LLS
 

Iowa Chapter Newsletter

September 5, 2017

in this issue
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General LLS

Welcome

Spotlight Corner

Local News & Updates

National News & Updates

Mark Your Calendars

Light The Night

Register Your Team Today!

Exciting New Event Attraction for 2017

New Bright Lights' Award

New Social Media Toolkit

Man & Woman of the Year

Save The Dates

Student Series

Welcome Back to School!

STEM Curriculum

September Contest – Win $50 to Office Depot!

Summer Contest Winners

Team In Training

COMING SOON: AN EPIC ANNOUNCEMENT

"Why TNT" --Erin Barfels

From the LLS Blog

General LLS

Welcome

Welcome to the Leukemia & Lymphoma Society, Iowa Chapter Monthly Newsletter.

Please enjoy the latest updates and news from your Iowa LLS Staff:

Executive Director: Melanie Brown
Campaign Director, Man & Woman of the Year: Sharon Keeling
Business Development Manager, Team In Training: Jeannine Laughlin
Campaign Manager, Light The Night: Mary Ann Amundson
Campaign Manager, Student Series: Jorden Allen
Campaign Specialist, All Campaigns: Keena Roberts
Campaign Assistant, All Campaigns: Judy Kennedy
Bookkeeper: Holly Stevens

If you have questions regarding information in the Newsletter, please contact the Iowa Chapter office at 515.270.6169 or by email at keena.roberts@lls.org


 

Spotlight Corner

Survivor/Volunteer

Alan Sherman

Alan Sherman

1. Tell us about you.
I am single now, brother of sister Marilyn (whom I live with), and of brother Marc (Omaha). I am very proud my one daughter Stephanie, who is married to Rob (whom I am also very proud of); and I am the very proud grandparent of 3+ year young twins Eliana and Everett, my heartlights. They live in Ankeny. All have evolved into my safety net as I continue on my survivor's healing journey.

2. Tell us about your cancer journey and when you became involved with LLS.
I was diagnosed with rare Hairy Cell Leukemia and received treatment at the John Stoddard Cancer Center as an outpatient with a 24/7 regimen during the summer of 2001. Hospitalization for 5 days became unexpected following this treatment. In 2005 I learned that my disease had returned, or perhaps never went away after my first treatment in 2001, and treatment was reapplied as an outpatient for 24/7. Again, hospitalization became unexpected for ten days following this treatment via ER and ICU. Later in 2005, treatment was applied again for 24/7 as an insurance preventative effort against this rare disease. Since for the past 12 years, I continue to see my oncologist quarterly as a watchful waiting protocol without treatment!

In 2009, I was diagnosed with prostrate cancer, receiving brachytherapy treatment at the University of Minnesota in Minneapolis. My local leukemia oncologist monitors my vitals quarterly.

In an effort to "pay forward" by supporting and encouraging cancer patients and their families, I visit with these individuals on the inpatient oncology unit of Powell 3 at the John Stoddard Cancer Center since 2008.

For the past 6 months as a volunteer, I have joined the Patient and Family Outreach Task Force of LLS making follow up calls to newly diagnosed patients in Iowa and Nebraska.

I continue to be employed for Scholastic Book Fairs as a Product Coordinator for the past 11 years, preparing books for distribution to the schools throughout Iowa.

I try to bike nearly daily and until recently, had played on two volleyball championship teams twice weekly.

My sister and I have conducted garage sales for the past 13 years that benefit The Leukemia & Lymphoma Society 100%. The annual effort has generally generated proceeds between $1500 and $2200 for the Society.

Additionally, I have co-directed fundraiser's for the Society for the past several years at the Pizza Ranch, whereat my supporters and I buss tables for tips and sales, generally generating $800-$1000 for the Society.

3. Favorite Event:
Has to be the annual "Light the Night" event in Des Moines, where I join family and friends and others that I don't know but share a common bond, in celebration of life, survival, hope, encouragement, healing, peace, and memoriam.

4. Favorite quote:
"Life is not about waiting for the storms to pass...it's about learning to dance in the rain." ~Vivian Greene

 


Board Member

Michelle H Headshot

Michelle Henaman

1. Tell us about your professional background.
I have been involved in health care my entire career, first as a nurse for a short time and for the last 25 years in health insurance. Currently, I’m an Account Executive at Aetna.

2. Tell us about your family and/or what you like to do in your free time.
I have been married for 27 years to Keith, who is now a Team in Training (TNT) coach. He became engaged with the organization when we learned that his uncle had been fighting Leukemia for 10 years, in silence. LLS gave us the resources his uncle needed to be a bit more comfortable sharing his diagnosis with family, and we continue to cheer on our #1 fan, Fran, with each unfortunate relapse or related health challenge. Today, he is again in remission thanks to clinical trials for drugs funded by LLS. Keith has completed numerous TNT events and serves on the National TNT Advisory Committee (Please check with Jeannine, I’m not sure what the official name is.)We have two boys: Zack who is 23 and lives and works in Denver, Colorado and Josh, 22, who is a senior at Iowa State University (Go Cyclones!) Zack and Josh have volunteered numerous times for LLS as well, and love to attend the Man and Woman of the Year Gala. Together we love to travel - anywhere and everywhere, whenever our busy schedules allow. I’m an avid and perpetual learner (currently working on my real estate license) and some would tell you that I’m on the right track to following my mother’s footsteps as a crazy cat lady in retirement.

