Shelter from the Storm: Caring for a Child with a Life-Threatening Condition
By Joanne Hilden, M.D., and Daniel R. Tobin, M.D.
Perseus Publishing, 2002, 240 pages
Drs. Tobin and Hilden, pediatric oncologists, are two physicians who have co-authored a caring and direct guide for families and caregivers. Themes include:
- Helping parents make the best possible treatment decisions while preparing for the possibility that the treatments will not work
- Exploring what the family might have to face, what they may be asked to decide and how they might want to involve their children in the decision-making
- Professional expertise and practical support are given with a sensitive exploration of palliative care and peaceful dying.
Throughout, there is a perspective on hope that will strengthen the family. A list of resources and an extensive bibliography are included.