Population served: Brain tumor patients and their families in the United States
Other language(s): SpanishMission:
ABTA is committed to advance the understanding and treatment of brain tumors with the goals of improving, extending and, ultimately, saving the lives of those impacted by a brain tumor diagnosis.
- Provides care consultations by phone or by email, and will help find information, resources and tools that are needed by patients and caregivers.
Population served: People affected by a cancer internationally; programs and services offered to patients and caregivers residing in the United States
Other language(s): Spanish, Chinese, Korean, VietnameseMission:
In the U.S., ACS is a community-based voluntary health organization dedicated to eliminating cancer as a major health problem.
- Provides educational materials both online and in print about cancer, including blood cancers, as well as related information on topics such as diet, exercise, complementary and alternative medicine, and disease statistics
- Offers support services via online discussion boards and in-person support groups through local chapters
- Cancer Survivors NetworkSM, a global online community, transcends geographic boundaries and builds bonds among cancer survivors and caregivers through shared experiences and feelings.
- Road to Recovery, a program offered locally by some chapters, has volunteer drivers who transport patients to and from treatment appointments
- Look Good, Feel Better program for female adults and teens helps with self-image during chemotherapy and radiation treatments
- Hope Lodges are temporary housing accommodations for patients traveling far from home for treatment. There are more than 30 lodges
- American Cancer Society’s Wig Bank - Provides free wigs from limited supply to needy patients suffering hair loss due to cancer treatment. Intended for those with insufficient insurance coverage for cranial prostheses (wigs).
Population served: Patients and health professionals interested in CLL information
To abolish chronic lymphocytic leukemia (CLL) as a threat to the life and health of patients.
- Aims to fund patient-oriented projects with rapid clinical applications and to expand the knowledge of CLL on a global scale
- Provided seed money for the formation of two CLL Research Consortiums, one in Australia and one in Israel.
Population served: Anyone seeking information on chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL)
To provide disease-specific information to CLL and small lymphocytic lymphoma (SLL) patients and caregivers; to increase awareness about the disease; and to gain increased visibility in order to achieve greater support from the medical community.
- Serves as a pathway to inform members of events and discoveries of importance
- Hosts seminars, discussions, and forums dealing specifically with CLL/SLL
- Develops relationships with doctors and experts in the field, so that people with CLL can benefit from their knowledge and experience with the disease and bridge the gap between the medical community and patients
- Offers an interactive, online discussion group, often attended by medical professional who provide information.
Population served: Patients, caregivers and health professionals
To address the unmet needs of the CLL patient and related blood cancer communities
- Provides disease, treatment and clinical trial information
- Offers quarterly newsletter “The CLL Tribune”
Population served: Anyone seeking information on cutaneous lymphoma (CL)
To support every person with cutaneous lymphoma by promoting awareness and education, advancing patient care, and facilitating research.
- Provides education and support to patients diagnosed with CL
- Information on website is designed to help physicians, nurses and other health professionals access resources related to cutaneous lymphoma.
Population served: Patients and health professionals
To transform the diagnosis and treatment of immune-mediated diseases such as cancer through immunosequencing applications.
- Provides information about the tools and techniques used before, during and after treatment to measure blood cancers
- Explains MRD (minimal residual disease) testing
- Website offered by Adaptive Biotechnologies.
Population served: People diagnosed with Waldenstrom’s macroglobulinemia and their loved ones, worldwide
Other language(s): Spanish, FrenchMission:
To offer mutual support and encouragement to the Waldenstrom's macroglobulinemia community and others with an interest in the disease.
- Provides information and educational programs that address patients' concerns
- Promotes and supports research leading to better treatments, and ultimately, a cure
- Hosts online forum, telephone and email lifeline network
- Offers support groups for patients, caregivers and families.
Population served: Patients with lymphoma and their families, caregivers, health professionals
Other language(s): Spanish, other languages available by phoneMission:
To fund innovative lymphoma research; to provide people with lymphoma and health professionals with up-to-date information about this type of cancer; to eradicate lymphoma and serve those touched by this disease.
- Provides Lymphoma Helpline and Clinical Trials Information Service
- Provides educational materials, conferences, webcasts
- Offers limited financial assistance to patients in active treatment
- Lymphoma Support Network is a one-to-one peer support program that matches lymphoma patients or caregivers with volunteers who have had similar lymphoma-related experiences
- Funds biomedical research focused on the origins, treatment and identification of a cure for lymphoma
- Raises public awareness of the disease.
Population served: Anyone affected by mantle cell lymphoma
To provide helpful information and resources to patients, caregivers, physicians, and others affected by mantle cell lymphoma (MCL)
- Offers FocusOnMCL.org website, hosted by the Lymphoma Research Foundation
- Provides disease and treatment information, support services, educational programs, publications.
Population served: People with cancer and their caregivers in the U.S.
Other language(s): SpanishMission:
To provide accurate, up-to-date, and reliable information on cancer that is easy to understand; this confidential service is a federally funded cancer education program.
- Offers trained information specialists who can answer cancer-related questions on a range of cancer topics, including the most recent advances in cancer treatment.
Population served: Patients and caregivers
Other language(s): French, SpanishMission:
To provide cancer patients with the resources and information needed to live well with cancer.
- Provides an online portal of cancer information in a library of programs, organized into ‘health centers’. Information from medical conferences as well as interviews featuring top medical experts are continually added to the site.
Population served: Patients, caregivers, healthcare professionals, researchers
To provide education and support to patients and to encourage research into these rare cancers
- Provides disease, treatment and clinical trial information for the T-cell leukemias and lymphomas
- Organizes free educational forums
- Offers physician referrals, e-newsletter and links to helpful resources
- Supports scientific research on the T-cell leukemias and lymphomas.
Population served: Anyone who has been affected by double hit lymphoma (diffuse large B cell lymphoma with MYC and BCL2 translocations)
To increase awareness of double hit lymphoma, provide information, tools and connections to make the cancer journey more manageable, and to raise funds for double hit lymphoma research.
- Provides information about clinical trials, treatment options, and healthcare providers
- Provides support with patient to patient connections program
- Partners with the Lymphoma Research Foundation for the Lymphoma Education and Advocacy Partners (LEAP) initiative
Population served: Eye cancer patients and their families, health professionals
To create a world-class center of excellence for patients and their families diagnosed with ocular tumors, macular degeneration, and related ophthalmic conditions.
- Formerly the EyeCare Foundation
- Funds research to find cures for patients with ocular tumors, macular degeneration, and related eye diseases
- Provides up-to-date treatment information
- Coordinates clinical trials to evaluate new methods of diagnosis and treatment
- Offers family and patient support programs to ease emotional stress and real-life adjustment issues related to the severe forms of these conditions
- Empowers patients to find the resources to improve their lives