3. What originally inspired you to join the LLS board? And When?
A very close friend of mine was a loyal and avid Team in Training participant for many years, and while I thought he was crazy to do these ambitious events, I always gladly donated to his campaign. In 2011, he encouraged me to sign up for the Malibu Triathlon and at a very weak moment, I agreed. It was one of the most pivotal, rewarding, and life changing decisions I have ever made. Scared out of my mind, I stuck to the training schedule and with the encouragement of my teammates and coaches, I did it! My first endurance event, ever... and I didn’t stop. I have enjoyed numerous TNT events, from half marathons, biking events, and triathlons – in every part of the country. About the same time, I was also invited to join the Parrothead Golf committee in 2011. At that point, I was convinced... The people I have met and have been blessed to have in my life, the LLS mission, and the patients and families – young and old - who truly rely on us to advocate on their behalf, assist them at their most vulnerable time of need, and who desperately need a cure... I proudly joined the Board of Directors that same year with a full heart and all the ambition in the world to do what I could to put a significant dent in the suffering that is brought on by cancer.

3. Favorite LLS Story/Memory?
I have been blessed with so many wonderful experiences. The survivors I have come to know and who hear “you are cancer free” – that alone can’t happen often enough! My most favorite LLS story has to be in 2013 when my family joined me in Uncle Fran’s honor to participate in the San Diego Marathon, he was told he had relapsed, this time without treatment options. He motivated us by saying he would meet us at the finish line. I have never been so proud of my family, especially the boys who were a freshman in college and a senior in high school, graduating a week before the event. Together, we raised about $25,000 and promised, Fran at the finish line. He shared with us then that thanks to a clinical trial, he was again in remission. Bringing Fran as our guest to the Inspiration Dinner, my favorite part of any of our TNT events, was truly one of the most moving experiences I’ve ever had.

4. Quote about LLS and/or regarding your new role as president. 
For me, the decision to accept the role as Board Chair was all about timing. We hear almost every week about breakthroughs in cancer treatment research – and of late, it almost always involves funding from the Leukemia & Lymphoma Society. Like almost everyone, unfortunately I have many family and friends have been negatively impacted by cancer. I am extremely fortunate to have healthy children, and hope to be able to keep it that way. I would love a day when my children are having their own children and don’t have to worry about prevalence rates of childhood cancers. We are so close to the day when cancer is cured with a simple prescription from your local pharmacy. Can you imagine? I can. It’s what keeps me fresh and hungry to continue to raise research funds.

6. Anything else you would like to add. 
I constantly tell people – the most important gifts you can give yourself are to find your purpose and exercise your passion. It’s amazing what it can do for your mind, body, and soul - and 99 times out of 100 it will improve the lives of others as well. The reward (for yourself and others) in doing so is phenomenal and simply makes the world a better place. Curing cancer is a lofty goal, but truly I believe in my heart it will happen. It will happen sooner, the more people that join us in the fight.

 


 

 Sponsor

acglogo1

Thank You for your continued support of our  Light The Night event! 


 

 

Local News & Updates

September BCAM graphic

Blood Cancer Awareness Month (BCAM) in September raises awareness, and drives home the message that “Leukemia, Lymphoma, Myeloma = Blood Cancer.” Make sure to check out our BCAM website and help us spread the word!

 


 

LLS Unites with other Iowa nonprofits to sign Childhood Cancer Awareness Month Proclamation

State of Iowa Childhood Cancer Awareness Month Proclamation  IMG 8205

 


 

LLS color single flyer 2017

LLS Special at Papa Johns going on now through Nov. 19.


 

Retail programs

Stop in any of the following stores, donate a $1 or more. Proceeds benefit LLS

Global Franchise Group (Pretzelmaker, Great American Cookies, Marble Slab Creamery) going on now through Oct. 15.

EZ Money is going on now through Oct. 31.

Burlington Coat Factory going on Sept. 10-Dec. 2.


 Yankee Candles

Yankee Candle has produced three candles in the same colors as our iconic lanterns. These candles will be offered on the Yankee Candle Fundraising website and will sell for $30 each, and LLS will receive 40% of each candles sold ($12.00). To purchase the candles please click on their website you will need to use the LLS customer code of 999971786.

To purchase the candles click on “Candles” and Light The Night is the second option on the drop down.
 In addition, while shopping on the site any additional purchases will also earn a 40% giveback to LLS.


 

Thank You 

American Enterprse Group donated $5,000 toward a grant focused on increasing the quality of life and access to care for blood cancer patients. 

Cynthia & John Bloomhall donated $5,000 toward our Master Beat AML Trial.  


