Being diagnosed with a blood cancer can make you feel like you are alone. The Bloodline with LLS is here to remind you that after a diagnosis comes hope. Listen in as experts and patients guide listeners in understanding diagnosis, treatment, and resources available to blood cancer patients. Join Alicia Patten and Lizette Rivera from the Patient Access Education Team at The Leukemia & Lymphoma Society as they explore various survivorship topics.
Motherhood and Survivorship
Mother’s Day is a celebration honoring mothers, motherhood, maternal bonds, and the influence of mothers in society. In this episode, Alicia and Lizette speak with survivor Katy Ursta, a mother of two adorable young boys. Katy speaks about her diagnosis of Hodgkin lymphoma at age 30, and how she and her husband worked to keep their young family going, while maintaining normalcy around both their four year old and four months old sons. She speaks about the importance of support, having a good relationship with her oncologist, speaking up herself, and being inspired by late sportscaster and long-time anchor on ESPN, Stuart Scott. As her sons watched on as neighbors brought food and offered tremendous support to her and her family, cancer taught them kindness and emphasized Katy’s deep belief that we are all here to help each other. Katy believes in leaving a legacy of love and hope and with that belief, created Every Sweat Matters, which encourages people to work out as a way to ‘one up’ cancer and sweat for those who cannot do so.
To everyone listening, we’d like to wish you a Happy Mother’s Day!
Encouraging Empathy Within Cancer Care
Caring for a patient means caring for the entire patient. Listen in as Dr. Daniel Epner, professor in the Department of Palliative Rehabilitation and Integrative Medicine from MD Anderson Cancer Center in Houston, TX, speaks about his experience being an oncologist for nearly 20 years before moving into his current field of palliative medicine. While treating many patients with cancer, Dr. Epner began to really appreciate the power of the relationships that he forged with his patients. His attention to caring for the entire patient naturally evolved into practicing palliative medicine. Dr. Epner speaks about a curriculum he created for young doctors and discusses ways in which culture, gender and personality must be taken into account in order to provide the best care to a patient.
CTCL: Skin Lymphoma, Not Skin Cancer
In its early stages, cutaneous t-cell lymphoma (CTCL) may be mistaken for a skin condition like eczema. Many people have a hard time grasping how something that arises in the skin is actually considered a blood cancer. Listen in as Alicia and Lizette speak with Dr. Jasmine Zain, hematologist/oncologist at City of Hope in Duarte, CA, about how CTCL is not just one disease, how CTCL is diagnosed and treated, why dermatologists may be part of a person’s treatment team, the prevalence of CTCL within certain geographies and ethnicities, stem cell transplants, the role of clinical trials and the importance of a team approach when determining the best treatment options. Dr. Jasmine Zain also explains how people can live their normal lives despite their CTCL diagnosis.
Support for this episode provided by Seattle Genetics.
Support for The Bloodline with LLS provided by Bristol-Myers Squibb, Kite Pharmaceuticals and Seattle Genetics.
*The information contained in this podcast is for general information purposes only and is subject to change without notice. It is not intended to substitute the advice of your healthcare provider or information provided to you by your insurance carrier.