• LLS
  • Team In Training
  • Light The Night
  • Man & Woman of the Year
  • Students of the Year
  • Regatta
  • Hero Squad
  • Lifestyle
  • Big Climb
  • Community
  • Careers at LLS
  • Donate
  • Menu
  • About LLS

    Who We Are

    • Our History
    • Leadership
    • Financials
    • Our Commitment

    Our Mission

    • Research
    • Policy & Advocacy
    • Patient Support

    Contact Us

    • My Chapter
    • Our Regions
    • News Network
    • Partner With LLS
    • Blogs
    • Work at LLS
  • Patients
    & caregivers

    Disease Information

    • Leukemia
    • Lymphoma
    • Myeloma
    • Myelodysplastic Syndromes
    • Myeloproliferative Neoplasms
    • Facts & Statistics
    • Children and Young Adults
    • Newly Diagnosed
    • Managing Your Cancer
    • Treatment
    • Clinical Trials

    Support Resources

    • Contact an Information Specialist
    • Financial Support
    • Online Chats
    • Support Groups
    • Peer-to-Peer Support
    • Caregiver Support
    • Nutrition Consultations
    • LLS Patient Community
    • Podcast
    • Other Helpful Organizations
    • Suggested Reading
    • LLS Health Manager™ App

    Education Resources

    • Information Booklets
    • Webcasts
    • Videos
    • 3D Model Library
    • Drug Listings
    • Blood Cancer Conferences
  • Researchers &
    Healthcare Professionals

    Academic Grants

    • Academic Grant Programs
    • Apply for an Academic Grant

    Therapy Acceleration Program

    • Portfolio
    • The Team
    • Latest News
    • How To Apply

    Resources for HCPs

    • Continuing Education Programs
    • Continuing Medical Education Programs
    • Free Publications
    • Podcast
    • Patient Referral Form
    • Trish Greene Back to School Program
  • How to help

    Ways to Give

    • Donate Online
    • Monthly Giving
    • Donor-Advised Funds
    • Employee Matching Gifts
    • Wills, Trusts, and Annuities
    • Stock Transfer
    • Tribute Gifts
    • Donate by Mail

    Fundraise

    • Fundraising Events
    • Create a Tribute Page
    • Create Your Own Fundraiser

    Volunteer

    • Volunteer

    Advocate

    • Take Action
    • Sign Up to Be an Advocate

    Shop

    • LLS Store
    • Charitable Shopping
  • Donate
  • About LLS
    • Who We Are
      • Our History
      • Leadership
      • Financials
      • Our Commitment
    • Our Mission
      • Research
      • Policy & Advocacy
      • Patient Support
    • Contact Us
      • My Chapter
      • Our Regions
      • News Network
      • Partner With LLS
      • Blogs
      • Work at LLS
  • Patients & caregivers
    • Disease Information
      • Leukemia
      • Lymphoma
      • Myeloma
      • Myelodysplastic Syndromes
      • Myeloproliferative Neoplasms
      • Facts & Statistics
      • Children and Young Adults
      • Newly Diagnosed
      • Managing Your Cancer
      • Treatment
      • Clinical Trials
    • Support Resources
      • Contact an Information Specialist
      • Financial Support
      • Online Chats
      • Support Groups
      • Peer-to-Peer Support
      • Caregiver Support
      • Nutrition Consultations
      • LLS Patient Community
      • Podcast
      • Other Helpful Organizations
      • Suggested Reading
      • LLS Health Manager™ App
    • Education Resources
      • Information Booklets
      • Webcasts
      • Videos
      • 3D Model Library
      • Drug Listings
      • Blood Cancer Conferences
  • Researchers & Healthcare Professionals
    • Academic Grants
      • Academic Grant Programs
      • Apply for an Academic Grant
    • Therapy Acceleration Program
      • Portfolio
      • The Team
      • Latest News
      • How To Apply
    • Resources for HCPs
      • Continuing Education Programs
      • Continuing Medical Education Programs
      • Free Publications
      • Podcast
      • Patient Referral Form
      • Trish Greene Back to School Program
  • How to help
    • Ways to Give
      • Donate Online
      • Monthly Giving
      • Donor-Advised Funds
      • Employee Matching Gifts
      • Wills, Trusts, and Annuities
      • Stock Transfer
      • Tribute Gifts
      • Donate by Mail
    • Fundraise
      • Fundraising Events
      • Create a Tribute Page
      • Create Your Own Fundraiser
    • Volunteer
      • Volunteer
    • Advocate
      • Take Action
      • Sign Up to Be an Advocate
    • Shop
      • LLS Store
      • Charitable Shopping
  • Partners
    • LLS
    • Team In Training
    • Light The Night
    • Man & Woman of the Year
    • Students of the Year
    • Regatta
    • Hero Squad
    • Lifestyle
    • Big Climb
    Community Careers at LLS Language
    • English
    • Spanish
    • Canadian English
    • French Canadian

I am a Patient looking for Disease/Treatment Information related to

En Español
  • Who We Are All Survivor Stories James

James

Volunteer and Sur...

New Fairfield, CT

  • Print

I am a cancer survivor and my story starts in the summer of 1999. On June 9, an MRI revealed a tumor the size of a golf ball in my brain. A biopsy showed it to be a primary central nervous system non-Hodgkin lymphoma. I remember this date vividly because it was my wife’s birthday and she had to break the news to me. This marked the beginning of our journey.

After the fear and shock diminished slightly, I decided to take my diagnosis as a challenge rather than a declaration of death. Rather than worrying about my career path, I was forced to worry about my life span. All of my plans and goals were wiped of the board as I was forced into a world I knew nothing about. It was the most frightening time of my life.

My new world contained a new language -- words and phrases like PCNS non-Hodgkin lymphoma, large diffuse B cell with a marker of CD-20, pet scans with radioactive isotopes, whole brain radiation, monoclonal antibodies, intrathecal ports, Omeyya shunts and stem cell harvesting. Specific medications, many with names I still can’t pronounce, are too numerous to count.

To summarize, five years of treatment, including remission and relapse, led me to the lifesaving procedure known as a stem cell transplant in 2004. I would certainly not be here today without the team of dedicated medical professionals I was fortunate to meet and my personal support group headed by my wife Lisa. Simple things like holding my hand during a blood transfusion energized me and enabled me continue my battle.

I’ve been called a hero, given awards of courage, honored as a survivor and thanked as a supporter and fundraiser, but the true heroes are my family, friends, doctors and nurses, and God that aid me in survival. My positive experience with cancer leaves me with a moral obligation to help those who are going through or about to go through treatment.

I’ve helped patients through tough times as a First Connection volunteer and I've raised more than $13,000 in my 12 years of fundraising. During the past few years I’ve also been involved in patient advocacy, which will help fix roadblocks that lead to providing the proper medicine and treatments to patients. Eventually all these programs will help lead to curing cancer.

 

Previous StoryMinerva
Next StoryLynette
Previous StoryMinerva
Next StoryLynette

Follow us

Sign up for latest news

Subscribe

The Leukemia & Lymphoma Society® (LLS) is a global leader in the fight against cancer. The LLS mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world, provides free information and support services, and is the voice for all blood cancer patients seeking access to quality, affordable, coordinated care.

The Leukemia & Lymphoma Society is a 501(c)(3) organization, and all monetary donations are tax deductible to the fullest extent allowed by tax laws. Please check with your financial advisor if you have more questions.

  • Privacy Policy
  • Security
  • Copyright
  • Link Policy
  • Disclaimer
  • Public Disclosure
  • Fundraising Disclosure
  • Refund Policy
  • Work for LLS
  • Contact Us