 

National News & Updates

LLS Investment Pays Off: FDA Approves Immunotherapy For ALL

Yesterday, the U.S. Food and Drug Administration approved the first gene therapy, a groundbreaking, revolutionary treatment called CAR-T immunotherapy, for children and young adults with B-cell acute lymphoblastic leukemia (ALL).

Over the past twenty years, LLS has invested $40 million in CAR-T immunotherapy, supporting the development of this revolutionary therapy by funding more than 15 researchers and companies around the world. Read more.


FDA APPROVAL OF AML THERAPY IS A SIGNIFICANT ADVANCE FOR BLOOD CANCER PATIENTS

The steady march of progress in new treatments for patients with acute myeloid leukemia (AML), one of the most deadly blood cancers which takes more than 10,000 lives in the U.S. each year, continues today with the U.S. Food & Drug Administration approval of gemtuzumab ozogamicin (Mylotarg®). Read More.


 

 

Mark Your Calendars

Sept. 7, 2017 -- Proceeds Night at HuHot Ankeny-- 4-8 p.m. 
Sept. 15, 2017 -- Parrot Head Golf Tournament at Legacy Golf Club, Norwalk --12:30 p.m. shotgun start
Oct. 4, 2017 -- Proceeds Night at Blaze Pizza Downtown Des Moines --4:45-8:45 p.m. *Must show flyer in hand/phone
Oct. 14, 2017 -- Eastern Iowa Light The Night at Kinnick Stadium, Iowa City -- 5:30 p.m.
Oct. 21, 2017 -- Central Iowa Light The Night at Principal Park, Des Moines -- 5:30 p.m.
Nov. 4, 2017 -- Vendor Fair for LLS at Golden Leaf Banquet Center in Davenport -- 9 a.m.-2 p.m.

Email Keena.Roberts@lls.org your third-party event information, and we will add it to our calendars, social media, newsletters and etc.

 

Back to top ^

Light The Night

Register Your Team Today!

LTN Teams

Eastern Iowa: October 14 @ Kinnick Stadium
Des Moines: October 21 @ Principal Park

Check-in begins at 5:30 p.m., Program begins at 7 p.m.

To register go to lightthenight.org/ia, call 515.270.6169 or email keena.roberts@lls.org


 

Exciting New Event Attraction for 2017

Remembrance Pavilion

Introducing the REMEMBRANCE PAVILION. This new element replaces the Remembrance Ceremony of past years. This 25’ inflatable dome provides a retreat for those walking in memory of a loved one. We encourage participants to bring pictures to post along with stories or words of support on Memory Boards within the dome. Built to replicate our gold lantern, it provides an inspirational and quiet respite from the festival atmosphere of the event. The Pavilion will be open from 5:30 p.m. – 7 p.m. and all are welcome to visit.


 

New Bright Lights' Award

LTN Scarf

All registered participants who raise over $1,000 will qualify as a Bright Light! This year’s incentive reward will be distributed at the event. It is an exclusive navy and gold Light The Night Varsity Scarf! Get your fundraising done early and wear yours proudly on event night!


 

New Social Media Toolkit

Check out our new Light The Night website! With a friendly graphic interface and a more efficient platform, www.lightthenight.org is your one stop for all event related materials and information. Download ready-made Facebook posts, gifs and other useful tools HERE

 

Man & Woman of the Year

Save The Dates

 Trae

Central Iowa Dates

Kick-off: March 8, 2018 at Meredith Corporation

Grand Finale: May 19, 2018 at Prairie Meadows


Eastern Iowa Dates

Kick-off: TBD

Grand Finale: April 28, 2017 at Coralville Marriott Hotel and Conference Center


 

Student Series

Welcome Back to School!

Welcome Back Photo

September means schools are back in action and so are we! The Student Series team is so excited to have so many schools registered for Pennies for Patients this year. Not registered yet? Register here today.


 

STEM Curriculum

STEM Photo

Did you know that the United States will need an estimated 1 million STEM professionals in the next decade? We believe in educating Iowa students to be prepared to take on any of those professions and that’s why we are excited to offer brand new K-5 STEM curriculum to our participating schools. Click here to download a free sample of some of the amazing curriculum we are proud to offer.


 

September Contest – Win $50 to Office Depot!

Office Depot

If you register your school by Saturday, September 30th, you will be entered into a drawing to win a $50 Office Depot Gift Card! Get registered today here.

Winners will be announced in the October Newsletter!


 

Summer Contest Winners

Congratulations to Hayes Elementary in Davenport and Trinity Preschool in Spencer for winning our summer contest by registering early!

Team In Training

COMING SOON: AN EPIC ANNOUNCEMENT

 

TNT 30 Anniversary logoEPIC EVENT for TEAM IN TRAINING IOWA.....coming soon in an email to you!?


 

"Why TNT" --Erin Barfels

Erin Barfels

Iowa Chapter
Century 1 Building, 2700 Westown Pkwy, #260, West Des Moines, IA 50266 | 515-270-6169
 
 
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The Leukemia & Lymphoma Society (LLS) is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. LLS's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. See how your donations are invested wisely.

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