  • Church-based support groups
  • Directory of national and local myeloma resources
  • Master's level oncology professionals at LLS available to answer disease and treatment questions and provide additional support

To learn more about this collaborative effort, please view this video featuring Reverends Evans and Graves.

If you are interested in becoming involved in this pilot program, please contact: 1-844-955-LINK or MyelomaLink@LLS.org.

To learn more about myeloma and early signs and symptoms, please visit or call 1-844-955-LINK to speak directly to one of our Information Specialists.

We encourage involvement of D.C. and Atlanta-based churches in this effort. If your church is interested in becoming involved in this pilot program, please contact: MyelomaLink@LLS.org or 1-844-955-LINK.

For more information about Myeloma Link, click here for frequently asked questions.

Partial support for this program has been generously provided through an Innovation Impact Award from Celgene.


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