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Transplantation: Cord Blood

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Not sure what cord blood transplantation is? Cord blood stem cells can be collected from the umbilical cord and placenta after a baby is born. This material, called a cord blood unit; is taken to a cord blood bank to be tested, frozen and stored long-term. Testing includes human leukocyte antigen typing and testing for infectious agents. The blood is then frozen, usually in liquid nitrogen, for future use. When needed for a transplant, the cord blood unit can be shipped to the transplant center.

Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email thedirectory@lls.org. Because we want to be sure that our visitors find the most relevant resources, we encourage you to visit the organization's website for more detailed information.

Blood & Marrow Transplant Information Network (BMT InfoNet)
Contact: 888-597-7674 or 847-433-3313
Population served:  Transplant patients, survivors and their caregivers in the U.S.

Mission: BMT InfoNet is dedicated to providing transplant patients, survivors and their loved ones with emotional support and high quality, easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants.

  • Offers easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants
  • Transplant Directory search tool
  • Educational webcasts
  • Caring Connections, a program that links people who are considering a transplant, or a family member, with others who have been through transplant and can offer support
  • Counseling services to help patients understand treatment options and potential healthcare providers
  • BMT InfoNet Drug Database is a guide that lists many of the drugs bone marrow, stem cell and cord blood transplants patients receive during treatment; it explains why they are used and some of the possible side effects.
  • Patient Assistance Fund offers a limited amount of financial assistance for gas, food, rent or other necessities. Social workers may apply on behalf of a patient via phone or email: help@bmtinfonet.org.

Cord Blood Registry
Contact: 888.CORD.BLOOD or 888.932.6568
Population served: Patients, families, caregivers
Other language(s): Spanish and Chinese

Mission: To advance the clinical application of newborn stem cells by partnering with leading research institutions to establish FDA-regulated clinical trials, exclusive to CBR families, for conditions that have no cure today.

  • Newborn Possibilities Program® offers free cord blood and tissue processing and five years of storage to qualifying families in the U.S.
  • Genetic counselors are available to discuss your family's medical history and to answer questions about how newborn stem cells might be applicable to your family.

ExploreBMT 
Contact:
888-999-6743
Population served: Patients, families and caregivers impacted by a marrow or cord blood transplant
Other language(s): Other languages supported by translators

Mission: To serve as a comprehensive, guided source for transplant-related resources from diagnosis to survivorship.

  • Represents the combined effort of many reputable, patient-focused organizations to develop a one-stop online resource for anyone impacted by a marrow or cord blood transplant (often referred to as a BMT)
  • Provides disease and treatment information, including marrow or cord blood transplants

National Cord Blood Program of the New York Blood Center 
Contact:
718-752-4636
Population served: Patients, caregivers, health professionals

Mission: To investigate cord blood as a possible solution to a critical public health need: finding appropriate hematopoietic transplants for patients who have no matched bone marrow donors.

  • Makes cord blood available under an Investigational New Drug (IND) exemption from the U.S. Food and Drug Administration (FDA) for children and adults who face a life-threatening illness and need "stem cell" transplants from unrelated donors
  • Collects, processes, tests and stores cord blood that mothers donate for use by patients in need
  • Website provides accurate and timely information about cord blood transplants.

National Marrow Donor Program and Be The Match (NMDP)
Contact: 888-999-6743; outside of the United States call 612-362-3410
Population served: Patients in need of bone marrow and/or cord blood transplants, worldwide

Mission: Provides assistance to people in need of a bone marrow/umbilical cord blood transplants; and is dedicated to creating an opportunity for all patients to receive a transplant when they need it. NMDP operates the Be The Match Registry®, the world's largest listing of potential marrow donors and donated cord blood units.

  • Be The Match Foundation Patient Assistance Program, for patients who pursue a transplant through Be The Match®, may be eligible for financial aid programs to help pay for the cost of a donor search and for some post-transplant expenses
  • Provides an extensive collection of education materials, webcast presentations
  • Be The Match Patient Services has a team dedicated to helping you learn about marrow and cord blood transplant as a treatment option, the overall transplant process, and what to expect after transplant
  • Peer Connect Program puts a patient/caregiver in touch with one of NMDP's trained volunteers - who are transplant recipients and caregivers - to answer questions and share their own transplant experiences.
  • The Caregiver's Companion Program- combines a useful toolkit with the personalized, confidential support of a caregiver coach who understands transplant and the caregiver role.
    • Receive a toolkit that includes the Caregiver's Companion book with tips, ideas and stories from other caregivers
    • Be paired with a trained Be The Match® coach who will work with your schedule to find a time that's best for you to talk by telephone.

Sibling Donor Cord Blood Program 
Contact: 866-668-4895
Population served: Families throughout the U.S. who want to save umbilical cord blood for their children when there is a specific medical indication for banking

Mission: Provides free cord blood banking for a full family member with a need for transplant.

  • The Sibling Connection combines the Children's Hospital Oakland Research Institute (CHORI) and the national Sibling Donor Cord Blood Program with the high quality cord blood processing services conducted by ViaCord.

The Bone Marrow Foundation (BMF)
Contact: 212-838-3029 or 800-365-1336
Population served:  Transplant patients and families, caregivers, survivors

Mission: To improve the quality of life for bone marrow, stem cell, and cord blood transplant patients and their families by providing vital financial assistance, emotional support, and comprehensive educational programs.

  • Patient Aid Program provides funding to help cover the costs of donor searches, compatibility testing, bone marrow harvesting, medications, home and child care services, medical equipment, transportation, cord blood banking, housing costs and other expenses associated with the transplant
  • One-to-One Fund is a personal fund created for a specific patient. BMF administers and maintains the Fund, and can offer support with fundraising ideas
  • Lifeline Project will post the patient's photo and story on a webpage so people can donate money directly to the patient to help cover costs associated with the transplant
  • Offers resource listings and list of transplant centers in the U.S.
  • Provides SupportLine - a free service that connects patients and caregivers undergoing a transplant with patients and caregivers who are post-transplant
  • Offers Ask the Expert - a question-and-answer service where patients can email questions to health professionals about bone marrow and stem cell transplantation
  • Survivorship Program provides resources that can address the needs of all bone marrow, stem cell, and cord blood transplant survivors, their families, and caregivers.  Includes online discussion forum and NYC-based in person support group
  • Provides publications about transplantation and related topics.

The Caitlin Raymond International Registry
Contact: 800-726-2824 or 508-334-8969
Population served: Patients and health professionals worldwide searching for unrelated bone marrow or cord blood donor

Mission: The Caitlin Raymond International Registry is a comprehensive resource for patients and physicians conducting a search for unrelated bone marrow or cord blood donor.

  • Affiliated with UMass Memorial Medical Center in Massachusetts
  • Coordinating center for bone marrow, peripheral blood stem cell and placental cord unit search
  • Affiliated with 95 international registries and cord blood banks in 52 countries.
last updated on Wednesday, December 17, 2014
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