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More to Explore - Information About Blood Cancers for Patients, Families and Healthcare Professionals

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Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email thedirectory@lls.org. Because we want to be sure that our visitors find the most relevant resources, we encourage you to visit the organization's website for more detailed information.

American Society of Hematology (ASH)
Contact: 202-776-0544
Population served: Patients, caregivers and health professionals concerned with blood disorders, worldwide
Other language(s): Spanish

Mission: ASH's mission is to further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood, bone marrow, and the immunologic, hemostatic and vascular systems, by promoting research, clinical care, education, training, and advocacy in hematology.

  • Provides information about blood basics, blood disorders and clinical trials
  • Offers Find a Hematologist search tool for U.S. residents.

Association of Community Cancer Centers (ACCC)
Contact: 301-984-9496
Population served: Patients, caregivers and health professionals

Mission: To promote the entire continuum of quality cancer care for our patients and our communities; to help oncology professionals adapt to the complex changes of delivering quality cancer care while responding to regulatory and legislative changes; to be the leading education and advocacy organization for the cancer team.

  • Assists patients and caregivers with locating a local cancer center with search tool on website
  • Provides listings of resources for clinical trials, advocacy and cancer survivorship.

Find a Health Center
Contact:
888-275-4772
Population served: Anyone in the U.S. in need of medical care that cannot afford it

Mission: The Health Resources and Services Administration (HRSA) is an agency within the U.S. Department of Health and Human Services which helps tens of millions of Americans get affordable health care and other help through HRSA programs.

  • Find a Health Center - Health Centers provide primary medical and dental care to people of all ages, whether or not they have health insurance. Services are provided on a sliding fee scale, based on your ability to pay.
  • Find Free or Reduced Cost Care at Hill-Burton Obligated Facilities - About 200 hospitals, nursing homes and other facilities across the U.S. are required to provide a specific amount of free or reduced-cost health care to people unable to pay
  • HIV/AIDS Care Ryan White HIV/AIDS programs connect people living with HIV/AIDS health care and support services
  • Eligibility for free or reduced cost care depends on income and whether or not you have health insurance.

National Cancer Institute's Cancer Information Service
Contact: 800-422-6237
Population served: People with cancer and their caregivers in the U.S.
Other language(s): Spanish

Mission: To provide accurate, up-to-date, and reliable information on cancer that is easy to understand; this confidential service is a federally funded cancer education program.

  • Offers trained information specialists who can answer cancer-related questions on a range of cancer topics, including the most recent advances in cancer treatment.

Patient Resource Cancer Guides
Contact:
913-725-1600
Population served: Patients and caregivers
Other language(s): Spanish

Mission: To empower people who are suffering with life-altering diseases by giving them the most comprehensive and up-to-date guides to treatment and facilities for their disease free of charge.

  • Provides free educational materials, written for ease of understanding, in print and online.

The Double Hit Lymphoma Foundation
Contact: 773-574-3073
Population served: Anyone who has been affected by double hit lymphoma (diffuse large B cell lymphoma with MYC and BCL2 translocations)

Mission: To increase awareness of double hit lymphoma, provide information, tools and connections to make the cancer journey more manageable, and to raise funds for double hit lymphoma research.

  • Provides information about clinical trials, treatment options, and healthcare providers
  • Provides support with patient to patient connections program
  • Partners with the Lymphoma Research Foundation for the Lymphoma Education and Advocacy Partners (LEAP) initiative
last updated on Wednesday, August 20, 2014
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