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Shelter from the Storm: Caring for a Child with a Life-Threatening Condition

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Shelter from the Storm: Caring for a Child with a Life-Threatening ConditionBy Joanne Hilden, M.D., and Daniel R. Tobin, M.D.
Perseus Publishing, 2002, 240 pages
ISBN: 0738205346

Drs. Tobin and Hilden, pediatric oncologists, are two physicians who have co-authored a caring and direct guide for families and caregivers. Themes include:

  • Helping parents make the best possible treatment decisions while preparing for the possibility that the treatments will not work
  • Exploring what the family might have to face, what they may be asked to decide and how they might want to involve their children in the decision-making
  • Professional expertise and practical support are given with a sensitive exploration of palliative care and peaceful dying.

Throughout, there is a perspective on hope that will strengthen the family. A list of resources and an extensive bibliography are included.

last updated on Wednesday, February 23, 2011
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