The Leukemia & Lymphoma Society's Upstate New York/Vermont Chapter offers a wide range of free educational and support programs for patients, their families, caregivers and healthcare professionals. For more information about any of the following programs, please contact Melissa Darbandi, Patient & Community Outreach Manager at firstname.lastname@example.org or 203.388.9198.
If you've recently been diagnosed with a blood cancer, you may find it helpful to speak with someone who's been through treatment and learned how to manage the same disease. The Patti Robinson Kaufmann First Connection Program is a peer-to-peer program that links newly diagnosed patients and their families with trained volunteers who have experienced blood cancer firsthand and can understand your experience. Trained volunteer survivors offer caring support and information by sharing their special perspective on the recovery process.
Join a community of people who understand what you’re going through.
The Leukemia & Lymphoma Society’s (LLS) Community is an online community of people living with or supporting someone with blood cancer. LLS Community is a place for you to get connected and share your voice to drive change.
How can LLS Community help?
GET SUPPORT - Connect with others who have been through it. LLS Community is a place to talk with other people affected by blood cancers.
GET INFORMED - Get access to valuable information, education, and resources available to support you. The information on LLS community is accurate, up-to-date, and from a trusted source.
MAKE AN IMPACT - Too often, traditional research has excluded your voice, the voice that matters most. LLS Community relies on your experiences and insights to drive program development and research studies that address the needs and real-world challenges of patients living with blood cancer.
LLS Community is about participation. Our job is to translate the community’s voice into powerful, real-world research. By being a part of LLS Community, you contribute to:
- a vibrant sharing of information
- the discovery of trends and insights about blood cancer and the cancer experience
- research that will help improve care and help find cures
LLS Community was created in memory of Michael Garil, generously supported by his parents, Bernard, National Board member, and his wife, Ethel.
Please visit https://communityview.lls.org to learn more or join.
Family Support Groups
Open communication is critical for coping with the feelings that arise during illness. Family Support Groups feature sessions led by local healthcare professionals where you can share your concerns, fears, problems and experiences in a comfortable and caring setting. For the complete listing of support groups, please click here.
CLL-Specific Patient Support Groups
Please click here for support groups sponsored by the CLL Society.
Our weekly two-hour online chats provide a friendly forum to share experiences and offer support for people living with non-Hodgkin lymphoma or chronic myeloid leukemia and for young adults (aged 18-39) living with blood cancer. Each chat is moderated by an oncology social worker. For more information, see Online Chats.
Returning to school after cancer treatment can be a tough adjustment for young survivors. The Trish Greene Back to School Program for Children with Cancer helps children and youth cope with life after treatment and teaches parents, classmates, teachers and healthcare professionals how to deal with the issues surrounding childhood cancer. Program videos and materials are available for students from preschool to high school. For more information, call us at 1-866-255-3583.
Honored Hero Program
Our Honored Heroes provide inspiration and support for the LLS fundraising programs and are symbols of strength for others dealing with challenges in their lives. An Honored Hero is anyone who is being treated for, or is a survivor of, leukemia, lymphoma or myeloma. You can participate on several levels, including sharing your story, creating artwork, writing letters or attending fundraising events. For more information, call us at 1-866-255-3583.
All Patient Financial Assistance Programs
Dealing with cancer is hard enough without having to worry about the financial burden. The Co-Pay Assistance Program helps you pay your insurance premiums and meet co-pay obligations. We'll also help you find additional sources of financial help. For more information, see Co-Pay Assistance.
Information and Referral
Speak one-on-one with an Information Specialist who can assist you through cancer treatment, financial and social challenges and give accurate, up-to-date disease, treatment and support information. Our Information Specialists are master's level oncology social workers, nurses and health educators. Please call 1-800-955-4572 or email email@example.com.
Healthcare Professionals—Patient Referral
If you are a provider and would like to refer a patient for any of the services listed, please complete the Patient Referral Form.
Spanish Patient Referral Form